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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.


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    • Gliadingoaway
      So i was eating tons of gluten my whole life until two months ago when i had high gliadin iga. At that time, i tested negative ttg and biopsy confirmed no celiac. I had h pylori and severe gastritis (no atrophy or ulcers).   fast forward today, i avoided gluten and had antibiotic treatment to erradicate the h pylori. I am feeling much better. A few days ago is when i tested negative for ttg, gliadin igg, endomysial iga. But i did test positive for gliadin iga. Pretty strange because i had gluten three days ago (accidently ate mac and cheese and fried chicken after taking the tests) and i feel fine
    • knitty kitty
      @nanny marley, Are you having an endoscopy at the same appointment as your colonoscopy?  You said you have been going through testing for Celiac.  An endoscopy with several biopsies from the small intestine (after the stomach at the beginning of the digestive tract) is the gold standard for diagnosing Celiac Disease.  Celiac cannot be diagnosed by examining the large intestine and colon.  Colitis occurs at that end of the digestive tract.  I understand you are being checked for Colitis.  Are your doctors also going to do an endoscopy with biopsies at the same appointment to check for Celiac?  Even if you are too unhealthy to undergo a gluten challenge prior to an endoscopy, there are changes consistent with Celiac Disease that can be found by biopsy and microscopic examination.  Also get checked for nutritional deficiencies.  Many of your health complaints you've mentioned in other posts can be connected with vitamin and mineral deficits.  
    • Scott Adams
      You might find some of these articles interesting--research that shows a connection between celiac disease and some cases of MS: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/multiple-sclerosis-and-celiac-disease/
    • Scott Adams
      Washing strawberries in water, which you should always do anyway due to pesticides that may be on them, should make them safe. 
    • Scott Adams
      It is possible you have an additional food intolerance, possibly to milk/casein?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.  
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