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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8High TTG-IgG and Normal TTG-IgA
Please understand that genetic (HLA) testing cannot be used to diagnose celiac disease since about 40% of the general population has the genetic potential to develop celiac disease while only about 1% actually do. It also takes some kind of stress event to "wake up" the genes such that the potential for it is transformed to active celiac disease. This stress... -
- cristiana replied to pilber309's topic in Related Issues & Disorders1Burning Sensation in the small intestine
Hello @pilber309 and welcome to the forum. (Nice to meet an almost-twin, I have nearly reached 14 years post diagnosis, too!) I suffer from burning pain in an area which you might be describing: if you were looking at me, south of my ribs, between the sternum and belly button. Is that the area you are talking about? I get this pain when I am... -
- Threecents commented on Scott Adams's article in Winter 2026 Issue2Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out
There is a chicken place near me that says they marinate their chicken with beer before cooking. They say that people with celiac have tried it and did not get sick. Any guesses as to whether it is safe? (If I try it, I'll remove the skin first.)- cross contamination
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- Threecents commented on Scott Adams's article in Winter 2026 Issue2
Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out
Just in case, I usually have a Gliadin X capsule before eating at a restaurant, though I really don't know how effective they are.- cross contamination
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- pilber309 posted a topic in Related Issues & Disorders1Burning Sensation in the small intestine
Hello I have been diagnosed Celiac for 14 yrs now and despite ups and downs I've never felt better in terms of what I was suffering pre diagnoses due to being G.F. The one feeling I cant seem to get rid of is a burning sensation in the very part of the small intestine where the villi is. I seem to be noticing it a lot more recently. Has anyone...
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Please understand that genetic (HLA) testing cannot be used to diagnose celiac disease since about 40% of the general population has the genetic potential to develop celiac disease while only about 1% actually do. It also takes some kind of stress event to "wake up" the genes such that the potential for it is transformed to active celiac disease. This stress event can be many things but often it is a viral infection. There are two genes, HLA-DQ2 and HLA-DQ8, that are responsible for the vast majority of active celiac disease cases. Having one or both of the genes doesn't equate to having celiac disease or even guaranteeing that you will develop it since, statistically, for most people, they remain dormant. But not having either one of them, despite experiencing distress from gluten consumption, essentially rules out celiac disease and points to NCGS.
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Hello @pilber309 and welcome to the forum. (Nice to meet an almost-twin, I have nearly reached 14 years post diagnosis, too!) I suffer from burning pain in an area which you might be describing: if you were looking at me, south of my ribs, between the sternum and belly button. Is that the area you are talking about? I get this pain when I am glutened, but also when I take strong antibiotics, or drink too much coffee or eat too much rich food. I believe that it is a type of gastritis, which I treat with a very short dose of over the counter or prescription omeprazole, strong chamomile infusions, lots of water, and a reflux/gastritis diet. There are many such diets available online to look at but in my case when it is playing up I avoid spicy food, strong coffee, citrus fruit, tomatoes, fatty meals etc, and I eat small but regular meals. I don't actually enjoy alcohol but if you do happen to have gastritis, like me, it really can hurt if you have gastritis so should also be avoided. If you are taking iron supplements or NSAIDs such as aspirin, these can be very irritating to this area, too. I wonder if any of the above might apply to you? Cristiana
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Hello I have been diagnosed Celiac for 14 yrs now and despite ups and downs I've never felt better in terms of what I was suffering pre diagnoses due to being G.F. The one feeling I cant seem to get rid of is a burning sensation in the very part of the small intestine where the villi is. I seem to be noticing it a lot more recently. Has anyone had this or have any medical tips about what I can do about it. It doesn't hurt really its just irritating.
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By xxnonamexx · Posted
I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks -
Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea. I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
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