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Celiac Disease Pre-Diagnosis, Testing & Symptoms
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Recent Activity
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- cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants10What should I expect from a UK restaurant advertising / offering "Gluten Free" food
Re: Michelin star. To give an example, the Ritz Hotel in London has two Michelin stars. Here's another article about Michelin stars - from our own archive. -
- cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease34
Insomnia help
Very helpful @knitty kitty. Thank you. I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E. I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me. One day when my anxiety was completely through the roof... -
- cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants10
What should I expect from a UK restaurant advertising / offering "Gluten Free" food
@trents Good question. We are strict at home, although I have to admit I've eating the odd chocolate at Christmas that turned out to have been made in a shared facility. But that is very unusual for me, and I had my last blood test before Christmas anyway. Therefore I have concluded that eating out must be the issue. But I'll let you know in September... -
- melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Persistent isolated high DGP-IGG in child despite gluten-free diet
Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all. Will also run the HLA typing - I have the swabs ready to go. -
- trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Persistent isolated high DGP-IGG in child despite gluten-free diet
Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years...
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Re: Michelin star. To give an example, the Ritz Hotel in London has two Michelin stars. Here's another article about Michelin stars - from our own archive.
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Very helpful @knitty kitty. Thank you. I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E. I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me. One day when my anxiety was completely through the roof. I 'felt the fear and did it anyway' - a phrase other anxiety sufferers may be aware of, which I found a powerful tool in my recovery - and visited a friend's house, even though I felt so wretched. For some reason I craved milk and drank two whole pints of milk in quick succession while I was with her - to this day I can't think why, because I don't usually drink milk 'neat' - I like it in tea or coffee, or hot chocolate. But I distinctly remember within a couple of hours feeling absolutely fine again for quite a while. I've often wondered was it down to this milk, which I've since understood contains quite decent levels of B12. Would that have really worked so fast?
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@trents Good question. We are strict at home, although I have to admit I've eating the odd chocolate at Christmas that turned out to have been made in a shared facility. But that is very unusual for me, and I had my last blood test before Christmas anyway. Therefore I have concluded that eating out must be the issue. But I'll let you know in September when I have my next blood tests done. 😊
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By melthebell · Posted
Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all. Will also run the HLA typing - I have the swabs ready to go. -
Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years to manifest to the point of being detectable and where symptoms are minimal or absent. At 10 years old, his immune system may not be mature enough het to trigger the usual IGA responses that the IGA celiac tests are designed to detect. I would also have genetic testing done to confirm that he has or doesn't have the potential to develop celiac disease. The genetic profile can also offer insight into the type of celiac disease a person will develop if they ever convert from latent to active. Take a look at table 2 under the section "Types of Celiac Disease" in the article found in this link: https://pmc.ncbi.nlm.nih.gov/articles/PMC9980758/ Genetic testing is available from 3rd party labs. I think you just have to send in a cheek swab sample.
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