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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,283 topics in this forum

  1. EBsMom
    Guest

    Blood Test?

    By EBsMom, Last action:
    • 3 replies
    • 1.7k views
    • Guest
    • Guest
  2. Guest micah
    Ed-G

    Can It Be Dh If It Doesn't Itch?

    By Guest micah, Last action:
    • 1 reply
    • 903 views
    • Ed-G
    • Ed-G
  3. Momof2cuties
    chrissy

    Daughter's Blood Test

    By Momof2cuties, Last action:
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    • 1.8k views
    • chrissy
    • chrissy
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  4. Jefferson Adams

    Celiac.com Article: Celiac Disease Statistics

    By Jefferson Adams, Last action:
    • 0 replies
    • 385 views
    • Jefferson Adams
    • Jefferson Adams
  5. holiday16

    Several Questions...iga Def., Enterolab, Adrenals, Saliva Testing

    By holiday16, Last action:
    • 0 replies
    • 1.4k views
    • holiday16
    • holiday16
  6. Lemonsieur
    SunnyDyRain

    Why I Chose Enterolabs

    By Lemonsieur, Last action:
    • 11 replies
    • 2.1k views
    • SunnyDyRain
    • SunnyDyRain
  7. emorgan1985

    Do These Symptoms Sound Familiar?

    By emorgan1985, Last action:
    • 2 replies
    • 1.5k views
    • emorgan1985
    • emorgan1985
  8. photocat

    Questions - How To Get Diagnosed?

    By photocat, Last action:
    • 5 replies
    • 2.8k views
    • photocat
    • photocat
  9. Guest micah
    Guest

    Gluten Ataxia And Other Newbie Questions

    By Guest micah, Last action:
    • 4 replies
    • 1.8k views
    • Guest
    • Guest
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  11. horsegirl
    Guest

    Prep For Dr. Appt Next Week

    By horsegirl, Last action:
    • 2 replies
    • 1.2k views
    • Guest
    • Guest
  12. JessieFree
    2kids4me

    Postive Biopsy Negative Bloodtest

    By JessieFree, Last action:
    • 5 replies
    • 2.5k views
    • 2kids4me
    • 2kids4me
  13. Julie0513
    Annaem

    Does It Sound Like celiac disease?

    By Julie0513, Last action:
    • 8 replies
    • 3.8k views
    • Annaem
    • Annaem
  14. jonescatnj
    Annaem

    False Negative On Blood Test Due To Breastfeeding?

    By jonescatnj, Last action:
    • 2 replies
    • 1.4k views
    • Annaem
    • Annaem
  15. sneezydiva

    Finally Got My Biopsy Results

    By sneezydiva, Last action:
    • 3 replies
    • 1.7k views
    • sneezydiva
    • sneezydiva
  16. Guest micah
    jmd3

    Lunch Made Me All Fogged Up

    By Guest micah, Last action:
    • 4 replies
    • 1.4k views
    • jmd3
    • jmd3
  17. Dawnsister
    lovegrov

    Want To Have Blood Test, Been Off Gluten For Three Days Though

    By Dawnsister, Last action:
    • 1 reply
    • 1.1k views
    • lovegrov
    • lovegrov
  18. lob6796

    Why It Helps To Have A Good Doctor...

    By lob6796, Last action:
    • 2 replies
    • 1.3k views
    • lob6796
    • lob6796
  19. tmk

    Enterolab Users

    By tmk, Last action:
    • 4 replies
    • 1.6k views
    • tmk
    • tmk
  20. EBsMom
    mftnchn

    Questions About Dd's Enterolab Results

    By EBsMom, Last action:
    • 2 replies
    • 1.4k views
    • mftnchn
    • mftnchn
  21. Eriella
    mouse

    Meeting With Doctors On Monday

    By Eriella, Last action:
    • 4 replies
    • 1.5k views
    • mouse
    • mouse
  22. Sandi
    confused

    Help Got My Results Back

    By Sandi, Last action:
    • 6 replies
    • 2k views
    • confused
    • confused
  23. Guest Chrisbee

    Finally Got In To See Pediatric Gi

    By Guest Chrisbee, Last action:
    • 0 replies
    • 671 views
    • Guest
    • Guest
  24. whattodo
    marciab

    Might Go Back On Gluten

    By whattodo, Last action:
    • 14 replies
    • 2.6k views
    • marciab
    • marciab
  25. Supermom

    Testing Questions

    By Supermom, Last action:
    • 2 replies
    • 1.5k views
    • Supermom
    • Supermom
  26. annie76
    DebNC84

    How To Convince Someone!

    By annie76, Last action:
    • 8 replies
    • 2.5k views
    • DebNC84
    • DebNC84

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  • Recent Activity

    1. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    2. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    3. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
    4. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    5. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
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  • Posts

    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      Am I nuts?

      By trents · Posted

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
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