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Recent Activity
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- Scott Adams replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results
It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign tha... -
- cristiana replied to Tanya177's topic in Coping with Celiac Disease5Worried about being isolated
Thanks for sharing that film, @trents. I am not sure how I missed that film as I see it is a few years old, but it is very good. I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc. Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there...- 1
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- cameo674 replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results
The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely looking like a celiac diagnosis is in my future. She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations. I have never had a doctor recommend that. She also said there were... -
- Alibu posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Latent celiac, need to go gluten free, advice on kitchen "reset?"
Well, I've made if from the pre-diagnosis forum to here! I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL). My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense... -
- Scott Adams replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results
It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation bet...
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By Scott Adams · Posted
It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign that she’s advocating for you to be seen sooner, which shows she’s taking your case seriously. The fact that some labs might not have been drawn yet due to overlap with your functional health doctor’s upcoming testing adds a layer of confusion, but that’s unfortunately common when multiple providers are involved. Hopefully, the GI’s... -
Thanks for sharing that film, @trents. I am not sure how I missed that film as I see it is a few years old, but it is very good. I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc. Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there may be other people there who don't eat gluten?
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The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely looking like a celiac diagnosis is in my future. She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations. I have never had a doctor recommend that. She also said there were additional labs that she requested still out that have not come back yet; so, they may have been missed drawing those since the functional health doctor has a whole slew of labs that I am suppose to be waiting until August 27th to do. I am still waiting to hear on whether or not she will allow me to do pill prep versus the typical...
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Well, I've made if from the pre-diagnosis forum to here! I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL). My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense to go gluten free to see if I improve. I know the basics - I can find lists of things to avoid, I know about hidden dangers, etc. all of that. Where I'm struggling is just STARTING. I need to go shopping and stock up on some staples. My goal is to not try to find gluten-free alternatives, but to focus on naturally gluten-free foods like...
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By Scott Adams · Posted
It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the...
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