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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Scott Adams replied to cjjones5969's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6Problems
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The... -
- BadHobit replied to BadHobit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Help! I have to eat gluten :(
H. Pylori is negative. However, I was treated twice for this infection. All of my unknown complaints started with pneumonia and were reinforced with Covid-19. I currently have thyroid disease. However, my thyroid problem receded with synthetic hormones and was almost solved. My body has been on alert for the last year. Especially skin, intestines, eyes. -
- BadHobit replied to BadHobit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10
Help! I have to eat gluten :(
It happened like you said, the dermatologist prescribed the creams. He told me to go to gastroenterology and left the door open for immunology. I'm going to immunology because my throat swelled up last yesterday at night for no reason and suddenly I've developed asthma. And I don't have that. I gave up gluten so quickly that I couldn't even start. I am going...- 1
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- Eldene commented on Scott Adams's article in Autumn 2024 Issue1Boosting Satiety with Healthy Fats in a Gluten-Free Diet
Thanks Scott! I eat plant-based, use healthy oils, but cannot afford luxuries like nuts, seeds and more than 2 Avos.....- 1
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- Eldene replied to Eldene's topic in Related Issues & Disorders3
Hunger
I think I have found a partial answer, too long to quote here. Polyphagia, depression, stress, loss of nutrients due to damaged villi. Tx all.
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Posts
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By Scott Adams · Posted
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: -
H. Pylori is negative. However, I was treated twice for this infection. All of my unknown complaints started with pneumonia and were reinforced with Covid-19. I currently have thyroid disease. However, my thyroid problem receded with synthetic hormones and was almost solved. My body has been on alert for the last year. Especially skin, intestines, eyes.
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It happened like you said, the dermatologist prescribed the creams. He told me to go to gastroenterology and left the door open for immunology. I'm going to immunology because my throat swelled up last yesterday at night for no reason and suddenly I've developed asthma. And I don't have that. I gave up gluten so quickly that I couldn't even start. I am going to have a gene test. In my country, gluten-free food is costly but with a coeliac diagnosis, we can buy it for half the price. That's why I always eat potatoes, bananas and rice.
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By knitty kitty · Posted
@cjjones5969, Unintended weight loss is a symptom of Thiamine deficiency. Gluten free processed foods are not required to be enriched with vitamins like gluten containing flours and products made with them. Switching to a gluten free diet can precipitate vitamin deficiencies. Celiac Disease damages the small intestine where vitamins like Thiamine and the other B vitamins are absorbed. B Vitamins cannot be stored for long in the body, so we need to consume sufficient quantities every day. Thiamine can be stored the least amount of time (21days), and because our bodies require so much of it, thiamine runs out first. Unexplained weight loss is a symptom of Thiamine deficiency disorder. Please discuss supplementation with B vitamins with your doctor and nutritionist. B vitamins are water soluble and any excess is easily excreted if not needed. Thiamine is nontoxic and safe. Benfotiamine, a form of Thiamine, has been scientifically shown to promote intestinal healing. Blood tests for B vitamins are not accurate. The best way to see if you're low in B vitamins is to take them and look for improvement in health. Thiamine works with magnesium to make life sustaining enzymes. Magnesium is also needed to keep calcium in the bones. Magnesium should also be supplemented when taking Calcium. Hope this helps! Keep us posted on your progress!
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