Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leg Cramps!


w8in4dave

Recommended Posts

w8in4dave Community Regular

So I wake up in the middle of the night with horrendous leg cramps! How long does it take for these to go away after going Gluten free? I can barely get up and stand when these come on! Talk pain!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You are assuming they are related to eating gluten. Might not be. Here are some common causes of nighttime leg cramps:

Open Original Shared Link

nvsmom Community Regular

I had leg cramps related to a nerve injury from a few years previous to my diagnosis. they stopped after about 2 months gluten-free. Before that I was taking a homeopathic remedy, cuprum metallicum (sp?), that lessened the intensity and frequency.

 

I hope going gluten-free takes care of the problem for you. I know how maddening cramps can be. I remember waking up and beating on my leg trying to get it to relax, not knowing whether to laugh or cry... maddening.

eers03 Explorer

I had some leg cramping going on.  On a scale of 1-10 it was probably at most a 4.  Enough to notice but not enough to stop me in my tracks.  Stay hydrated with water and make sure your potassium intake is adequate.  If you're a kidney or heart patient, be sure to talk to your doc about your potassium before making major changes to your diet.

 

Remember, as a celiac, we need plenty of water!

Brandiwine Contributor

Potassium deficiency is what I had when I had leg cramps. Started a potassium supplement. My Godmother got them for years and resently found it was due to artificial sweeteners and Aspartme in her flavored drinks....

stanleymonkey Explorer

Magnesium deficiency can cause cramps as well, when we switched my eldest to calcium plus magnesium her cramps went

w8in4dave Community Regular

I take potassium supplement, also I don't use Aspartame , or artificial sweetners. I am assuming from Gluten... Hoo humm ohh well something I gotta live with maby!! Man do they hurt!!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

Most people do not realize that leg cramps can be a symptom of thyroid diseases ... Have you had your thyroid checked?

w8in4dave Community Regular

Yes I have had my thyroid checked! My Dr. Checked everything when I wanted to be checked for Celiac. I had horrendous cramps last night again! Maby they are lessening a bit? I don't know! But I have been walking maby that is causing?But I was getting them before I was walking.  on a scale of 1-10 It is like a 15. I can barely get up! I cannot straighten out my foot! For a few! Seems like forever when your woke up in the middle of the night with them! Then finally it starts to subside. I can still feel the spot where it was right now!! Whew!! 

frieze Community Regular

Yes I have had my thyroid checked! My Dr. Checked everything when I wanted to be checked for Celiac. I had horrendous cramps last night again! Maby they are lessening a bit? I don't know! But I have been walking maby that is causing?But I was getting them before I was walking.  on a scale of 1-10 It is like a 15. I can barely get up! I cannot straighten out my foot! For a few! Seems like forever when your woke up in the middle of the night with them! Then finally it starts to subside. I can still feel the spot where it was right now!! Whew!! 

I have to supplement Magnesium, and occ potassium....you need to be very careful with the potassium.  Are you taking a calcium supplement? Vitamin D?

1desperateladysaved Proficient

If and when I use potassium supplements, my chiro keeps close tabs on my blood pressure.  It can go too low and be very dangerous.  I had some leg cramps for several nights during the transition to gluten free.  I don't know why.  Anyway, I usually try to flex my foot (very difficult)., but  that releases the muscle.  I got so that I could feel it coming on and flex before it tightened too much. I haven't had cramps for months now.  Hopefully, yours will pass soon too.

 

D

GFinDC Veteran

Blood sugar problems can cause leg cramps also.

 

If you are concerned about low potassium you can try Morton Lite Salt.  It has potassium in it.

 

I used to get leg cramps but haven't had them in a few years.  I can't say I know why they stopped.

w8in4dave Community Regular

OMG I think the cramps got worse!! ughhh! Calcium , Potassium, I am just gunna get over it ... live with it I guess! 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.