Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Soon - Hooray!


greenbeanie

Recommended Posts

greenbeanie Enthusiast

I had a long-awaited appointment with a GI today, and she was superb. She actually seemed to think she'd have to convince me that I needed an endoscopy urgently, whereas I was expecting that I'd need to convince her not to dismiss my concerns about celiac because of the negative blood tests. She clearly didn't expect me to be as thrilled as I was to have her schedule an endoscopy! I suppose it's not often that they get a patient who is so happy to be told they're having an unpleasant medical test.

 

The funniest thing was that I presented her with a long list of symptoms, but before we even talked about it she lifted up my shirt to listen to my belly and asked about the rash on my torso. I asked her what rash - there's no apparent rash on my torso at the moment! The skin was just very slightly mottled. Now, I've had horrible, oozing, immensely itchy rashes on various parts of my body for the last 30 years, and numerous doctors told me it was just from stress. The current mottling on my torso is nothing compared to how bad the rash often gets. But seeing this minor rash alone was enough to convince her that we need to get the endoscopy done quickly so I can go gluten-free for good! Go figure. And she strongly supports me going gluten-free immediately after the endoscopy and never, ever eating gluten again, regardless of what the tests show. Finally, at LONG last, I feel like I have a competent doctor who knows what she's talking about. It was reassuring, too, that she was adamant about the need to look around in there for other problems, either in addition to or instead of celiac. One way or another, the wait for a diagnosis is almost over. 

 

Endoscopy in four days!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

YEAH!  That doctor sounds like a gem!  :) I hope your procedure goes perfectly.

 

Enjoy a last donut for me.  ;)

1desperateladysaved Proficient

I am so happy for you, and hope your results will be definitive.

 

D

w8in4dave Community Regular

Wow!! That is absolutely wonderful!! I love to hear these stories!! Absolutely!! Now this Makes me want to start back on Gluten so I can have that test!! No more stressed about that huh?

pebbles12 Newbie

Fabulous!  Is there enough of your doctor to go around?!  Here's to a smooth procedure and road to recovery :P

GottaSki Mentor

I had a long-awaited appointment with a GI today, and she was superb. She actually seemed to think she'd have to convince me that I needed an endoscopy urgently, whereas I was expecting that I'd need to convince her not to dismiss my concerns about celiac because of the negative blood tests. She clearly didn't expect me to be as thrilled as I was to have her schedule an endoscopy! I suppose it's not often that they get a patient who is so happy to be told they're having an unpleasant medical test.

 

The funniest thing was that I presented her with a long list of symptoms, but before we even talked about it she lifted up my shirt to listen to my belly and asked about the rash on my torso. I asked her what rash - there's no apparent rash on my torso at the moment! The skin was just very slightly mottled. Now, I've had horrible, oozing, immensely itchy rashes on various parts of my body for the last 30 years, and numerous doctors told me it was just from stress. The current mottling on my torso is nothing compared to how bad the rash often gets. But seeing this minor rash alone was enough to convince her that we need to get the endoscopy done quickly so I can go gluten-free for good! Go figure. And she strongly supports me going gluten-free immediately after the endoscopy and never, ever eating gluten again, regardless of what the tests show. Finally, at LONG last, I feel like I have a competent doctor who knows what she's talking about. It was reassuring, too, that she was adamant about the need to look around in there for other problems, either in addition to or instead of celiac. One way or another, the wait for a diagnosis is almost over. 

 

Endoscopy in four days!

 

Thank you for sharing -- wonderful to hear these stories -- sad that they remain the exception rather than the rule -- but thankful none the less that things are beginning to change :)

 

Glad you will have the endo behind you soon and be able to begin living gluten-free :D

EmiPark210 Contributor

I remember the countdown to my endo... gosh those were the longest days ever. I'm glad to hear you had such a positive experience with your doctor. :) 

 

It really isn't that unpleasant of a test; I don't remember a thing. And then you just get to sleep a lot.

 

Keep us updated with how recovery goes!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BelleVie Enthusiast

Wow GB, that's great. I'm very happy for you. Doctors who care really make me smile. :) 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,070
    • Most Online (within 30 mins)
      7,748

    mike.carp22
    Newest Member
    mike.carp22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.