Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Anyone See The New Study Published About Gluten In Orthodontic Materials?

BelleVie

By BelleVie
in Coping with Celiac Disease

Recommended Posts

BelleVie Enthusiast
BelleVie
Posted

Open Original Shared Link

 

Do you think it's something to worry about? I don't want to be crazy crazy, but I do have to sleep in a bite guard, and will have to continue sleeping in it for the rest of my life. What do you think? Is gluten in retainers and bite guards an issue? Or, because it's solid and you aren't likely to be chipping bits off to eat, is it fine? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


glutenmaestro Rookie
glutenmaestro
Posted

I would make sure that any thing that my mouth encounters be gluten free, especially if it's there to stay or being used repeatedly. Knowing what I do now, I would go so far as to make sure that ALL of my orthodontic materials were gluten free even if I didn't have celiac disease / gluten sensitivity. Since a third of the US population has a celiac gene, and the condition can be triggered at any point in someone's life (where the individual was previously able to tolerate gluten until then), it would seem a wise precaution.

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

I had found that article as well.  Here's the thread and discussion regarding it:

 

https://www.celiac.com/forums/topic/104736-could-your-retainer-be-preventing-healing-yes/

 

 

Open Original Shared Link

 

Do you think it's something to worry about? I don't want to be crazy crazy, but I do have to sleep in a bite guard, and will have to continue sleeping in it for the rest of my life. What do you think? Is gluten in retainers and bite guards an issue? Or, because it's solid and you aren't likely to be chipping bits off to eat, is it fine? 

Adalaide Mentor
Adalaide
Posted

I need a guard but haven't gotten one yet because I am getting an implant next winter. I did see that case study but saw not reason to be concerned or alarmed. There are the reasons mentioned in that other thread, and lets face it... if we look back on our 9 year old selves our dental hygiene probably left something to be desired. Practice makes perfect and you just aren't as adept at brushing at 9 as you are when you get older, and frequently you're in a hurry because you have better things to be doing. More than anything it is a chore, more so if you have a retainer to be worrying about cleaning and caring for. You get glutened one time, don't properly clean your retainer and suddenly you have a problem blamed on the retainer. (I'm not saying that's what happened, I'm saying it's possible... as are a great many things with the little information presented.)

 

At any rate, with proper care and cleaning of a guard and being sure to always make sure you brush before putting it in so that it never is at risk of a CC issue if you are glutened I see no reason to be worried. I frankly can't wait to get mine, I just can't fathom wasting the couple hundred bucks on one now just to replace it in a year.

IrishHeart Veteran
IrishHeart
Posted

Open Original Shared Link

 

Do you think it's something to worry about?

 

In a word... No. (please see my response in the other thread about this article) .

IrishHeart Veteran
IrishHeart
Posted

I would make sure that any thing that my mouth encounters be gluten free, especially if it's there to stay or being used repeatedly. Knowing what I do now, I would go so far as to make sure that ALL of my orthodontic materials were gluten free even if I didn't have celiac disease / gluten sensitivity. Since a third of the US population has a celiac gene, and the condition can be triggered at any point in someone's life (where the individual was previously able to tolerate gluten until then), it would seem a wise precaution.

 

A third of the US population has the celiac gene? I have never seen that estimate before. Can you point me to that Pub Med article please? thanks! 

 

Just a note about the celiac-related genes. Just because someone has the HLA-DQ2 or DQ8 gene, it does not mean the person will

definitely develop celiac disease. It just means there is a risk associated with it.

Many people without celiac carry those same HLA sequences.

BelleVie Enthusiast
BelleVie
Posted
  • Author

Irish Heart, I was hoping you would chime in. And I was pretty sure that your response would be something along those lines. Thanks. :) Powerofpositivethinking, sorry for re-posting this, I hadn't realized it was already being discussed. Adalaide, I can definitely see how that might have been the case with the little girl. I'm pretty sure my dental hygiene at that age wasn't so great! Going to check out the other thread now. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGlutenCooties Contributor
NoGlutenCooties
Posted

A third of the US population has the celiac gene? I have never seen that estimate before. Can you point me to that Pub Med article please? thanks! 

 

Just a note about the celiac-related genes. Just because someone has the HLA-DQ2 or DQ8 gene, it does not mean the person will

definitely develop celiac disease. It just means there is a risk associated with it.

Many people without celiac carry those same HLA sequences.

 

My doctor estimated it at 40 percent.  My gastro-intestinal doctor estimated it at 30-35 %.

 

CeliacDisease.com estimates it at up to 40 percent: Open Original Shared Link

 

From Medscape:

"Approximately 95% of celiac disease patients express HLA-DQ2, and the remaining patients are usually HLA-DQ8 positive. However, the HLA-DQ2 allele is common and is carried by approximately 30% of Caucasian individuals. Thus, HLA-DQ2 or HLA-DQ8 is necessary for disease development but is not sufficient for disease development; its estimated risk effect is only 36-53%."

Open Original Shared Link

 

Quest Diagnostics puts it between 25 and 40 percent:

Open Original Shared Link

notme Experienced
notme
Posted

 

 

From Medscape:

"Approximately 95% of celiac disease patients express HLA-DQ2, and the remaining patients are usually HLA-DQ8 positive. However, the HLA-DQ2 allele is common and is carried by approximately 30% of Caucasian individuals. Thus, HLA-DQ2 or HLA-DQ8 is necessary for disease development but is not sufficient for disease development; its estimated risk effect is only 36-53%."

Open Original Shared Link

36-53 percent of the 30 percent of people who carry the gene develop the disease.  that is different than what you are purporting.

IrishHeart Veteran
IrishHeart
Posted

Well, I was curious about what GlutenMaestro posted, so I did a search and found this on the University of Chicago Celiac Center's website:

 

"When the genetic predisposition for celiac disease was detected (on Chromosome 6) researchers noted that the genes were a necessary but not sufficient condition for the disease to develop. In fact, up to 1/3 of the U.S. population has the genes for celiac disease. Meaning, those who have the DQ2 or DQ8 gene can develop celiac disease at any time, but only about 5% of those people actually will."

 

Again, the presence of the gene may be necessary, but it is not sufficient for developing

C D.

 

Bu before we stray too far off topic....back to dental materials. :D 

NoGlutenCooties Contributor
NoGlutenCooties
Posted

36-53 percent of the 30 percent of people who carry the gene develop the disease.  that is different than what you are purporting.

 

Nope.  You missed the second sentence:  "However, the HLA-DQ2 allele is common and is carried by approximately 30% of Caucasian individuals."

I don't think anyone is saying that everyone who has either of the genes actually gets the disease - or that 30% of the population gets the disease.  Just that approximately one-third of the population has at least one of the genes.  I've seen estimates between 25 and 40 percent.

GF Lover Rising Star
GF Lover
Posted

This discussion is about orthodontics.   Please reply appropriately. 

 

Colleen 

eers03 Explorer
eers03
Posted

My orthodontist looked into my invisalign trays and informed me there is nothing gluten related for me to worry about.  I called ahead of my follow up appointment with this question and when I arrived he told me he researched my question and that everything checked out.

 

Here's the disclosure, I'm choosing to trust him on this.  I trust that he actually looked into it and didn't just make it up to make me feel better.  My trays were already purchased and paid for so he has no reason to tell me otherwise.

 

So for what its worth...

IrishHeart Veteran
IrishHeart
Posted

Nope.  You missed the second sentence:  "However, the HLA-DQ2 allele is common and is carried by approximately 30% of Caucasian individuals."

I don't think anyone is saying that everyone who has either of the genes actually gets the disease - or that 30% of the population gets the disease.  Just that approximately one-third of the population has at least one of the genes.  I've seen estimates between 25 and 40 percent.

 

 

Just a minute here while we review how this tangent started because apples/oranges are being mixed

 

Glutenmaestro said:

Since a third of the US population has a celiac gene, and the condition can be triggered at any point in someone's life 

 

1/3 of the US population  

 

is certainly not the same as 

 

 30% of Caucasian individuals 

 

?? right??

 

:unsure:

IrishHeart Veteran
IrishHeart
Posted

My orthodontist looked into my invisalign trays and informed me there is nothing gluten related for me to worry about.  I called ahead of my follow up appointment with this question and when I arrived he told me he researched my question and that everything checked out.

 

Here's the disclosure, I'm choosing to trust him on this.  I trust that he actually looked into it and didn't just make it up to make me feel better.  My trays were already purchased and paid for so he has no reason to tell me otherwise.

 

So for what its worth...

 

I had a mouth guard, too hon. (good news--I do not need it anymore. off gluten, we may stop clenching our teeth!! whoohoo!)

No gluten issues whatsoever! the dental tech in my dentist's  office vetted every single thing in the office for me

and she found NO gluten in any dental products there. FWIW 

BelleVie Enthusiast
BelleVie
Posted
  • Author

Good to know. Thanks! I thought about it and figured if there was an issue with my guard, I wouldn't be getting better, and, except for the few oopsies I've had here and there, my good days have slowly begun to outnumber my bad. Hooray! 

NoGlutenCooties Contributor
NoGlutenCooties
Posted

My mother just ordered aligners from her dentist - I can't be sure that they are the "Invisalign" brand - but her dentist said the same thing.  No gluten issues.  And he's a bit more on the "health" side of the medical profession, if you know what I mean, so I would tend to trust him to not just say things to placate people.

 

 

As far as the tangential conversation related to how many people carry the Celiac gene(s) - I cited 3 different sources plus 2 different doctors.  One specified a percentage for only caucasians.  The others did not.  But all estimated the overall percentage to be anywhere from 25 to 40 percent, with only one saying it may be as low as 25.  Which in my book, when looked at in totality, equates to roughly one-third of the population.  So I agree with Glutenmaestro.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

... my good days have slowly begun to outnumber my bad...

 

 

Excellent!!  Congratulations!!  :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Gluten-Free Lemon Poppy Seed Shortbread

    2. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    3. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    4. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    5. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748
    STy
    Newest Member
    STy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.