Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

14Month Update! Repeat Biopsy Results


designerstubble

Recommended Posts

designerstubble Enthusiast

Diagnosed 14 months ago Marsh 3b, scalloped duodenum, hiatus hernia.

Subsequent intolerances to MANY foods.

Severe anaemia, low vit d, major hairloss, severe adrenal fatigue, melasma, night sweats, neuropathy, depression, etc!

Repeat biopsy shows 'essentially NORMAL '

Not sure what they mean by essentially but normal sounds good to me.

I came back on to share this, for those of you out there that worry, fret, get anxious, cry, wonder when it's going to get better... It does happen. I was/am one of those that did all that worrying. I still have a way to go in regaining my former self. If indeed I ever will!! But... Healing DOES happen, it's happening for me on a diet that's severely restricted!

Keep at it! :-) x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

This is excellent news :D

nvsmom Community Regular

Nice!  ;) Congrats!

cyclinglady Grand Master

Yes, it is great news! Congrats!

livinthelife Apprentice

It's super good news! You're right….it can and does get better!! Great job!

designerstubble Enthusiast

Aw thanks guys. I'm still not where I need to be, but I just thought sometimes it's nice to hear some success. I know when I was diagnosed I looked for any possible success threads! We are all or have been looking for hope that things get better. I just wanted to share, to show that slowly but surely it can be done. It took a lot of green juices and food restrictions! I'm hoping in another year I might even grow some hair back!! Lol. That'd be nice! X

IrishHeart Veteran

Congrats!!

 

and yes, just hang in there...I saw more results in symptom resolution (plus more hair regrowth) after 20 months.

 

Best wishes and stay the course. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moosemalibu Collaborator

Wonderful news!!  :D

notme Experienced

fabulous!!!  lolz - i was going to ask about your hair, but you included that :)  i'm at about 3 1/2 years, now, and i am happy to report i have an under layer of 'baby hairs' and it's making my hair so much thicker and more full.  it takes a long time!  but i wasn't expecting it to actually grow back, i was just glad it stopped falling out haha ;) 

BlessedMommy Rising Star

That's wonderful! Great job sticking to the restricted diet, I know that it isn't easy. I'm vegetarian, gluten free, dairy free, and mostly sugar free.

designerstubble Enthusiast

That's wonderful! Great job sticking to the restricted diet, I know that it isn't easy. I'm vegetarian, gluten free, dairy free, and mostly sugar free.

Same as me!! I am also corn free (complete nightmare I must say) and have had avoid other food due to sons allergies such as nuts, legumes. All in all a complete pain the....!!!! Keep at it... 8-)
designerstubble Enthusiast

fabulous!!! lolz - i was going to ask about your hair, but you included that :) i'm at about 3 1/2 years, now, and i am happy to report i have an under layer of 'baby hairs' and it's making my hair so much thicker and more full. it takes a long time! but i wasn't expecting it to actually grow back, i was just glad it stopped falling out haha ;)

Yes, mine seemed to stop when a started vit d... Coincidence?? I don't know tbh. But I still take it just in case !!! I have a few tufts at hairline but would LOVE an all over growth spurt, love my hair to be thicker again... I wait and hope! X

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.