Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Most Ridiculous Gluten Comment I've Heard


C-Girl

Recommended Posts

C-Girl Contributor

Talking to a neighbor, I said I had used my rice cooker a lot while renovating my kitchen. He says, "I hear they are the very best for making rice" - I replied "oh yes, very good". Then he says this which made me bite my tongue hard to not bust out laughing like an insane person:

"We haven't been eating rice, we are trying to cut down on our glutens".

ISYN.

Bangs. Head. Against. Wall.

Thought you all might need a giggle this morning.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 89
  • Created
  • Last Reply
cyclinglady Grand Master

"Like!"

StephanieL Enthusiast

"It's whole wheat flour. Don't worry about gluten!"

IrishHeart Veteran

"Wait, there's potatoes in that!...don't eat that! you can't have those right?"

 

After taking my gluten-free order and assuring me she understands celiac and gluten free, the server asks" So did you want the bread basket?"

 

"Oh Irish, you think you're so smart...but you're wrong....there's gluten in (and I am not making these up, okay)

water, toilet paper rolls, semen, dryer sheets, eggs, paper towel rolls and paper cups.

 

(nope, nope, hell no!, nope, un uh! and wth?  negatory and nope. )

 

"I can't let my kids play with that neighbor's dog because they eat gluten over there."  :huh:

 

There are tons more, but some people may read this and think I am making fun of the comments--I'm not, I am just illustrating that gluten and CC is poorly understood, even by those who have to avoid it. 

kareng Grand Master

Yep! I have seen & heard some real doozys.

One of my favorites - someone posted that a waiter told them the white bread was Ok - it's made from rice. I read that to my then 13 yr old son - " that's great, Mom! You can eat white bread!.......wait....what?......that can't be right....you mean REGULAR white bread? .wheat flour is white and makes regular white bread!"

I thought if a 13 yr old boy knew better, a waiter should really know better!

Waitingindreams Enthusiast

I thought all grains contained something referred to as "gluten", just not the kind of gluten that someone with celiac disease reacts to. Apparently gluten is found in all cereal grains, but only the gluten in wheat, rye, etc makes us sick...so grains like rice, buckwheat, etc are listed as gluten free, since they are safe for us to consume. It seems that the term 'gluten' has two meanings and it can get confusing. I took it to mean that he was staying away from all grains, but who knows! 

 

When I was in NYC with my friends, they all wanted to go to a cupcake shop called Crumbs (which is apparently going out of business now) I happily trudged along with them and pulled out my plain cashews and ate those while they ate their cupcakes. The guy friend we were visiting made a snarky remark and asked me if I was enjoying the nuts. He started to go on and on about how I can have a "little" here and there, it won't hurt or kill me. Every time that I try to explain the disease, it's like he tunes me out. He ASKS me about it, and then doesn't listen when I try to explain. He seems to think it's all a big fad diet and that I'm completely exaggerating, so I've stopped bothering. Would you tell a person with a peanut allergy they can have a couple of peanuts? I know it's not the same exact thing, but still!

 

My mom also doesn't seem to believe in cross contamination, which is INSANELY mind boggling, due to the fact that she has a pork allergy..and if she goes to a restaurant and her eggs are cooked near where bacon is cooked, she will get very sick. It's the same concept, yet she can't wrap her head around it that it's the same way if gluten touches food. 

 

And, Irishheart, funnily enough, about the potatoes - this doesn't have to do with celiac disease, but I am lactose intolerant, and before I was diagnosed with celiac disease one of my guy friends asked me if I could have potatoes. What do people think are in potatoes??  :o

IrishHeart Veteran

 

 

And, Irishheart, funnily enough, about the potatoes - this doesn't have to do with celiac disease, but I am lactose intolerant, and before I was diagnosed with celiac disease one of my guy friends asked me if I could have potatoes. What do people think are in potatoes??  :o

 

I don't know hon, but people seem to be clueless about food period. It's too bad they don't teach nutrition courses in school anymore. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gilligan Enthusiast

I almost got in an argument with a lady working in the meat dept. of a grocery store when I asked if their own brand of fresh cured bacon contained gluten.  She told me I didn't need to worry about that unless I really had celiac, and even then it was only in bread - no meat products.  I told her that I did indeed have celiac, and that her info wasn't correct, so I needed to know.  She kept reiterating that it was only in bread, so...I just walked away.

Waitingindreams Enthusiast

I almost got in an argument with a lady working in the meat dept. of a grocery store when I asked if their own brand of fresh cured bacon contained gluten.  She told me I didn't need to worry about that unless I really had celiac, and even then it was only in bread - no meat products.  I told her that I did indeed have celiac, and that her info wasn't correct, so I needed to know.  She kept reiterating that it was only in bread, so...I just walked away.

Before I was diagnosed and only heard about celiac disease here and there, I too thought that gluten was only in bakery products. Boy, was I wrong....

sweetsailing Apprentice

My husband came home from work one day and told me all about a nutritionist who have given a talk a seminar that he attended at work that day.  We both work for a health and wellness company who sponsored the seminar.  He told me that the nutritionist clearly stated that M & M's contained gluten.  At first I was in a bit of a panic.  Had I read the label wrong?  I looked again and I'm like, I don't know what she thinks gluten is but there are none in my M & M's

BlessedMommy Rising Star

A restaurant once told me that tofu contains gluten, because it's a soy product. *bangs head against wall*

 

Some tofu does contain gluten (if it's flavored tofu and that gluten usually comes from the soy sauce) but plain tofu is fine. Not sure where they think that soy beans would get gluten from..... (barring any cross contamination of course, and there are a number of brands of tofu that are made in dedicated facilities anyway, like Nasoya, Azumaya, Mori Nu, Small Planets Organics.)

Gemini Experienced

My husband came home from work one day and told me all about a nutritionist who have given a talk a seminar that he attended at work that day.  We both work for a health and wellness company who sponsored the seminar.  He told me that the nutritionist clearly stated that M & M's contained gluten.  At first I was in a bit of a panic.  Had I read the label wrong?  I looked again and I'm like, I don't know what she thinks gluten is but there are none in my M & M's

I wish there was gluten in M & M's...those things are so addictive, ya can't eat just one .......bag!  :lol:

BlessedMommy Rising Star

LOL!  :)

Waitingindreams Enthusiast

I ate M&Ms a lot when I was first diagnosed  :P

 

But then I realized I can't have soy, and although they are gluten free...they are not soy free. Sigh.  :(

BlessedMommy Rising Star

I can tolerate soy but do badly with dairy, so no M &M's for me either. I wonder if there's a brand somewhere that doesn't have dairy or soy?

kareng Grand Master

I can tolerate soy but do badly with dairy, so no M &M's for me either. I wonder if there's a brand somewhere that doesn't have dairy or soy?

Sorry...... That is no where near the most ridiculous thing I have heard... :)

Maybe start a new thread to ask about candies without milk?

BlessedMommy Rising Star

Sorry...... That is no where near the most ridiculous thing I have heard... :)

Maybe start a new thread to ask about candies without milk?

Agreed! Time for a new thread. ;)

CajunChic Explorer

When asking a pizza place that boasted about a gluten-free crust which toppings were gluten-free, the waitress said, "Gluten is bread and we OBVIOUSLY don't put bread on our pizza! If you want to be healthy we have a veggie pizza."

Ummm... How much for the water, we're not hungry anymore..

BlessedMommy Rising Star

Wow, just wow!

Georgia-guy Enthusiast

"Wait, there's potatoes in that!...don't eat that! you can't have those right?"

Okay, so this is the only thing that didn't make me laugh when I had someone say it to me that is mentioned in this whole thread. The reason I didn't laugh is cuz the only restaurant manager I trust anywhere near me said that to me.....being completely serious. I didn't find it funny or absurd when she said it cuz her mom has celiac PLUS a bunch of other allergies/intolerances.

I did rather enjoy the comments about "it's only in bread" and "no gluten. You have celiac. Got it. Btw, did you want the bread basket?" <---I thought bread was the only thing with gluten in it?

bartfull Rising Star

I'm thinking that SOME of these comments might come from people who know a celiac. Their celiac friend may have told them they can't have wheat, rye, barley or SOY, because there really are a lot of us who can't tolerate soy. If so, it's understanable that they thought soy had gluten. I may have confused some people inadvertantly too when I told them I can't have corn. Maybe those of us who have additional intolerances should be more clear when we tell acquaintances what we can't eat.

 

But the one who told Irish there was gluten in water must be a real dunce!

bartfull Rising Star

Hey Georgia Guy, I guess we were typing at the same time and have the same idea! :)

BlessedMommy Rising Star

Gluten in water? Hmm....maybe if a wheat plant was growing in the bottom of the well. But I'm thinking that that scenario falls under the "things I can't control" category and is too rare to waste any energy worrying about.  :P

Georgia-guy Enthusiast

But the one who told Irish there was gluten in water must be a real dunce!

Wait, gluten in water, now I have a valid reason to tell my boss why I don't drink water! JK! But I did miss where Irish mentioned that.
luvs2eat Collaborator

I got... "Oh, it contains whey... you can't have that, right??"

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,909
    • Most Online (within 30 mins)
      7,748

    Hmart
    Newest Member
    Hmart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.