Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Nerium Age Defying Cream And Oats - Freaking Out Here!

livelifelarge24

Recommended Posts

livelifelarge24 Enthusiast
livelifelarge24
Posted

I started using Nerium about 6 months ago after the company and the friend I buy it from both assured me that the products are all gluten free. Meanwhile I have definitely been feeling different - at times I think maybe I'm getting glutened somewhere and at others I think no, because I have such a consistent reaction to gluten and this hasn't been a full blown reaction. I started to narrow down my reactions to corn products or to at least be certain that corn exacerbates my pain so today I started going through all my products out of curiosity to see what may have corn lurking in it. 

 

I checked my Nerium labels and the day cream has oats in it!!! How can they claim their product is gluten free if it has oats? I ALWAYS react to oats in lotions, etc. I am waiting on a call back from the company - maybe they use certified gluten free oats? I do not have problems with gluten free oats but I can't use lotions from Bath and Body works or other places that have regular oats or oatmeal in them. I have to be very careful. 

 

I am really freaked out about this. I have not felt well at all since I started this product BUT I started it literally the day my husband and I separated and I"ve been under a ton of stress and have attributed my ill feelings to that. And I'm not having full blown typical gluten reactions. I am mortified that I never checked the label myself - I've never done that before. It's been a long three years of learning how to do this gluten free diet right and the last two years I haven't slipped up other than one time accidentally using a Bath and Body works lotion with oats. I immediately got hives head to toe and jumped back in the shower and scrubbed off with no further reaction. 

 

I am mortified. Does anyone have any experience with Nerium???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LauraTX Rising Star
LauraTX
Posted

If you are putting the Nerium cream on your face, it very well could be making its way into your mouth.  If you feel like that is a possible source of CC, try some time off of it.  I have also heard that product does not work, so if you are spending a ton of money on it, I am sure people on here can recommend some good face creams to try out.  Cosmetic companies are some of the worst offenders when it comes to misinformed false gluten-free labeling, in my personal opinion.  It is highly unlikely they are using certified gluten-free oats, but it is good you have contacted them to check.  If you get hives from oats on the skin, it may also just be a separate skin allergy.  (For example, I can eat cocoa butter in chocolate but on my skin it gives me hives)

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

I stopped my membership a long time ago - I did see results at first but they waned quickly and the packages kept piling up long before I could use them. I planned to use out the rest of the product and then probably stop altogether. I am in absolute shock over this. It is really important to me that I know - I do react to ANY product with gluten in it whether its a lotion or makeup or hair product. I have gotten glutened from hairspray, mascara and lotion before, that's why I've always been vigilant. I can't believe I took their work that it was gluten free and didn't inspect the label, that is SO out of character for me. I just feel that I can't  rightly get too angry until I know for sure they aren't using gluten free oats. I received a call back and unfortunately in their company there is only ONE person that has knowledge or handles "this type of situation" and she has left for the day. So I have to wait 24-48 hours for any kind of answer. Obvioulsy I won't use the product in the meantime but I feel like I"m going crazy with curiosity and worry. 

LauraTX Rising Star
LauraTX
Posted

I feel your pain.  It is always the ONE time you don't thoroughly look that it gets ya, I think it increases my paranoia each time.  I also have a lot of skin allergies so anything that goes in or on my body I have to be totally anal retentive about.  Let us know what the word is when they get back to you!

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

I feel your pain.  It is always the ONE time you don't thoroughly look that it gets ya, I think it increases my paranoia each time.  I also have a lot of skin allergies so anything that goes in or on my body I have to be totally anal retentive about.  Let us know what the word is when they get back to you!

I will for sure although I already know in my heart the answer. From what I'm reading about the company online today they are awful and use toxic ingredients. I will never use it again but I at least want them to refund the hundreds of dollars I've spent on their supposedly gluten free products.

Pauliewog Contributor
Pauliewog
Posted

Oats don't contain gluten. Oats are often manufactured on shared equipment but the oat itself doesn't contain gluten. So the company was right in telling you their product is gluten free. You might have a reaction to oats but it isn't from any gluten "in" oats since there is no gluten in oats.

ravenwoodglass Mentor
ravenwoodglass
Posted

Oats don't contain gluten. Oats are often manufactured on shared equipment but the oat itself doesn't contain gluten. So the company was right in telling you their product is gluten free. You might have a reaction to oats but it isn't from any gluten "in" oats since there is no gluten in oats.

Oats have a different protein that is very similiar to wheat, rye and barley. Not all celiacs react to this protein the same as they do to gluten but some do have a 'gluten' reaction. They are also commonly heavily contaminated. That is why it is advised that we only consume certified gluten free oats.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

The product also contains Barley - obviously Nerium is NOT gluten free. This is the day cream I'm talking about, not the night cream. 

 

I was finally able to get ahold of the one person at t he company that is educated on ingredients to speak with her. She claims that they have tested the product and that it's gluten free. She could not tell me who tested it, when they tested it, whether they test each batch or only one time and when I asked how many ppm it tested to she said she had no idea what I was talking about. I explained to her and she says she is going to find out and call me back. Although I'm not sure who she will find out from since SHE Is touted as the company's expert on ingredients. 

 

I don't need any more info, the simple fact is that the product is labeled gluten free despite having oats and barley and I got very sick from it. They have not heard the end of this from me.  

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

Oats don't contain gluten. Oats are often manufactured on shared equipment but the oat itself doesn't contain gluten. So the company was right in telling you their product is gluten free. You might have a reaction to oats but it isn't from any gluten "in" oats since there is no gluten in oats.

While not EVERYONE reacts to oats a lot of us do and most doctors and reputable celiac websites will tell you to stay away from them unless they are 100% gluten free grown and processed. Because of this I say it is absolute BS for a product to be labeled gluten free when it contains something known to make many celiacs react. I've heard of celiacs that don't react to a certain wheat product but do to others - that doesn't mean its safe and that doesn't mean something with wheat should be labeled gluten free! Besides that fact, it also contains barley so the point is almost moot anyway. 

notme Experienced
notme
Posted

Besides that fact, it also contains barley so the point is almost moot anyway. 

you are saying the nerium contains barley or oats?  i'm a little confused...  and oats don't contain barley :)  

LauraTX Rising Star
LauraTX
Posted

Looks like she is saying it contains barley and oats.  Nerium really is a giant scam, doesn't surprise me at all they are mislabeling things.

SMRI Collaborator
SMRI
Posted

Gluten free does not include "oat free" though.  Yes, you may react to oats, but a product can still have oats and be gluten free.  I have never heard of this company and have no idea what is or isn't in the product but it could still be gluten free with oats in the product list.  That would be the same thing as something having dairy and saying it's not "gluten free" because you react to dairy and it shouldn't be in there.  Yes, I understand the issue with oats but technically, oats are gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    2. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    3. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    4. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety

      This article, and the comments below it, may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,811
    • Most Online (within 30 mins)
      7,748
    Taraceliacmama
    Newest Member
    Taraceliacmama
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.