Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abnormal Screening Mammogram...worried


icelandgirl

Recommended Posts

icelandgirl Proficient

I had a mammogram on Monday and got a call back yesterday saying that they needed to look at things further with a diagnostic mammogram and ultrasound.  This is the first time this is happened to me and I'm scared.  I felt my entire body go cold and then broke out in a sweat while on the phone.

 

Anyone had this happen to them and everything turned out ok?

 

I'm sorry if I posted this in the wrong place...gab and chat room didn't seem right as it says to keep things light.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I would not get too worried about this and yes, how easy for me to say that, isn't it?   ;)   Mammography has a high rate of false positives, especially if your breast tissue is dense.  I know many women who have had this experience and it was nothing more than calcifications.  There are also a number of things that are benign in nature that will show up on one and you won't know until they do this further testing.  I am sorry you are going through this because I am sure it is a very scary thing to hear.  Deep breaths, deep breaths.......Get the other stuff done ASAP because you will be able to relax a bit more when they figure it all out.  But many women have that second call and it proves to be nothing serious. I would not lie to you.  :)

 

I still have to answer your thyroid post but my mother-in-law is here for a visit and I am busy.  I will post a response soon!

icelandgirl Proficient

Thanks, as always, for the calm words of wisdom Gemini.

ravenwoodglass Mentor

Try not to worry too much. I have had this happen and the ultrasound ended up showing everything was fine. Sending positive thought your way that your exam will also end up being okay.

icelandgirl Proficient

Thanks Raven...This is my 3rd mammogram...never an issue before.  Then the call yesterday...ugh.

RMJ Mentor

I had that happen last year, turned out to be nothing.

icelandgirl Proficient

I had that happen last year, turned out to be nothing.

You did? Did you freak out or is that just me? My follow-up is on Friday. I'm trying to keep my mind off of it but it's hard.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

I worried a little but didn't freak out. I've heard that being called back for more testing is pretty common. It is one reason that some people feel that too many mammograms are done - all of the false positives/callbacks cause too much emotional stress.

dilettantesteph Collaborator

This has happened to me.  They told me that protocol has recently changed requiring ultrasounds for certain things.  They say that it's because I have dense tissue.  They give me ultrasounds every 6 months but haven't had to do anything else.  They haven't said anything about cancer or biopsies.  One good thing is that ultrasounds do not require that uncomfortable flattening.  You just lie back and relax.  Try not to worry.  Also, don't worry about all those noises the equipment makes.  It doesn't mean that they found something bad.  I did worry too, but really shouldn't have.

icelandgirl Proficient

I worried a little but didn't freak out. I've heard that being called back for more testing is pretty common. It is one reason that some people feel that too many mammograms are done - all of the false positives/callbacks cause too much emotional stress.

I hear you...I'm trying really hard not to worry.
icelandgirl Proficient

This has happened to me.  They told me that protocol has recently changed requiring ultrasounds for certain things.  They say that it's because I have dense tissue.  They give me ultrasounds every 6 months but haven't had to do anything else.  They haven't said anything about cancer or biopsies.  One good thing is that ultrasounds do not require that uncomfortable flattening.  You just lie back and relax.  Try not to worry.  Also, don't worry about all those noises the equipment makes.  It doesn't mean that they found something bad.  I did worry too, but really shouldn't have.

Thanks...seems like lots of people have been through this. Trying really hard not to worry.
Pollymo Newbie

I had a mammogram on Monday and got a call back yesterday saying that they needed to look at things further with a diagnostic mammogram and ultrasound.  This is the first time this is happened to me and I'm scared.  I felt my entire body go cold and then broke out in a sweat while on the phone.

 

Anyone had this happen to them and everything turned out ok?

 

I'm sorry if I posted this in the wrong place...gab and chat room didn't seem right as it says to keep things light.

I had this happen a year ago.  I was told I had dense tissue.  I was terrified for nothing!  I hope this helps!

icelandgirl Proficient

I had this happen a year ago. I was told I had dense tissue. I was terrified for nothing! I hope this helps!

Thanks Polly...Every time someone posts their story on your it helps. I'm still nervous...I know I'll be nervous in the morning until it's all done...but I don't feel terrified like I did when I got the call.
FruitEnthusiast Enthusiast

I had the same thing happen, exactly, and it was nothing... but anyone would be terrified, of course. Sometimes, with dense tissue as I also have, they just want to be sure by taking an ultrasound. Then they have something to compare it to the next year. I thought it was a sign that they were doing a good job and being thorough.

SMRI Collaborator

A friend of mine got the same call a couple weeks ago.  It was nothing but better safe than sorry.  Just be forewarned, the diagnostic mamo is worse than a regular mamo but the ultrasound is no big deal.  Think happy thoughts or learn new swear words to use during the mamo  :D .

Sfa4 Newbie

Thanks...seems like lots of people have been through this. Trying really hard not to worry.

 
Using ways to have women "not get worried" is a main mode of action of the medical orthodoxy, and its followers. But how many women and so-called  breast cancer survivors know that there is a good chance breast cancer survivors were really victims of harm rather than survivors who received benefits (read the afterword in this article: Open Original Shared Link )?
 
If women, and men, at large would know the real truth about mammography very many of them would cease having them BECAUSE OF GOOD JUSTIFIED WORRIES ... But the mammogram industry has been misguiding women for a long time running ...
icelandgirl Proficient

Just an update...

I really appreciate all the positive encouragement. Unfortunately for me...After the mammogram and ultrasound today, they now want to do a needle biopsy. I'm terrified. I'm looking at my 3 year old daughter's face and so scared.

SMRI Collaborator

My friend that just had the same gets called back because of scar tissue from a needle biopsy done about 15 years ago.  It was just a cyst .  Prayers that your results are the same.

GottaSki Mentor

Just an update...

I really appreciate all the positive encouragement. Unfortunately for me...After the mammogram and ultrasound today, they now want to do a needle biopsy. I'm terrified. I'm looking at my 3 year old daughter's face and so scared.

My sister and mother have both been through the same scenario multiple times...always cysts, but always have to check it out which is never easy.

I had cancer (not breast) 14 years ago -- when my kids were young -- so I get how hard the waiting and supposing time is...I'm still here as are many other survivors on this board.

For now...think positive and try to keep busy until you have results.

RMJ Mentor

I hope that it is only a benign cyst and that you don't have to wait too long to find out. If i knew how to insert a "hug" emoticon I'd put one here for you.

icelandgirl Proficient

My friend that just had the same gets called back because of scar tissue from a needle biopsy done about 15 years ago.  It was just a cyst .  Prayers that your results are the same.

My friend that just had the same gets called back because of scar tissue from a needle biopsy done about 15 years ago.  It was just a cyst .  Prayers that your results are the same.

Thank you for the prayers.
icelandgirl Proficient

I hope that it is only a benign cyst and that you don't have to wait too long to find out. If i knew how to insert a "hug" emoticon I'd put one here for you.

I'm going to accept that hug...I sure could use some.
icelandgirl Proficient

My sister and mother have both been through the same scenario multiple times...always cysts, but always have to check it out which is never easy.

I had cancer (not breast) 14 years ago -- when my kids were young -- so I get how hard the waiting and supposing time is...I'm still here as are many other survivors on this board.

For now...think positive and try to keep busy until you have results.

Hi Lisa...The waiting is very hard. My biopsy will be on Monday...The. more waiting for results.

my mom has had this 3 times...always turned out fine. I am scared though...can't lie...just am. Cried talking to the radiologist today.

I didn't know you had cancer... so glad you are recovered.

GottaSki Mentor

We called it the hurry up and wait process...every step seemed like we had to wait just another ten days. I don't think you'll have to wait more than a few days for this one. I hope not.

Hugs.

Gemini Experienced

Add me to the hug list, Icelandgirl! But when I read what you said about your mother, it might help to remember that many times, health issues can be familial. Cysts seem to be one of those things. I know mothers and daughters that have had cyst problems but they were never cancerous. Just pesky cysts. So, if your mother has had this experience and everything was fine every time, dwell on that because it just might be you are like her and everything will BE FINE! I know you will be really worried because so wouldn't anyone else but concentrate on the positive, if you can!

I will now turn on my positive and healing thoughts beam to you and await that type of result on Monday.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.