Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

lpellegr

Recommended Posts

lpellegr Collaborator

I just got a box of Cheerios for the rest of the family, and they say "gluten-free".  Which made me wonder how did they do it?  I react to oats, ironic after eating 3 bowls of Cheerios every day for 30 years, so I avoid them, even gluten-free, but I was curious.  Did they actually use gluten-free oats, and would there be sufficient supply?  Wouldn't they have to raise the price?  On the back of the box they explain: they SORT the oats from conventional fields to remove wheat, rye, and barley.  Okay, that's probably done by computer, and I've seen enough of those "how it's made" shows to know that they can do it rapidly, using puffs of air to knock the offending grains out of the line, but how rigorous is this?  I have to assume that they wouldn't claim it to be gluten-free unless they were pretty sure about it, but would you eat them?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Would I eat them? No way. IMHO it sounds like there would be a big risk of CC.

mommida Enthusiast

There is an add on the side bar explaining the gluten free cheerios.  The oats are sifted to separate wheat, rye, and barley out.  The finished product has then been tested to be labeled gluten free. 

I will try them.  I do have some problems digesting oats, because I have not been eating them for YEARS. 

StephanieL Enthusiast

They have an endorsement from the celiac disease association or something and they test post production to less that 20 PPM which should be fine for most people with Celiac. 

 

I found them at our grocery store yesterday and my kids are in love! Haven't had them in the house for 5+ years and they are happy as clams and no complaints. 

nvsmom Community Regular

This is an email that GM sent Gluten-Dude a few months back:

 

 I just wanted to share an update with you on Gluten Free Cheerios, in the interest of continuing the dialogue with you. We know there have been some concerns in the celiac community, and one of the ways we want to address those concerns is through increased transparency. I know you’ve seen Tricia’s recent post on Cheerios, and we continue to work directly with her to address her concerns. The below is new data of our first month of production that we have not published yet but will continue to be part of our transparency journey with the celiac community. I wanted to share it with you immediately to help alleviate any concerns you may have about the safety of our product for your community.

We have 34 days of Original Cheerios production across our 4 Cheerios plants. Each of those run days has at least 12 samples that we pull.

– The mean ppm of those samples is 7.
– 30 days had an average < 10ppm - 2 days = 11ppm; 2 days = 12ppm Furthermore, we have some data on some of the other flavors (that run less frequently due to size of business). - Multi-Grain Cheerios: 2 run days across 2 plants -- Mean <5ppm - Apple Cinnamon Cheerios: 1 run day across 1 plant --Mean <5ppm As always, if you have any questions please don’t hesitate to reach out. We are likely talking to Tricia on the 12th or 13th and would be happy to update you on some of the specifics of that dialogue once we land on the date. Thank you!

Open Original Shared Link

GM showed him this picture of the average cc of oats when not certified gluten-free.  That's how much wheat and barley needs to be removed. ... Eek.

which-cheerios-gluten-free.webp

Open Original Shared Link

GM may be able to make Cheerios safe, but I'll wait on that and let others be the guinea pigs.  For me, it is better safe than sorry.

bartfull Rising Star

The highest result they got was 12 PPM. If I could get them here I would try them. I never was big on cereal but plain cheerios was one that I liked.

kareng Grand Master

The highest result they got was 12 PPM. If I could get them here I would try them. I never was big on cereal but plain cheerios was one that I liked.

If you can get cheerios, you will be able to get them. They are regular Cheerios. Like all the gluten-free Chex cereals are just the regular kind. It might take a few more weeks for the local stores to seek out of the old ones.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

That's good to know. I probably won't be getting any soon because cereal is not high on my list of priorities. Not when I can have a grilled cheese on Udi's for breakfast instead. :lol:

cyclinglady Grand Master

Dang, Barty! All your talk of grilled cheese sandwiches drove me to making one last week. I usually never do any grains because any kind of grain spikes my blood sugar, but it was to "die for". I paid dearly though! Bad tummy ache. I became lactose intolerant after my July accidental glutening. Might try it again taking those lactose enzymes as I am doing well with lactose free milk. Hoping I get all dairy back! I tested years ago as a kid with a milk allergy and I think I have finally outgrown the milk protein allergy but now am lactose intolerant due to that glutening. Oh well!

I really want a grilled cheese sandwich again!

bartfull Rising Star

I'm sorry! :(

 

I'm one of those people who can eat the same thing every day forever, IF it is something I like. Used to be greasy cheeseburgers and fries. I don't eat those anymore because the hamburger here is nasty and nobody has a dedicated fryer here. (I know I could make bison burgers and Ore Ida fries, but it's just not the same.)

 

But grilled cheese is my second favorite and I really do eat them every day. :wub:

nvsmom Community Regular

Mmmmm, grilled cheese. :)

squirmingitch Veteran

Yummmmmmm grilled cheese. And if not that, then cheese toast -- makes a nice snack between dinner & bed.

nvsmom Community Regular
  • 2 weeks later...
sharps45 Apprentice

I bought three boxes of them- regular, frosted, and apple cinnamon.  The first two were just fine, the apple cinnamon hammered me.  GM tests so many boxes out of each days production, takes a sample from each box and uses the average of the bunch for their tested sample.  So there could be several boxes in each group that are higher than 20ppm, but because they are averaged the total comes out alright.  If you get one of the boxes that are over, tough luck for you (like I did).  If you do get sick, send the boxtop with the lot number on it back to General Mills. 

Currently there are not enough gluten-free oat producers in the country to supply cheerios with the amount of oats they need, so they have to sort and sample.  Some bad boxes are going to get through.

squirmingitch Veteran

Here is an update on the Gluten Free Cheerios from Gluten Free Watchdog:

Update September 16, 2015

On Monday and Tuesday of this week Gluten Free Watchdog sent a compilation of detailed illness reports related to Cheerios consumption to the FDA Consumer Complaint Coordinator in Massachusetts, the Director of Food Labeling and Standards at FDA, and the Deputy Commissioner for Foods at FDA.

FDA is now aware of the situation. If you believe you became ill after eating Cheerios, FDA is asking that you contact FDA’s MEDWATCH, the Adverse Event Reporting System. You can do this online Open Original Shared Linkor via phone (800) 332-1088. Choose option #4 to speak to a representative.

 

To read the entire update click this link:

Open Original Shared Link

  • 3 weeks later...
mamaw Community Regular

I just got  a  post  stating  honey nut  & cheerios original gluten-free   are being  recalled  from a plant  in Ca.  . Please go to cheerios.com  to check  dates of recall....

RMJ Mentor

Here's the General Mills press release for the recall:

Open Original Shared Link

 

squirmingitch Veteran

It was bound to happen.

Glamma Newbie

After thee stool samples, two rounds of antibiotics and being gluten free for 5 years, I now know why I have been really sick.  I will NEVER purchase this product again.

  • 2 weeks later...
Ankur Newbie

This might be good info I read on Cheerio's website - 

"We are embarrassed & sorry to share an incident that occurred at our production facility in Lodi, California, that allowed wheat flour to enter our gluten-free oat-based system. As a result, original and Honey Nut Cheerios produced on several dates may contain wheat and were wrongly labeled gluten free."

Open Original Shared Link

squirmingitch Veteran

Ankur, you might be interested in reading several of these informative posts:

Open Original Shared Link

Ankur Newbie

what a shame! 

Cindydee Newbie

Cheerios are my all-time favorite cereal and since GM seems to be pretty good with the gluten-free thing, I did try them. They promptly came right back up within minutes. So disappointed that they didn't do a better job with these.

  • 1 month later...
xjrosie Apprentice

My daughter is celiac/diabetic, and we tried these. She has been eating them for about a month and have had no problems whatsoever. We did not get one of the boxes that we affected by the recall, fortunately. She eats these every single morning. When she is glutened, she doesn't get the physical symptoms, but her blood sugar drops to the 20s-30s after about a week of eating gluten. So far, no problems at all.

julissa Explorer

I bought these to give my grandkids for breakfast when they sleep over. breakfast was always a problem, so it's great to be able to get them. would I eat them? nope, not worth it to me 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.