Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

lpellegr

Recommended Posts

lpellegr Collaborator

I just got a box of Cheerios for the rest of the family, and they say "gluten-free".  Which made me wonder how did they do it?  I react to oats, ironic after eating 3 bowls of Cheerios every day for 30 years, so I avoid them, even gluten-free, but I was curious.  Did they actually use gluten-free oats, and would there be sufficient supply?  Wouldn't they have to raise the price?  On the back of the box they explain: they SORT the oats from conventional fields to remove wheat, rye, and barley.  Okay, that's probably done by computer, and I've seen enough of those "how it's made" shows to know that they can do it rapidly, using puffs of air to knock the offending grains out of the line, but how rigorous is this?  I have to assume that they wouldn't claim it to be gluten-free unless they were pretty sure about it, but would you eat them?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Would I eat them? No way. IMHO it sounds like there would be a big risk of CC.

mommida Enthusiast

There is an add on the side bar explaining the gluten free cheerios.  The oats are sifted to separate wheat, rye, and barley out.  The finished product has then been tested to be labeled gluten free. 

I will try them.  I do have some problems digesting oats, because I have not been eating them for YEARS. 

StephanieL Enthusiast

They have an endorsement from the celiac disease association or something and they test post production to less that 20 PPM which should be fine for most people with Celiac. 

 

I found them at our grocery store yesterday and my kids are in love! Haven't had them in the house for 5+ years and they are happy as clams and no complaints. 

nvsmom Community Regular

This is an email that GM sent Gluten-Dude a few months back:

 

 I just wanted to share an update with you on Gluten Free Cheerios, in the interest of continuing the dialogue with you. We know there have been some concerns in the celiac community, and one of the ways we want to address those concerns is through increased transparency. I know you’ve seen Tricia’s recent post on Cheerios, and we continue to work directly with her to address her concerns. The below is new data of our first month of production that we have not published yet but will continue to be part of our transparency journey with the celiac community. I wanted to share it with you immediately to help alleviate any concerns you may have about the safety of our product for your community.

We have 34 days of Original Cheerios production across our 4 Cheerios plants. Each of those run days has at least 12 samples that we pull.

– The mean ppm of those samples is 7.
– 30 days had an average < 10ppm - 2 days = 11ppm; 2 days = 12ppm Furthermore, we have some data on some of the other flavors (that run less frequently due to size of business). - Multi-Grain Cheerios: 2 run days across 2 plants -- Mean <5ppm - Apple Cinnamon Cheerios: 1 run day across 1 plant --Mean <5ppm As always, if you have any questions please don’t hesitate to reach out. We are likely talking to Tricia on the 12th or 13th and would be happy to update you on some of the specifics of that dialogue once we land on the date. Thank you!

Open Original Shared Link

GM showed him this picture of the average cc of oats when not certified gluten-free.  That's how much wheat and barley needs to be removed. ... Eek.

which-cheerios-gluten-free.webp

Open Original Shared Link

GM may be able to make Cheerios safe, but I'll wait on that and let others be the guinea pigs.  For me, it is better safe than sorry.

bartfull Rising Star

The highest result they got was 12 PPM. If I could get them here I would try them. I never was big on cereal but plain cheerios was one that I liked.

kareng Grand Master

The highest result they got was 12 PPM. If I could get them here I would try them. I never was big on cereal but plain cheerios was one that I liked.

If you can get cheerios, you will be able to get them. They are regular Cheerios. Like all the gluten-free Chex cereals are just the regular kind. It might take a few more weeks for the local stores to seek out of the old ones.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

That's good to know. I probably won't be getting any soon because cereal is not high on my list of priorities. Not when I can have a grilled cheese on Udi's for breakfast instead. :lol:

cyclinglady Grand Master

Dang, Barty! All your talk of grilled cheese sandwiches drove me to making one last week. I usually never do any grains because any kind of grain spikes my blood sugar, but it was to "die for". I paid dearly though! Bad tummy ache. I became lactose intolerant after my July accidental glutening. Might try it again taking those lactose enzymes as I am doing well with lactose free milk. Hoping I get all dairy back! I tested years ago as a kid with a milk allergy and I think I have finally outgrown the milk protein allergy but now am lactose intolerant due to that glutening. Oh well!

I really want a grilled cheese sandwich again!

bartfull Rising Star

I'm sorry! :(

 

I'm one of those people who can eat the same thing every day forever, IF it is something I like. Used to be greasy cheeseburgers and fries. I don't eat those anymore because the hamburger here is nasty and nobody has a dedicated fryer here. (I know I could make bison burgers and Ore Ida fries, but it's just not the same.)

 

But grilled cheese is my second favorite and I really do eat them every day. :wub:

nvsmom Community Regular

Mmmmm, grilled cheese. :)

squirmingitch Veteran

Yummmmmmm grilled cheese. And if not that, then cheese toast -- makes a nice snack between dinner & bed.

nvsmom Community Regular
  • 2 weeks later...
sharps45 Apprentice

I bought three boxes of them- regular, frosted, and apple cinnamon.  The first two were just fine, the apple cinnamon hammered me.  GM tests so many boxes out of each days production, takes a sample from each box and uses the average of the bunch for their tested sample.  So there could be several boxes in each group that are higher than 20ppm, but because they are averaged the total comes out alright.  If you get one of the boxes that are over, tough luck for you (like I did).  If you do get sick, send the boxtop with the lot number on it back to General Mills. 

Currently there are not enough gluten-free oat producers in the country to supply cheerios with the amount of oats they need, so they have to sort and sample.  Some bad boxes are going to get through.

squirmingitch Veteran

Here is an update on the Gluten Free Cheerios from Gluten Free Watchdog:

Update September 16, 2015

On Monday and Tuesday of this week Gluten Free Watchdog sent a compilation of detailed illness reports related to Cheerios consumption to the FDA Consumer Complaint Coordinator in Massachusetts, the Director of Food Labeling and Standards at FDA, and the Deputy Commissioner for Foods at FDA.

FDA is now aware of the situation. If you believe you became ill after eating Cheerios, FDA is asking that you contact FDA’s MEDWATCH, the Adverse Event Reporting System. You can do this online Open Original Shared Linkor via phone (800) 332-1088. Choose option #4 to speak to a representative.

 

To read the entire update click this link:

Open Original Shared Link

  • 3 weeks later...
mamaw Community Regular

I just got  a  post  stating  honey nut  & cheerios original gluten-free   are being  recalled  from a plant  in Ca.  . Please go to cheerios.com  to check  dates of recall....

RMJ Mentor

Here's the General Mills press release for the recall:

Open Original Shared Link

 

squirmingitch Veteran

It was bound to happen.

Glamma Newbie

After thee stool samples, two rounds of antibiotics and being gluten free for 5 years, I now know why I have been really sick.  I will NEVER purchase this product again.

  • 2 weeks later...
Ankur Newbie

This might be good info I read on Cheerio's website - 

"We are embarrassed & sorry to share an incident that occurred at our production facility in Lodi, California, that allowed wheat flour to enter our gluten-free oat-based system. As a result, original and Honey Nut Cheerios produced on several dates may contain wheat and were wrongly labeled gluten free."

Open Original Shared Link

squirmingitch Veteran

Ankur, you might be interested in reading several of these informative posts:

Open Original Shared Link

Ankur Newbie

what a shame! 

Cindydee Newbie

Cheerios are my all-time favorite cereal and since GM seems to be pretty good with the gluten-free thing, I did try them. They promptly came right back up within minutes. So disappointed that they didn't do a better job with these.

  • 1 month later...
xjrosie Apprentice

My daughter is celiac/diabetic, and we tried these. She has been eating them for about a month and have had no problems whatsoever. We did not get one of the boxes that we affected by the recall, fortunately. She eats these every single morning. When she is glutened, she doesn't get the physical symptoms, but her blood sugar drops to the 20s-30s after about a week of eating gluten. So far, no problems at all.

julissa Explorer

I bought these to give my grandkids for breakfast when they sleep over. breakfast was always a problem, so it's great to be able to get them. would I eat them? nope, not worth it to me 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,947
    • Most Online (within 30 mins)
      7,748

    Sinch23
    Newest Member
    Sinch23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.