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debmidge

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debmidge Rising Star

Thank you for all the work you do for us so we can enjoy this board.


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Guest Viola

Yes! Thank you all who work to keep this forum running :P

nettiebeads Apprentice

Thanks from me, too! I was thinking about this board and how much healthier I've been from all of the things I've learned :) Definitely strength and wisdom in numbers!!!!!

jerseyangel Proficient

Thanks to everyone who helps the board run and be there for all of us :) Have a Happy Thanksgiving!

Rusla Enthusiast

I would like to thank those who put up this site so that we could all find people like us and share our feelings, laughter and frustration with. I also thank the moderators for helping keep it all together here.

cmom Contributor

I am also thankful for this forum. I have learned so much more about this disease and how to deal with it than I ever did from any doctor, GI or otherwise. Thanks to everyone who has contributed to my knowledge! :)

FaithInScienceToo Contributor

I am grateful to all of the moderators who volunteer their precious time here.

I, too, learn SO much here and do not know where I'd be right now without having had this forum!

"Happy Turkey-Day to all!" - Scott, too!

oops - and a "Happy Tofu and Veggie day," to any herbivores...

Gina


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jenvan Collaborator

rock on ! i do love this place...my second home :)

debbiewil Rookie

Yes, yes, yes!

This board and the people on it have made going gluten-free soooo much easier!

Thank you,

Debbie

mart Contributor

Me too! I love this site and thank God for it. It's helped me to cope at living in a poisonous world full of gluten. I was so confused and depressed prior to finding all you super knowlegable people. I'm fairly new here but want to thank ELONWY for making me laugh everyday, JENVAN for a beautiful, caring spirit and positive attitude, RICHARD for being so unbelievably smart and celiac3270 for being such a mature, courageous kid (you give me hope for my son). I sound like I'm at the Oscar's. Sorry :lol: Just have to say that I appreciate all of you.

Wish everyone on this site a wonderful, gluten-free holiday!

Mart

Lisa Mentor

I too, feel the same as Mart. There are so many of you the have guided me through the roller-coaster of Celiacland. Karen for her everpresent suppost, Kaitie for her everpresence, Richard, the word of an expert, Shirley, for thinking that everyone should know how to milk a goat, Tiffany for her knowledge and great research, celiac3270 who will do great things in his life. (esp. "You know You're a Celiac if...)

I don't mean to leave anyone out. You guys are my C-friends and I would like to meet you all some day.

Thank you, all of you for your help, in guiding me through this disease. :):)

Best of Thanksgiving to All.

Lisa B.

VydorScope Proficient

Asa forum admin of a nother major forum, I know what kind of work goes in to this site, and I am thankfull that here at laeast some one else does it! :D

Thanks to all that work to make this a great rescource site, its enve RECOMENDED by my son's GI doc. :D

celiac3270 Collaborator
Shirley, for thinking that everyone should know how to milk a goat

I really don't know how to milk a goat--seriously, I'm a New Yorker, lol.

Thank you to everyone--particularly Scott--he does so much more work than us moderators pinning topics--and all the people who post here :)

Canadian Karen Community Regular

I agree also, without Scott, none of us would be here if you really think about it. His dedication must be amazing to keep this running and all the work that goes along with that. Kudos Scott! You rock! ;)

Karen

KaitiUSA Enthusiast

For sure...have to thank Scott. I have to agree he does so much more to keep this site running. I am glad to be a part of the site :)

Scott Adams Grand Master

Thank you to all of our great moderators, and the great community who come here for a place to spend time. FYI: We just upgraded the board again and have a few bugs--we know about:

1) My Assitant - Loading. Please Wait...

2) Multiple calendar events

but if you see anything else please let me know.

Thanks again and have a great turkey day!

Scott

For sure...have to thank Scott. I have to agree he does so much more to keep this site running. I am glad to be a part of the site :)
celiac3270 Collaborator

Yes--I had noticed that assistant issue just now when I logged on. Cool updates :) -- the revamped posting options, warnings are back, new general formatting. What's the new icon? The V-thing--just wondering if that had something to do with celiac like the old wheat icon or if it was some default icon that came with the board update?

Thank you for all of your hard work!

-celiac3270

Lisa Mentor
Thank you to all of our great moderators, and the great community who come here for a place to spend time. FYI: We just upgraded the board again and have a few bugs--we know about:

1) My Assitant - Loading. Please Wait...

2) Multiple calendar events

but if you see anything else please let me know.

Thanks again and have a great turkey day!

Scott

Hey Scott: You're the one to go on Oprah. Can we help get you there?

Lisa B.

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    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
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