Heat Sensetivity

[SheenaM]

I have an abominable sensetivity to heat that makes it nearly impossible to do things in the summer. I'm writing this with one eye closed right now because of a migraine I've had since Monday when I was at a local theme park. I did everything I could to keep cool and hydrated, but apparently failed, resulting in this migraine that I've had since then. My question for you folks is, does anyone else get this sort of symptom, and were you able to do anything for it? I'm still very anemic after 6 months on the gluten free diet and I'm wondering if that is related? 

[GFinDC]

It seems like I read that thyroid issues can cause heat sensitivity.

[cyclinglady]

Hyperthyroid can cause you to feel hot all the time even in winter.  Being actually sensitive to heat, like it causes severe fatigue, sounds like my MIL who had multiple sclerosis.  There might be other illnesses, but that is one to check out.  But migraines (only had two in my life), might cause you to be heat sensitive.  

I was anemic, but I was fatigued all the time. It had nothing to do with the weather.   It took me just a few months to build up iron stores  using a supplement and consuming iron-rich foods.    Are you iron or B-12 deficient (both are common in celiac disease)?

Make sure you are getting follow-testing for celiac disease:

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[SheenaM]

They didn't test blood levels of anything besides the antibodies when they did blood tests. I only know I'm anemic because of the fatigue and the purple fingernail beds. I'm definitely not hyperthyroid as I have more trouble losing weight than gaining.

[cyclinglady]

When was your last lab test to check your anemia (CBC is a good starting point).   Those should  be re-checked after six months, along with follow-up celiac testing that I mentioned previously.  Lab results can let you know where you stand. 

 

[Maverita]

I am not saying it is not the heat, but ozone could be a contributing factor.  Where I live, hot sunny days often come with high ground ozone levels.  High ground ozone can cause migraines.  I am pretty much guaranteed a migraine when ozone levels get too high, and it can take a couple of days to get rid of it.  

[Bree J]

I can sort of relate, when I'm not properly nourished (I'm very sensitive to that-- have to have the correct amount of protein and veggies/fruit with any sugar or dairy just to feel good), heat bothers me a LOT. Makes my anxiety bad too (i hate being hot). I've been gluten free for 4 years (when my intolerance showed up) and ever since then go crazy when I'm too hot. Weird that someone else feels this way.

I've never ever thought about checking if I'm anemic. My sores/cuts do take forever to heal..

[SheenaM]

  On 6/11/2018 at 9:00 PM, Bree J said:

I can sort of relate, when I'm not properly nourished (I'm very sensitive to that-- have to have the correct amount of protein and veggies/fruit with any sugar or dairy just to feel good), heat bothers me a LOT. Makes my anxiety bad too (i hate being hot). I've been gluten free for 4 years (when my intolerance showed up) and ever since then go crazy when I'm too hot. Weird that someone else feels this way.

I've never ever thought about checking if I'm anemic. My sores/cuts do take forever to heal..

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Yes exactly this. And if I'm out in the heat I get way more exhausted than I should. Like my body just can't process it correctly.

 

  On 6/11/2018 at 2:06 AM, cyclinglady said:

When was your last lab test to check your anemia (CBC is a good starting point).   Those should  be re-checked after six months, along with follow-up celiac testing that I mentioned previously.  Lab results can let you know where you stand. 

 

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They never tested anything other than the antibodies that cause the intestinal damage, and that was in January. 

[cyclinglady]

@SheenaM  What?  How were you diagnosed with anemia?  It is a standard blood test given to most when they see their doctors.  Maybe you did not get copies of the lab results.  You should ask for them.  It is your right!  

Anemia is very serious.  You could have a heart attack.  You might need a blood transfusion.  Please follow-up with your doctor.  You also need to know what type of anemia you have so your doctor can treat you accordingly.   Ask also for a complete thyroid panel as autoimmune thyroiditis is commonly associated with celiac disease.  Were you able to get an endoscopy?  You can have other autoimmune disorders that can destroy your small intestinal intestine.  Those should be ruled out.  Get your antibodies for celiac disease re-checked.  They will help determine if your are adhering to the gluten free diet or are at least improving.  It can take time for antibodies to come down, but they should be on a downward trend.  

[RMJ]

  On 6/10/2018 at 10:19 PM, SheenaM said:

 I only know I'm anemic because of the fatigue and the purple fingernail beds. I'm definitely not hyperthyroid as I have more trouble losing weight than gaining.

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Purple fingernail beds and fatigue can have other causes besides anemia.  You may want to get checked out by a doctor to see if you truly have anemia or if something else is going on.

[hookedongolf]

I am being tested for Celiac tomorrow, and feel that I have sjogenes but has not been proven as of yet.  I have had heat problems for years and have many of symptoms of sjogenes, thus putting myself on a gluten and dairy free diet while I wait months for Doctors to figure it out. I was tested last week for daily intolerance and I passed, yea, can now put weight back on.  As of the heat sensitivity, I have had it for as long as I can remember.  I gave up tennis and took up golf and drink Gatorade for 18 holes which I understand is good for the auto-immune. 

[cyclinglady]

  On 6/14/2018 at 3:31 AM, hookedongolf said:

I am being tested for Celiac tomorrow, and feel that I have sjogenes but has not been proven as of yet.  I have had heat problems for years and have many of symptoms of sjogenes, thus putting myself on a gluten and dairy free diet while I wait months for Doctors to figure it out. I was tested last week for daily intolerance and I passed, yea, can now put weight back on.  As of the heat sensitivity, I have had it for as long as I can remember.  I gave up tennis and took up golf and drink Gatorade for 18 holes which I understand is good for the auto-immune. 

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I am not sure I understood.  Are you already gluten free?  All celiac testing requires you to be on a gluten diet or the tests will be invalid. 

[SheenaM]

  On 6/13/2018 at 2:13 PM, cyclinglady said:

@SheenaM  What?  How were you diagnosed with anemia?  It is a standard blood test given to most when they see their doctors.  Maybe you did not get copies of the lab results.  You should ask for them.  It is your right!  

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So I went back and looked and they did do a blood panel and my RBC count is within normal limits. Also, I didn't test positive for both celiac antibodies just the Tissue Transglutaminase Ab, IgA. I lost health insurance due to a job change but I'm getting it back again at the beginning of July so I'll be able to do my follow up then. I guess I need to tell them that I also have the heat sensetivity and ask about thyroid stuff? Also should I ask my gastro about this or my family doc?