Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do...


Moongirl

Recommended Posts

Moongirl Community Regular

Anyone have suggestions on when they do when they get glutened? I dont think ive had one yet, but its only been a little over a month, so im going to go out on a limb and say its going to happen, since i am still in the experimenting stage.... ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



carriecraig Enthusiast

I keep a lot of Immodium, Rolaids and peppermint tea on hand. Not sure how much these things help, but my symptoms seem to go away in about 2 days.

jerseyangel Proficient

I generally don't use anything--except if I have to go somewhere, I'll use Imodium. I just drink a lot of water and eat according to how I feel.

Moongirl Community Regular
I keep a lot of Immodium, Rolaids and peppermint tea on hand. Not sure how much these things help, but my symptoms seem to go away in about 2 days.

so rolaids are ok? ive been so confused reading about all the antiacid stuff!

Yah I made fresh mint tea last night, seemed to be soothing....

carriecraig Enthusiast

All Rolaids except the softchews (darn) are ok.

mookie03 Contributor
All Rolaids except the softchews (darn) are ok.

I'm not sure about that-- i called them a few months ago about the soft chews and the other new kind (i cant remember the name right now but they are chewable and the person i spoke to said that neither one was gluten-free-- im not sure the person i spoke to was brilliant, but ive been avoiding that kind too just in case.

my advice? dont take anything at all, let it go through your system, but drink a LOT of water and eat something if your hungry. Thats what i do, but then again, i am also scared of antacids after years of being glutened by tums and rolaids!

jkmunchkin Rising Star

I drink Pepto Bismol, use one of those little pillows you heat up in the microwave and if I have it handy drink some peppermint tea. I actually find walking around helps to, but it's usually the last thing I want to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rmmadden Contributor

I'm a "Pepto Person," too. I only take it when I'm having a really bad day and then I just want to sleep.

Hope this helps......Best of Luck!

Cleveland Bob B)

Moongirl Community Regular
I'm a "Pepto Person," too. I only take it when I'm having a really bad day and then I just want to sleep.

Hope this helps......Best of Luck!

Cleveland Bob B)

thanks everyone, can u tell i was a girl scout, always be prepared! ;)

thomas3000 Rookie

Alka-seltzer gold works best!!

Jen H Contributor

Hey Moongirl,

I noticed you are from Boston. I live on Cape Cod. Have you checked into the Healthy Villi support group?

I try to lay low and eat comfort foods when I get glutened. I drink flat ginger ale and water and I eat things in the BRAT diet (bananas, rice, applesauce, tea/toast).

Moongirl Community Regular

I havent gone to the support group yet, my mom has though, i was just dx 1 month ago, but they have a meeting coming up in a few weeks i will go too...do you go? do you find them helpful?

thanks

Canadian Karen Community Regular

Hi Moongirl,

I'm also a Pepto person. Immodium does squat for me due to the collagenous colitis. For me, since I NEVER get rid of the diarrhea even when totally gluten-free, my concern is more for pain management.

I have my heating pad on low, sit on my bed crosslegged, and rock forward and backward. I close my eyes, breath in through the nose and out of the mouth, and try to get myself into kind of a trance. It really does help! And I'm not some kind of Hari Krishna wacko, honest!!! ;)

Also, I stick to the only food that does not hurt when I am glutened. Potatoes. Cooked any way, doesn't matter - as long as it is potatoes, it won't hurt me.....

Karen

Jen H Contributor

Hi Moongirl,

I haven't been to a Healthy Villi meeting yet, but I may go to the one on January 29th @ Mass Bay College. There is a support group on the Cape, but the Healthy Villi seems more organized and geared toward "newbies" like myself.

Moongirl Community Regular

oh thats the one that i am going to go too.... :) even my GI doctor recommended that i go, he said they are very good.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,776
    • Most Online (within 30 mins)
      7,748

    peskywabbit
    Newest Member
    peskywabbit
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.