Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time/warner Ceo

Lisa

By Lisa
in Publications & Publicity

Recommended Posts

Lisa Mentor
Lisa
Posted

With a little reservation, I would like to say that I grew up across the street from her and I am still in contact with her family.

I can get information to her. Please keep in mind that she is in the business of finance with her position, but she could certainly direct our interest to writers that could help us in our publicity issues.

Talk about a big fish.

Can we brain storm and find a way to get Time Mag. to do an article, yes. I am not the same person I was before Celiac. I was alway proud of the way I spoke and wrote, it's not the same now.

Several, well worded letter mailed to Ann would get her attention and I could write a cover letter asking for reseach from her team to reseach Celiac Disease.

If we can get a packet together, I will send it off to her.

What do you all think?

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

sounds like a good idea to me... I'm too sleepy to have a coherent thought tonight though...

Canadian Karen Community Regular
Canadian Karen
Posted

You can count me in! Does it matter that it's coming from Canada?

Karen

Lisa Mentor
Lisa
Posted
  • Author

It is late, and I will wait for other replys, US or Canadian. If so, a personal letter from those who have interest should be sent to my by personal E-mail....jimbaker@aol.com. in order to copy and add to the portfolio.

Personal stories about Dr.

McD' fiasco

Labeling issues

Health care issues

Unknowlegable Doctors!!!

Lack of Understanding of celiac disease

Children with developmental issues........etc.

Please address these issues to Mrs. Ann S. Moore, Chairman and Chief Executive of Time/Warner Inc. New York, New York.

Or pick up a Time Magazine and look up the address. I can get it to her.

mouse Enthusiast
mouse
Posted

You can also count me in. I will email you within the next couple of days.

Rusla Enthusiast
Rusla
Posted

I am in on this one too.

jenvan Collaborator
jenvan
Posted

Good idea--I would also mention something about the delay in diagnosis or not being diagnosed and how it causes many to develop diseases that were probably able to be prevented, and how that ends up costing them, insurance companies and the rest of us $$$ down the line.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
tiredofdoctors Enthusiast
tiredofdoctors
Posted

Count me in!

happygirl Collaborator
happygirl
Posted

Just so you know, there was a two page article about Celiac Disease in Time Magazine in July 2004. I don't have the name of the author off-hand.

The reason I know this is it is the reason I was diagnosed, thanks to my mom reading it :)

Turtle Enthusiast
Turtle
Posted

Brilliant!

Let me know how I can help!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748
    CRae
    Newest Member
    CRae
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.