Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi - I'm New Here


Thankagirl

Recommended Posts

Thankagirl Rookie

I have been to this site thousands of times and not realized there was a message board. I found out about my gluten intollerance about 5 years ago and have struggled with my love of food verus feeling sick constantly. I am so glad you all are here to support and share.

My mom just found out she has the same problem and it seems like every one meet knows at least one person with this.

I look forward to meeting you all!

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

Welcome to the board Sarah you will find lots of good information and recipes on this site.

floridanative Community Regular

Welcome Sarah - we're glad you found the board! I'm a newbie to the diet and after my biopsy I asked my Mother to get tested. She says she will (been looking for what's wrong for over two years to no avail) but she recently had a beach vacation and she also has a cruise coming up in the summer so I'm looking for that to be her next excuse as to wait to get tested. How did you get your Mother to get tested, if you don't mind my asking?

tarnalberry Community Regular

welcome to the board! I'm glad you found us. :-)

jerseyangel Proficient

Welcome, Sarah :)

plantime Contributor

Welcome to the board! We are always glad to help and listen, and especially glad to make new friends! :D

Canadian Karen Community Regular

Hi Sarah! Welcome to the board! There's a bunch of really great people here with a vast amount of knowledge about celiac. It's a great resource!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

maryn Newbie
Welcome to the board!

I'm new at this, but I've found this site necessary for survival! Everyone on here is so great! :D

I am new too, and this is an awesome website. I am really excited to be able to chat withg people who understand. I have great friends, but unless yo go through it, you just don't understand. My son has been gluten-free for 4.5 years now. It seeems even hard to find a doctor who can really help. So, I am excited to be able to relate with people who can really relate. Thank You!

Thankagirl Rookie

thank you for your warm welcome!

How did you get your Mother to get tested, if you don't mind my asking?

My mom is a smart woman and knew from all I had been through that it was very likely that she had the same problem. She did it all on her own and is doing much better. She had gotten to an extrememe point before getting tested but the tests - as with me- weren't really conclusive. She started the diet and started feeling a lot better pretty quickly.

Sarah

elonwy Enthusiast

Thats awesome that your mom has gone Gluten Free. My mom also has, after inconclusive tests, and is miraculously feeling better. I think she's still fighting a little bit, but she's doing really well and has jumped right into gluten free baking, which is nice :)

Welcome to the forum, it can be an odd place sometimes, but its helpful and fun and uplifting as well.

Elonwy

Guest Robbin

Sarah, Welcome! I am somewhat new too, but I have been SO encouraged here!

--Elonwy--ODD is GOOD isn't it? Better than BORING, right?!!! Where else, besides maybe a nursing home, can you hear so many discussions on POOP?

happygirl Collaborator

haha, we Celiacs live in such a strange little bubble, don't we!

welcome to the board!

Thankagirl Rookie

HA ha ha ha!! You guys crack me up! I love boards like this - where everyone feels free to say what they need to say and can ask questions without being embarrassed!

:)

Sarah

Lollie Enthusiast

Welcome Sarah! You are always free to ask or say whatever you need to! That is what makes this board so great!

Good Luck!

Lollie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,612
    • Most Online (within 30 mins)
      7,748

    Rotary
    Newest Member
    Rotary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.