Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Symptom

ebrbetty

By ebrbetty
in Coping with Celiac Disease

Recommended Posts

ebrbetty Rising Star
ebrbetty
Posted

Hi Guys, I've been having terrible pain for the last 7 days, I must have been glutened, anyway, while I'm having the terrible stomach pain, my feet get very sweaty, they feel cold, but get sweaty and really feel weird..also my toes on just the left get tingly and kinda numb..when the pain calms down so does the feet thing :blink: its like night sweats but only on my feet

weird, right!!?? anyone else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

Tingling and numbness is a symptom of celiac disease.

Open Original Shared Link

Before I was first dignosed, I would get some tingling on my right side, mostly near my neck.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks..its the weird, cold sweaty feet that I don't understand..plus last night my while body broke out in a cold sweat, and I thought I was going to throw up, came on very fast, lasted about an hour then it calmed down...my dinner was safe, I know, I cooked it lol

jerseyangel Proficient
jerseyangel
Posted

Betty--I get the cold sweating in my feet and hands. I don't connect mine to gluten, but it does happen when my stomach is upset. I get stomach upset often, even though I know I am not getting any gluten. I had a great deal of tingling and numbness--from my face all the way down my left side and both lower legs and feet. Gradually, over months, it got better--although I still get it in my face and arm. Are you feeling any better at all?

ebrbetty Rising Star
ebrbetty
Posted
  • Author

oh thanks, I thought someone would know what I was dealing with..I know my dinner was safe!

I'm a little better, but not good...I keep telling myself to call my Gastro and make an appt. to get a colonoscopy, its the only GI related test I have not had, too scared and embarrassed. does anyone know what they look for and what can be found with a colonoscopy? I don't want to do it at all!

I think all this stomach pain is from being glutened last week, I seem to do Okay for a couple weeks, then I'm down again..no rhyme or reason sometimes

hugs...

dlp252 Apprentice
dlp252
Posted
I'm a little better, but not good...I keep telling myself to call my Gastro and make an appt. to get a colonoscopy, its the only GI related test I have not had, too scared and embarrassed. does anyone know what they look for and what can be found with a colonoscopy? I don't want to do it at all!

I just had mine on Monday. In my case they were looking for anything out of the ordinary. I think GIs have a routine list of things they look for. I have pain in my left side...he said that is a symptom of IBS, so I think in addition to many other things he was looking to rule out anything more serious. He was looking for cancer, diverticula, ulcers (colitis, crohn's, etc). I was asleep during my procedure so don't remember anything about it...I also had an endoscopy at the same time...both procedures together took probably around 30 minutes. The worst part of the colonoscopy is the prep work you'd have to do...the colon needs to be squeaky clean, so you basically have to drink stuff that makes you have D, lol. They put in an IV when I got to the surgicenter, and that wasn't bad either. I don't remember much else except waking up in a recovery area and being loopy for a long while afterwards...had a good nap though.

LAUSTIN Newbie
LAUSTIN
Posted

Donna's right about the colonoscopy and endoscopy. Be sure you have someone drive you home.

My first symptoms were numbness and tingling in my hands and feet. Eventually ataxia set in. Neurologists were going nuts! Finally a rhumatologist found the celiac. Odd, huh? It's funny I told them about the D but they didn't connect it. Thank God for the rhumatologist. Please, be sure to let ALL your doctors know about the numbness and tingling. Take care!

Laustin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

You may also want to add a gluten free sub-lingual B12 tablet to your vitamins. It disolves under the tongue and bypassess the GI tract where it is often not being adequately absorbed. A low B12 level often causes these sensations so you may want your doctor to check those levels.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks donna :D

I bought sub-lingual B12 last week at traders, but when I got home I noticed it has lactose in it..I'm lactose intolerant..though I don't think there would be enough to bother me...it doesn't go into my belly anyway does it?

KaitiUSA Enthusiast
KaitiUSA
Posted

Could be that you got glutened. How long have you been gluten free? Definite symptom that is associated with celiac.

Guest stef 4 dogs
Guest stef 4 dogs
Posted
Hi Guys, I've been having terrible pain for the last 7 days, I must have been glutened, anyway, while I'm having the terrible stomach pain, my feet get very sweaty, they feel cold, but get sweaty and really feel weird..also my toes on just the left get tingly and kinda numb..when the pain calms down so does the feet thing :blink: its like night sweats but only on my feet

weird, right!!?? anyone else?

It sounds like your talking about peripheal neuropathy. It is an associated problem with Celiac. I've been to a neurologist, and my GI doc, both have said its an effect of being glutened. Sometimes, its so bad for me, I can't hold things! I also get tongue numbness.

Stef 4 Dogs

ebrbetty Rising Star
ebrbetty
Posted
  • Author

I've been gluten free 3 months, thought I'd be much better by now, but lots of great members here have told me it can take up to a year

Its an awful feeling, having it again now :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,268
    • Most Online (within 30 mins)
      7,748
    MaryCan231
    Newest Member
    MaryCan231
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.