Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

jerseyangel Proficient
jerseyangel
Posted

Wow--that was fast!! I can't believe it's up and running :D

I just sent Scott a thank-you note!

Now I just have to figure out this fast reply.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
Judyin Philly Enthusiast
Judyin Philly
Posted

Thanks patti and Scott...great idea patty and happy scott did it.

still don't get 'fast relpy either..but then i'm pretty slow..so probably won't apply to me :lol:

Rachel,,just think when your old and grey and fingers won't type anymore...the new thread will be there b/c of our dear fearless leader..your the best...

hugs to all

judy :)

jerseyangel Proficient
jerseyangel
Posted

Thanks, Judy :D Makes you feel good when someone actually listens!

This is a good thread for you--lots of histimine talk. (Could prove very helpful if what you have are allergies!) ;) With all the sneezing, I'll bet that's what it is--the doctor in the paper today said that it was due to begin as early as this week--earlier than usual.

Matt and I have been sneezing a little bit, too. The ragweed must be creeping over the bridge from Philly to Jersey :o

Judyin Philly Enthusiast
Judyin Philly
Posted

The ragweed must be creeping over the bridge from Philly to Jersey

well i'll try to capture that and keep it over here :lol:

i know nothing of histimines so guess i better read up..

just never had allergies this bad if that's what it is.

are people saying that food+ histimines+ ragweed = sneezing :lol::huh::blink: ???????

Judy

ps HI YA RACHEL..POSTED A WHILE BACK...THANKS KIDO..SEE YOU LURKN' OUT THERE .:)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
still don't get 'fast relpy either..but then i'm pretty slow..so probably won't apply to me :lol:

:lol::lol:

Judy, sheeeesh I remember when you couldnt do quotes....now look at you! You'll be using the fast reply soon enough....I betcha. ;)

Judyin Philly Enthusiast
Judyin Philly
Posted

hI POSTED IN THE 'SUB DIVISION. :lol:

GOOGLED MY Judyin Philly and OMG some many of my post came up.

is that why people are changing their names..hate to post same topic is 2 places but this is scarey..knew it did it in resturant thread but geezze.

Judy

Green12 Enthusiast
Green12
Posted

I don't even know what the fast reply is :lol:

Chelse!! Look at you! I love your new picture :)

Rachel, I have more research to do but I though it was an interesting connection between histamine and thyroid. I have hypothyroid so I wonder if the same could be said, they mentioned it had to do with normalizing thyroid, so my thinking was mybe it could be for both hyper and hypo??

Copper is an interesting component as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted
:lol:

:ph34r:

TheDave,

Such random things I said 200 pages ago are not to be resurrected.

:lol:

:ph34r:

I'm lacking scientificness at the moment, so I must meander elsewhere.....

CarlaB Enthusiast
CarlaB
Posted
:ph34r:

TheDave,

Such random things I said 200 pages ago are not to be resurrected.

Maybe he's trying to make a statement ... after all, he's read over 100 pages so far!! ;):rolleyes:

AndreaB Contributor
AndreaB
Posted
Maybe he's trying to make a statement ... after all, he's read over 100 pages so far!! ;):rolleyes:

Could be.

VydorScope Proficient
VydorScope
Posted

CarlaB,

Did you get the golcose test? Did you test yet? How did it go? Sorry if I mnised it.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
:ph34r:

TheDave,

Such random things I said 200 pages ago are not to be resurrected.

Yes....new rule....all things said more than 50 pages ago shall remain lost in the thread. No more pulling out random things from the past.... :blink::ph34r:

Only pertinent scientific info shall be resurrected and thrown back at us. :P

Maybe he's trying to make a statement ... after all, he's read over 100 pages so far!!

Andrea, I seriously doubt he's read the whole 100 pages. Me thinks he's skipping the scientificness (it goes over his head anyways) and just looking for the things he can have more fun with. I'm sure I'll be hearing about it today....the things I posted in my crazy sweet potato stupor....coming back to haunt me. :ph34r:

What was I thinking?? :blink:

Miamia,

Did they tell you when to expect your test results?? I'm wondering how long it will take. I'm very impatient....want to know now. The lady at the lab wasnt very friendly...I wanted to ask how soon they get their results back but she scared me a little so I kept my mouth shut....since she was the one who was gonna be poking me with the needle. <_<

miamia Rookie
miamia
Posted
Yes....new rule....all things said more than 50 pages ago shall remain lost in the thread. No more pulling out random things from the past.... :blink::ph34r:

Only pertinent scientific info shall be resurrected and thrown back at us. :P

Andrea, I seriously doubt he's read the whole 100 pages. Me thinks he's skipping the scientificness (it goes over his head anyways) and just looking for the things he can have more fun with. I'm sure I'll be hearing about it today....the things I posted in my crazy sweet potato stupor....coming back to haunt me. :ph34r:

What was I thinking?? :blink:

Miamia,

Did they tell you when to expect your test results?? I'm wondering how long it will take. I'm very impatient....want to know now. The lady at the lab wasnt very friendly...I wanted to ask how soon they get their results back but she scared me a little so I kept my mouth shut....since she was the one who was gonna be poking me with the needle. <_<

Rachel-

I am the same way. I get so impatient!!! If I can I try to get my doctor to call and tell them to put a rush on the results. I never get why they always take so long. Yes always good to be nice to the people with the needles- I have really deceptive vanes they look like they are right at the surface and then when you try to draw blood from them it dosen't work and one of my arms is easier to draw from than the other - when I warn nurses or doctors about this they get so defensive because they think I am trying to tell them how to do their job so they always ignore me and then end up poking me a million times til they end up doing exactly what I said. I have come out of many tests looking like a heroine addict- Lots of needle marks plus the skinny factor- yes I get some strange looks!!

About the copper thing- I don't know how I tesst with that but I know I do have a zinc deficiency I wonder about that in connection to all this- ahh more to research

miamia Rookie
miamia
Posted
I don't even know what the fast reply is :lol:

Chelse!! Look at you! I love your new picture :)

Rachel, I have more research to do but I though it was an interesting connection between histamine and thyroid. I have hypothyroid so I wonder if the same could be said, they mentioned it had to do with normalizing thyroid, so my thinking was mybe it could be for both hyper and hypo??

Copper is an interesting component as well.

Ok Julie and everyone else-

I did some mor eresearch and I have a doctors appt this morning so these are the things I found and am going to run by him-

They are all supplements so I know these are always questionable-

Wobenzym N- thats the systemic Oral enzyme

-Biogenesis Bioinflamatory- Its a medical food powder to support gastro intestinal healing and remove toxins (inc. environmental toxins)

- Daystar Quick Relief- For food allergic reactions -you can take this one daily or when you feel like you are having a reaction from food

Ok I hope some of this is helpful

Miamia

CarlaB Enthusiast
CarlaB
Posted
CarlaB,

Did you get the golcose test? Did you test yet? How did it go? Sorry if I mnised it.

I walked over to the pharmacy, it's locally owned, and the least expensive test kit was $19 with no needles or test strips. So, I thought I'd wait to go to a chain pharmacy that might have a cheaper one.

Then, I get to debating in my head whether to do it or not ... I don't think this current dizziness is from it, and now that my jaw has moved to accomodate the mouthpiece and the inflammation in my face seems to be going away, I'm not so dizzy. Plus, Morgan just woke up sick this morning ... apparently I had a virus! Yah! Not another food intolerance! ;) I'm sorry for Morgan, but glad for the confirmation I was just plain sick.

I do think hypoglycemia may be a problem as I've always had a problem if I eat simple carbs by themselves. I end up really tired later. If I eat something sweet at night, I have a "hangover" effect from it in the morning. One night we went out to eat, had two or three drinks with dinner (not enough for a major hangover), and then watched a movie and split a pint of Haagen Dazs, but the ice cream was a couple hours after dinner. The next day I was so delirious that I didn't understand simple things Adam was saying, so I started giggling, he realized there was a major problem and sat me down with some Propel. (This was before I was casein-free so some of the reaction was due to the casein ...)

Ever since then I've been careful to eat protein with carbs and have not had another problem ... so from now on it's STEAK with my SORBET!! :P

Do you think it's worth doing the test if I'm aware of the problem and have adjusted the way I eat? I didn't have a problem with the glucose tolerance test when I was pregnant, but the last time was, well, she's 8.

Thanks for asking! It's nice having all of you here who care ... no one in my circle of friends/family (excluding those I live with) seem to even think of asking. It means a lot.

VydorScope Proficient
VydorScope
Posted
I walked over to the pharmacy, it's locally owned, and the least expensive test kit was $19 with no needles or test strips. So, I thought I'd wait to go to a chain pharmacy that might have a cheaper one.

Hmm the one I got from CVS was $15 I am pretty sure, had the needles, and 10 strips. I might be a bit off on the price, but taht is ballpark, so yea look for a chain store.

Do you think it's worth doing the test if I'm aware of the problem and have adjusted the way I eat? I didn't have a problem with the glucose tolerance test when I was pregnant, but the last time was, well, she's 8.

Thanks for asking! It's nice having all of you here who care ... no one in my circle of friends/family (excluding those I live with) seem to even think of asking. It means a lot.

I would. Reverse the question, why not? For me, I would want to know. TarnalBerry on this site is hypoglycemica and did not do the test, neither did penguin, so you would be in good company at least. For me, it was nice to have an objective test with objective numbers to back it up. Plus it was nice to rule out diabeteas.

If I did not it would always be wondering "what if..."

Green12 Enthusiast
Green12
Posted
Ok Julie and everyone else-

I did some mor eresearch and I have a doctors appt this morning so these are the things I found and am going to run by him-

They are all supplements so I know these are always questionable-

Wobenzym N- thats the systemic Oral enzyme

-Biogenesis Bioinflamatory- Its a medical food powder to support gastro intestinal healing and remove toxins (inc. environmental toxins)

- Daystar Quick Relief- For food allergic reactions -you can take this one daily or when you feel like you are having a reaction from food

Ok I hope some of this is helpful

Miamia

Thanks mia mia, for all of this great information. Thanks for all the research you have been doing.

Good luck with your doc appt today and let us know how it goes :)

penguin Community Regular
penguin
Posted
Hmm the one I got from CVS was $15 I am pretty sure, had the needles, and 10 strips. I might be a bit off on the price, but taht is ballpark, so yea look for a chain store.

I would. Reverse the question, why not? For me, I would want to know. TarnalBerry on this site is hypoglycemica and did not do the test, neither did penguin, so you would be in good company at least. For me, it was nice to have an objective test with objective numbers to back it up. Plus it was nice to rule out diabeteas.

I tested a couple times after Vincent mentioned it, but it gave me the ooglies to stick myself, so I stopped. I'm in the "hmm, I'm starting to get a bit shaky, better eat something" camp of hypoglycemics. It helps to just eat balanced and often throughout the day...

I have blood tests run occasionally, including fasting, and I'm always in normal ranges, so for me it's reactive hypoglycemia. It's also one of the gazillion symptoms of celiac.

VydorScope Proficient
VydorScope
Posted
I tested a couple times after Vincent mentioned it, but it gave me the ooglies to stick myself, so I stopped. I'm in the "hmm, I'm starting to get a bit shaky, better eat something" camp of hypoglycemics. It helps to just eat balanced and often throughout the day...

I have blood tests run occasionally, including fasting, and I'm always in normal ranges, so for me it's reactive hypoglycemia. It's also one of the gazillion symptoms of celiac.

Yea Random testin wil not catch reactive, only the process I describe will work for the blood test.

CarlaB Enthusiast
CarlaB
Posted
Hmm the one I got from CVS was $15 I am pretty sure, had the needles, and 10 strips. I might be a bit off on the price, but taht is ballpark, so yea look for a chain store.

I would. Reverse the question, why not? For me, I would want to know. TarnalBerry on this site is hypoglycemica and did not do the test, neither did penguin, so you would be in good company at least. For me, it was nice to have an objective test with objective numbers to back it up. Plus it was nice to rule out diabeteas.

If I did not it would always be wondering "what if..."

The doc did the morning blood sugar test for diabetes, so I think that's ruled out ... at least that's what my doc said ...

Why not? Needles ... I'm a baby. :( Next time I have a problem, I'll do it ... for now, I'll just keep doing what I've been doing ... which isn't cleaning the house ... really need to get off here and get started!! Sick three days, this place is a disaster!

penguin Community Regular
penguin
Posted
Yea Random testin wil not catch reactive, only the process I describe will work for the blood test.

Whoops, meant to say that's how diabetes was ruled out for me and how they figured out which hypoglycemia I have. If you're hypoglycemic first thing in the morning, it's fasting hypoglycemia, which is considered a pre-diabetes sign, or at least a risk factor.

I've never checked my blood during a crash, I chickened out before I got that far.

dlp252 Apprentice
dlp252
Posted
Omg....we've been moved :lol::lol::lol:

How cool!!!! Bet there'll be a lot of activity here, lol.

Yes....new rule....all things said more than 50 pages ago shall remain lost in the thread. No more pulling out random things from the past.... :blink::ph34r:

Only pertinent scientific info shall be resurrected and thrown back at us.

:lol: Yay!

Andrea, I seriously doubt he's read the whole 100 pages. Me thinks he's skipping the scientificness (it goes over his head anyways) and just looking for the things he can have more fun with. I'm sure I'll be hearing about it today....the things I posted in my crazy sweet potato stupor....coming back to haunt me. :ph34r:

What was I thinking??

YIKES!!! :o

Thanks for asking! It's nice having all of you here who care ... no one in my circle of friends/family (excluding those I live with) seem to even think of asking. It means a lot.

There are a lot of very nice special people here! :wub:

dlp252 Apprentice
dlp252
Posted
Hmm the one I got from CVS was $15 I am pretty sure, had the needles, and 10 strips. I might be a bit off on the price, but taht is ballpark, so yea look for a chain store.

Carla, I bought a cheap one from Long's...it was called "FreeStyle" and it had all the stuff, including 10 test strips. I really just wanted to do the testing for the one day, so this was perfect. I ended up buying another kind...just a bit more expensive as well, and I used it ocassionally just to see if my symptoms are related to blood sugar...they never are though, but I'm still glad I have it to erase the doubts.

VydorScope Proficient
VydorScope
Posted
Whoops, meant to say that's how diabetes was ruled out for me and how they figured out which hypoglycemia I have. If you're hypoglycemic first thing in the morning, it's fasting hypoglycemia, which is considered a pre-diabetes sign, or at least a risk factor.

I've never checked my blood during a crash, I chickened out before I got that far.

(Still trying to get used to you as a red head....)

Yea fasting/diabetes is done that way , but reactive is trickier. BTW I am STILL screwing up my diet, how long will it take me to learn have a freaken clue about it! As soon as the crash hits I know what happend Stuff like YOU STUPID IDIOT ALL YOU HAD WAS ICE CREAM ALL DAY!

BUt I guess at least I know.... :lol: if a bit late :lol:

AndreaB Contributor
AndreaB
Posted

Miamia and Rachel,

When Talitha had her blood work done we always had results within a couple days. Maybe they do some things faster than others.

I was looking for Susan's post about her neice over here. Susan if you come over and read this....sounds like your neice could benefit from being tested for celiac as well as challenging the histamine with a low histamine diet. I would think that you aren't the only celiac/gluten intolerant in your family.

Carla,

It's nice to have such a caring community isn't it?

Vincent,

Come join us over in R-2. Of course now this thread is probably easier to keep up with. :P

As soon as the crash hits I know what happend Stuff like YOU STUPID IDIOT ALL YOU HAD WAS ICE CREAM ALL DAY!

BUt I guess at least I know.... :lol: if a bit late :lol:

Sounds like you pulled a Rachel. :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748
    Naner4
    Newest Member
    Naner4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.