Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

confusedks Enthusiast

Lisa, I do. :)

Andrea, Glad you're here. I was worried. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
Thank you Carla,

Yeah I use 8 cups of coffee and 1 tablespoon per cup. That's what Dr. M says too do. Anyone here live in an apartment?

lsia

:o :o :o I think that's too much coffee!!!!

I live in a house.

tabasco32 Apprentice

Tomorrow I will start yoga classes. Anyone benefit from this? BTW what is airhunger?

CarlaB Enthusiast

Air hunger is when you can't get your breath. As much as you try to breath, you feel you can't get a satisfying breath. It's not just when exerting yourself, rather sometimes just when sitting down ... I'd have it a lot when I'd try to go to sleep.

Green12 Enthusiast
Tomorrow I will start yoga classes. Anyone benefit from this?

Lisa I do yoga and I absolutely love it :D

I've been doing it for 3 years or so and have reaped so many benefits from the practice. There is an amazing mind body connection, it is centering and grounding, it has helped me focus, relax, breathe better, along with improving strength (mental and physical) and flexibility.

tabasco32 Apprentice

Cool Carla and Juliem I can't wait to start classes. I have seen yoga magazines at stores and stuff. There some pretty cool tricks in there.

lisa

confusedks Enthusiast

Lisa, I tried yoga many times. With my back/spinal/disc problems, it never worked for me. It was too hard. I am doing weights at the gym now and I find it A LOT easier than the gym! ;) I like it way more than yoga, but lots of people think I'm crazy (not too shocking)! LOL!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aprilh Apprentice

Julie - That's right! Flannel...thats what I was trying to think of :P

Kassandra,

I don't know what is making her anemic. She is gluten and dairy free 99% of the time. My thoughts were that the metals were displacing good minerals. I know lead displaces iron.

After her short chelation this summer she required less iron - going by symptoms.

But, I did a bunch of research and there is high amounts of lead in schools due to the old pipes and I wouldn't be surprised if she is getting it in the school water. I am going to sneak in and get it tested. It's only $28.00 to do it.

CarlaB Enthusiast

April, I send my kids to school with water from home. :) It's still not ideal as they're drinking out of plastic bottles, but it's still better than the tap water at school.

They all have reusable bottles that they wash.

mftnchn Explorer
:o :o :o I think that's too much coffee!!!!

I use 1/4 C coffee (4 Tablespoons) and 1-2 quarts of water, so I agree that seems like a lot of coffee. I'd cut back and see if it is better.

Sometimes it is pretty yucky, Lisa, it is worse the more symptoms I have. I do get tingliness afterwards sometimes kind of all over, but usually in my face, sometimes a little weakness or a wiped out sensation. Again it is when I seem to be the most toxic. I just suggest drinking water, and resting for 30 minutes or so if you feel bad. When I get up again I usually am feeling much brighter and clearer. It always helps my symptoms but when I am more toxic I'll have that initial reaction afterward.

Yeah, I wouldn't worry if it all doesn't seem to be expelled. Sometimes it is later, other times I think some of the water is absorbed. After all that is the major task of the large instestine.

Sherry

mftnchn Explorer
Lisa, I tried yoga many times. With my back/spinal/disc problems, it never worked for me. It was too hard. I am doing weights at the gym now and I find it A LOT easier than the gym! ;) I like it way more than yoga, but lots of people think I'm crazy (not too shocking)! LOL!

I have trouble with it too. I was doing a very simple workout for awhile then discovered it was worsening my back and shoulder pain. I was really having trouble sleeping, and for a couple days was too busy and skipped. I was suddenly better--and finally figured out it was the yoga.

Sherry

Rpm999 Contributor

does candida wise have any connection to the sexual organs? TMI, but i've had the tip of my penis has felt dull for a while, and the hole feels kind of tight/inflamed...sometimes i get bad shooting pains through it too, or just some strange feelings....i hope it's just an infection, don't know what else it could be, but it's starting to cause some issues, not just discomfort...i heard though sometimes your immune can attack the strangest places...i know there's different kind of yeast infections, but can they be connected/are they similiar?

confusedks Enthusiast

Carla, I finally went and got more fruit!!! :lol: :lol: I got there right before Whole Foods closed! Whew! Then, I was hungry but just wanted a light snack (around 10pm) so I made a "tropical" smoothie. OMGsh...it was AMAZING! I don't know if you know what Jamba Juice is, but that's *exactly* what it tasted like!

Wayyyyy way better than the mixed berry blend from Trader Joe's! I am SO excited! I am going to try just mango tomorrow and see how I like that. The one tonight was a pre-made mix of strawberries, mango, peach and banana I think. Thought you would want to know. :rolleyes::lol:

miamia Rookie

Sherry-

Nausea is not a major issue for me its other digestive woes- I just seem to do bad with well......EVERYTHING!! I take a digestive enzyme and i am definitly better with it than without but i don't think it does enough. Thats why I am interested in the one you take.

So a 2 question

1- besides the nausea do you think it helps with other symptoms

2- do you notice any adverse effects from it?

thanks-

Mia

miamia Rookie

Julie-

has the vertigo gone away?

I used to do the castor oil packs like you- but now I do the lazy woman's castor oil Pack(I made it up) I lather my belly with lots of it and then put a towl over it and then put my hot water bottle over it. I know the other methos is better but I am too lazy.

Andrea-

How are you feeling? How are the kids?

Where/s Rachel been?

Lisa-

that is alot of coffee- I can't do coffee enemas I just do hot water ones.

My colon therapist does use Chlorophyll implants though and those help me alot with gas build up.

CarlaB Enthusiast
Yeah, I wouldn't worry if it all doesn't seem to be expelled. Sometimes it is later, other times I think some of the water is absorbed. After all that is the major task of the large instestine.

Sherry

This is a good point. I drink a LOT of water! Maybe you're not drinking enough if it doesn't seem that all the coffee is coming out.

does candida wise have any connection to the sexual organs? TMI, but i've had the tip of my penis has felt dull for a while, and the hole feels kind of tight/inflamed...sometimes i get bad shooting pains through it too, or just some strange feelings....i hope it's just an infection, don't know what else it could be, but it's starting to cause some issues, not just discomfort...i heard though sometimes your immune can attack the strangest places...i know there's different kind of yeast infections, but can they be connected/are they similiar?
LOL RPM, I didn't know you were a guy.

Men can get yeast infections, too. When they treat women for yeast infections they tell them that they can be passed back and forth if the men aren't treated too.

I don't really know what they symptoms are for a man .... I've never been prone to having yeast infections, and neither has my husband.

Carla, I finally went and got more fruit!!! :lol: :lol: I got there right before Whole Foods closed! Whew! Then, I was hungry but just wanted a light snack (around 10pm) so I made a "tropical" smoothie. OMGsh...it was AMAZING! I don't know if you know what Jamba Juice is, but that's *exactly* what it tasted like!

Wayyyyy way better than the mixed berry blend from Trader Joe's! I am SO excited! I am going to try just mango tomorrow and see how I like that. The one tonight was a pre-made mix of strawberries, mango, peach and banana I think. Thought you would want to know. :rolleyes::lol:

I've used that one. It is good. :P I'm glad you got your fruit. :D It's been fun talking to you "live" on Lyme chat. B)
truthsearcher Rookie

quick drive by.

A couple of questions and sorry if they have already been discussed.

Do any of you get an ache in your heart? Mine has been aching on and off for several months now, but just recently been constant. My left arm is definitly weaker, feels somewhat sore. My left fingertips are colder than the right. Left front side of my neck is sorer than my right. It hurts worse when I try to take a deep breath, get stressed or move suddenly. Could this just be muscle related?

Second question... Do any of you do or like cold laser therapy? What's your experiences?

Third... How much would you say it costs to operate a home sauna for say a 10 min session. For both the wood versions and the portable one? Do you notice your electric bill going through the roof?

Thanks for letting me pop in. I can't read too much d/t cognitive issues.

Laurie

aprilh Apprentice

RPM,

I didn't know you were a guy either !! Anyway, yes you can get candida the same as a woman does. If you do have candida this could explain why you are having such a hard time right now, for the candida produce A LOT of toxins and can impair your detox organs.

PLUS if that truely was an Iodine solution they injected you with, iodine destroys candida as well as detoxing some metals.

Do you have any probiotics you could take?

mftnchn Explorer
Sherry-

Nausea is not a major issue for me its other digestive woes- I just seem to do bad with well......EVERYTHING!! I take a digestive enzyme and i am definitly better with it than without but i don't think it does enough. Thats why I am interested in the one you take.

So a 2 question

1- besides the nausea do you think it helps with other symptoms

2- do you notice any adverse effects from it?

thanks-

Mia

Hi Mia,

Well, I think it helps with digesting stuff, maybe with gas and bloating. I notice it the most helping iwth nausea--probably because it helps things digest. Maybe helps with quality of stool--less undigested food?? Although I may be far enough along on GFCFSF that I am digesting better. Just did labs so we will see.

There is definitely a difference in strengths. There is prescription one that is half the strength of the one I am using, and I can use 1-2 of my current ones per meal. I'd think it would be good to check the strength of what you are taking.

I don't notice any side effects from taking more. I forgot to take an extra one yesterday, I'll try today.

mftnchn Explorer

RPM, LOL--I think I just assumed you were a woman because most of us here are...glad you have been brave enough to join in. Maybe Tom had it figured out...?

I assume you have eliminated other STD's as a cause of your symptoms?

mftnchn Explorer

Laurie, nice to see you. Can't help with your questions though.

AndreaB Contributor

rpm,

I don't know how yeast infections would affect guys. It could be that, also could be toxin buildup. I know for my daughter and I on our ASYRA testing came up with prostate as a toxic focus point. Since women don't have prostate glands I would assume it's just the general area where the prostate would be.

Sorry I can't be of more help. :(

Mia,

I'm find and so are the children. Still trying to decide about the new supplements our Dr wants us to switch to. I'm thinking, even with the contamination risk, that it would be better for us to remain on the fish oil......we just can't double the money going into that.......we're having a hard enough time eating properly, which I believe is another cause of my discomfort. We barely have veggies (1-2 servings a day) and I barely have fruit.

It's hard to justify spending money on supp's when you need to eat! Most the supp's go on credit and we are also trying to only use one card so we can work the others down.

CarlaB Enthusiast
Do any of you get an ache in your heart? Mine has been aching on and off for several months now, but just recently been constant. My left arm is definitly weaker, feels somewhat sore. My left fingertips are colder than the right. Left front side of my neck is sorer than my right. It hurts worse when I try to take a deep breath, get stressed or move suddenly. Could this just be muscle related?

I got bad heart symptoms with babesia .... I thought I was having a heart attack they got so bad .... left side would go numb.

Second question... Do any of you do or like cold laser therapy? What's your experiences?

I have a green laser. I can't pinpoint which benefits are coming from it, or from the other things I'm doing. Go to Lymenet under medical questions. There is a green laser thread there that I started.

Third... How much would you say it costs to operate a home sauna for say a 10 min session. For both the wood versions and the portable one? Do you notice your electric bill going through the roof?
I have no idea, LOL. We did not notice a difference in our bills, not to say there was not one ..... I use it 30 minutes per day and let it warm up first ... so most days it's on for an hour ... or more if someone else uses it.

I have a three person Sunlight Sauna. www.sunlightsaunas.com

Green12 Enthusiast

April, you mentioned you had a bad reaction to a castor oil pack, what symptoms did you experience?

Is your daughter's leg pain any better?

does candida wise have any connection to the sexual organs?

Candida can effect both men and women, like Carla said it can be passed back and forth between partners.

Sounds like going in and having it checked out would be a good idea, just to rule any infections out.

Julie-

has the vertigo gone away?

Hi miamia, how are you feeling? any news on your test results yet?

I was much better yesterday, but today I am a little dizzy again :(

quick drive by.

A couple of questions and sorry if they have already been discussed.

Do any of you get an ache in your heart? Mine has been aching on and off for several months now, but just recently been constant. My left arm is definitly weaker, feels somewhat sore. My left fingertips are colder than the right. Left front side of my neck is sorer than my right. It hurts worse when I try to take a deep breath, get stressed or move suddenly. Could this just be muscle related?

Second question... Do any of you do or like cold laser therapy? What's your experiences?

Third... How much would you say it costs to operate a home sauna for say a 10 min session. For both the wood versions and the portable one? Do you notice your electric bill going through the roof?

Thanks for letting me pop in. I can't read too much d/t cognitive issues.

Laurie

Hi Laurie,

Sorry you are experiencing the pain and other symptoms you describe here. I don't really have any answers, it could be any number of things.

I have a Helath Mate sauna and there were little changes in the bills, it's designed to be energy efficient. Here is a quote from the website in the FAQs:

How much electricity do your saunas consume?

Health Mate sauna units are designed to heat the entire room up to 170

dlp252 Apprentice

Julie,

It seems to be better this week, although I tried to do a stretch on my fitness ball yesterday and it did hurt...had to reposition myself. I haven't had as much of that breath-stealing searing pain.

I'm very sad to think it might be coffee :( but happy that it's probably NOT cancer. :P

I'm going to try one more experiment...I'm going to try a little decaf for a week or two and see if it's the caffeine or coffee in general. I have to say that coffee in general tested badly for me in BioSET, but I've supposedly been desensitized to it, lol. Caffeine also tested badly I believe. Well, most things tested badly. :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.