Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

mftnchn Explorer
mftnchn
Posted

Paula, what a nice thing the school did for you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
confused Community Regular
confused
Posted

I didnt get the link from carla, so if someone that got it would like to send it over to me id appreciate it. If you dont have my addy, just pm. thank you very much.

Sherry,

Im glad you made it safe and that you are having such wonderful help over there.

paula

CarlaB Enthusiast
CarlaB
Posted

Hi, getting ready to leave. :)

I sent the link to Paula. :)

confused Community Regular
confused
Posted
Hi, getting ready to leave. :)

I sent the link to Paula. :)

Have a safe and fun trip and come back 100 percent lol. I got the link, thank you.

I am feeling great today. Which is great cause it is a very busy day. Hope everyone has a great day

paula

AndreaB Contributor
AndreaB
Posted

Donna,

Update on the foot pad?

Sherry,

Hope you enjoy your trip. It sounds good about the food.

Carla,

Safe travels and I can't wait to read about your trip. I didn't get the link either but I can keep up over at myspace......and/or Paula can send me the link. :)

dlp252 Apprentice
dlp252
Posted

Can someone PM me the link to Carla's blog, please? :) I guess I can keep up on myspace too, lol.

Update on the foot pad?

I completely forgot! :ph34r: Completely! I haven't been sleeping well again, but dozed off on the couch and when I woke up I just got up and went to bed...forgetting completely about the stupid pad. I'm going to definitely TRY to remember tonight, lol. :rolleyes:

AndreaB Contributor
AndreaB
Posted
Can someone PM me the link to Carla's blog, please? :) I guess I can keep up on myspace too, lol.

It'll be on it's way in a minute. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

Andrea and donna,

Did someoen give u the link, if not ill pm it to you.

paula

AndreaB Contributor
AndreaB
Posted

Paula,

Carla sent it to me and I fowarded it to Donna.

truthsearcher Rookie
truthsearcher
Posted

Hi Andrea. Could you please email me Carla's blog link?

Thanks

Nanjkay Apprentice
Nanjkay
Posted
Hi everyone! I'm leaving tomorrow! I sent out an email with the link to the blog to some of you .... but I think I missed most of you. If you didn't get it (I KNOW I didn't get it to everyone, it's late and I'm tired), please ask someone else on the thread for it. I don't like to use my LN screen name here because this thread comes up so easily in searches. ;)

I will have limited computer access, so that's why I say ask someone else on the thread. :)

Hi All -

I haven't been on line much as it was making me nauseated and sick to my stomach. I just started catching up and reading and Carla is going to Germany....WOW.

I am seeing the LLMD Carla recommended and I am starting to feel a little better. I have been there twice and spoken to them once on the phone. They are very responsive and thorough. I feel like I am in good hands now. It only took 2o years!! As I treat the Lyme and Babesia I am trying to slowly treat the methylation on my own with the Yasko limited protocol, but I only take the supplements every third day and I cut the supplements into quarters.

I hope to start reading you all lovely ladies every day again soon. :P

Nancy

aprilh Apprentice
aprilh
Posted
Have a safe and fun trip and come back 100 percent lol. I got the link, thank you.

I am feeling great today. Which is great cause it is a very busy day. Hope everyone has a great day

paula

Paula,

Glad you are feeling good.

Can you send me the link for Carla's Blog?

Thanks!

AndreaB Contributor
AndreaB
Posted

Nancy,

Thanks for stopping in with an update. So glad you are starting to feel better and seeing Carla's dr.

Truthsearcher and April,

Pm's sent with Carla's blog address.

mftnchn Explorer
mftnchn
Posted
I am seeing the LLMD Carla recommended and I am starting to feel a little better.

Great to hear this news, Nancy. Glad you could pop in.

Sherry

aprilh Apprentice
aprilh
Posted

Andrea,

Thanks for sending me the link :)

mftnchn Explorer
mftnchn
Posted

Quiet here today!

I'm slowly improving after my recent relapse but it's very up and down. I'm enjoying my trip though. Can't wait for news of Carla's treatments.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Everyone,

I have been having computer issues, so being able to catch up was impossible. I am afraid I will just have to jump in, if that is alright. There is something making my computer go crazy. Dad has not had time to look more closely at it, since he had to prepare for the new dryer. Our old one died. :(

On the bright side, it will likely save money on the electric bill. This one will run on gas, which is not as expensive. We also will not have to run it several times to dry the clothes or towels as we have more recently with the old one. :D Dad still needs to hook it up, which hopefully he will do after work tomorrow. He needs another pipe fitting, since this machine needs a smaller one than our last dryer needed.

Although I do not have any new developments with my health, I have made a decision to purify my diet some. Basically, I am going to reduce my caffeine and sugar intake, replace what sugar I do eat with natural ones like honey or pure maple syrup, and start doing The Zone again. Low blood sugar usually turns into Diabetes later. I do not want to end up like Dad! My diet is already limited enough!

Meanwhile, I am still trying to incorporate those new supplements from Dr. D into my life. The next appointment is November 7th. I made a supplement introduction schedule. This will make it much easier! I also know the first thing I am going to do when I get my Christmas money is get my own account and get my Lyme testing done! :) I also intend to get my license after renewing my permit first.

Due to the Christmas season coming upon us, this provides opportunity. I am going to do a gift wrapping service to earn money this year. We have families with children in our neighborhood, and they likely would not mind spending some money to have their gifts wrapped. There are some other business ideas I want to pursue, which involve artwork. Hopefully, they will work out.

Now, I am going to reply to what I have read on this page only. This is due to limited space, as well as my being unable to catch up on reading due to this goofy computer. I hate that I missed Birdy's 18th birthday! :( Being born on the Autumn Equinox is special! :) So, if you are reading Birdy, Happy Late Birthday!

I sure have missed all of you! :wub:

You will all be glad to hear Boomer is doing well. His little tail and face are becoming so full! They grow so fast! His full name is now Boomer Houdini Andretti. :lol: Boomer is for his stomping, Houdini is because he escaped from his cage a few times, and the newest addition of Andretti is from his more recent habit of running around rapidly in circles. I could swear he is attempting to try out for Nascar! Mom nicknamed him Boomerang, since he flips back around so much.

This avatar is a more recent photo. I still think my hair looked better black. How do you make people understand that their concept of what you are supposed to look like is not what your self-concept is?

Why can people not accept a person for who they are, instead of trying to make them into this other person they want them to be? Plus, I think I am allergic to the conditioning spray they gave me at the salon, because my scalp is really broken out.

I have not been since late April, but have a feeling this has something to do with it. It is gluten-free, but maybe there is something else I am reacting to? :huh: Or, perhaps L'Oreal changed the conditioner ingredients?

Sulfates could be an issue if I have Lyme anyway. There are a lot of possibilities here. One thing is for sure, I know the dye I used before may have made my hair come out even more.

My Thyroid is part of this. However, the dye I was using before has sulfates up the wahzoo in it! I have looked at other dyes, but so far, they have gluten. :angry: As April would say, I am just bumfuzzled at the moment. :lol: I cannot afford the henna dyes, because you need to use them more often.

Dear Carla,

Wow! You are going to Germany! :o That will be an amazing trip. My best friend got to go as a graduation present in 2002. Are you going to get the Bionic 880 treatment? Or, is it something different?

Dear April,

I am glad to see you still posting! How are the children? I know you were extremely irritated about the pediatrician refusing to prescribe antibiotics as a precaution for Lyme. Doctors can really annoy you with their arrogance. Sometimes they make absolutely no sense with what they do.

Dear Paula,

It is so good to hear you are feeling better! :) Arsenic is so horrific when it poisons the body. Are you seeing a toxicologist? A classmate of mine was treated by one for Candida and toxic mold exposure. She lost a kidney due to her workplace having Aspergillus and Penicillium. :(

Dear Laurie,

I am so glad you are on here again! How are you doing with your Lyme treatment? The last time I read one of your posts, you were quite frustrated. Who would not be? What are you up to lately?

Dear Sherry,

Oh no! That is awful about your relapse. What happened? Thank goodness you are beginning to recover. Setbacks can really drive you crazy. Just when you are showing improvement, something comes along and knocks you back a step or two. Hang in there!

Dear Andrea,

Could you send me a link to Carla's blog as well? I would appreciate it. ;) How are T, M, and S? Is S speaking yet? I am sorry you could not afford to get ART and your dental work done. We all understand what it is like to deal with limited finances.

Dear Nancy,

I sympathize completely with you on the nausea. There are days where it is so bad, walking makes me want to wretch! It is absolute misery. Those are what I call the "Just freakin' shoot me" days. :lol: Promethazine is the only thing that helps when I get glutened, or when my hormones are interfering. Read along when you are able!

Sincerely,

Jin

AndreaB Contributor
AndreaB
Posted
Meanwhile, I am still trying to incorporate those new supplements from Dr. D into my life. The next appointment is November 7th. I made a supplement introduction schedule. This will make it much easier! I also know the first thing I am going to do when I get my Christmas money is get my own account and get my Lyme testing done! :) I also intend to get my license after renewing my permit first.

Due to the Christmas season coming upon us, this provides opportunity. I am going to do a gift wrapping service to earn money this year. We have families with children in our neighborhood, and they likely would not mind spending some money to have their gifts wrapped. There are some other business ideas I want to pursue, which involve artwork. Hopefully, they will work out.

Good to hear from you Jin. :)

Sounds like you have a good plan in place.

I'll send the link in just a minute. :)

aprilh Apprentice
aprilh
Posted
Dear April,

I am glad to see you still posting! How are the children? I know you were extremely irritated about the pediatrician refusing to prescribe antibiotics as a precaution for Lyme. Doctors can really annoy you with their arrogance. Sometimes they make absolutely no sense with what they do.

Hi Jin,

Glad to "see" you....The children are doing good. I am about to start little A on the SCD diet and see how he does. His bahavior has been totally whacked out lately :huh: and I think its due to bad digestion. I am anxiously waiting for his stool test results. I let him eat a little out of the norm - more dairy and wheat - for his stool test.

Little E (my daughter) is doing quite well! I was very ill at my doc for not prescribing her abx for lyme "prevention" and the tick came back positive for Ehrlichia and he still wouldn't prescribe abx. But yet he gave my son over doses and gobs of them for constant ear infections which brought on more ear infections and so on and so forth.

So, I am letting it go for the moment! She is not showing any signs or symptoms - which is good - so I am focusing on keeping her immune system strong. And if she does ever have anything wierd...I'll have the tick test results and straight to a LLMD she'll go.

I like the ideas you have to make some extra money! Be sure to put it in your "wellness" account so you can take care of yourself!

aprilh Apprentice
aprilh
Posted

Rachel,

Wondering if baking soda has aluminum in it? I have been thinking about this because I use it a lot in cleaning, washing and detox baths and I know you use it as deoderant.

While I was trying out a new recipe which calls for baking soda ....I noticed that the brand I have in the pantry for cooking says "aluminum free" baking soda. For other uses I just buy the big bad from Costco of the regular stuff.

Has anyone researched this?

April

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

April,

I just use plain Arm and Hammer baking soda.....it should be just sodium bicarbonate.

I've never heard of plain baking soda having aluminum it it....but alot of brands of baking powder do have aluminum....so for paking powder I would look for the stuff that specifically states "aluminum free".

aprilh Apprentice
aprilh
Posted
April,

I just use plain Arm and Hammer baking soda.....it should be just sodium bicarbonate.

I've never heard of plain baking soda having aluminum it it....but alot of brands of baking powder do have aluminum....so for paking powder I would look for the stuff that specifically states "aluminum free".

Duh on me!!! Here I am thinking its the same thing.....hmmm....wonder if I put the right one in my bread this morning :blink::blink:

confused Community Regular
confused
Posted

Ughh i hate holidays. Here i got up early today to finsih my test, My hubby went to go mail it, and of ocurse we cant meail it cause its columbus day. Now i have to mail it out tommorow. I am not an happy person today lol.

This is a gross question, but wanted to ask. When anyone else did the 48 hour stool test. Did oyu ever look at the first vial after the 48 hours. I looked at mine and it had lots of white parts and i seen blood(or at least an red liquid) lol. I also seen lots of other funky looking things. Im guessing this is good, cause i might get answers but its freaking me out to lol

paula

confused Community Regular
confused
Posted
Duh on me!!! Here I am thinking its the same thing.....hmmm....wonder if I put the right one in my bread this morning :blink::blink:

omg april, that made me spit my water on the screen lol.

paula

confused Community Regular
confused
Posted
Dear Paula,

It is so good to hear you are feeling better! :) Arsenic is so horrific when it poisons the body. Are you seeing a toxicologist? A classmate of mine was treated by one for Candida and toxic mold exposure. She lost a kidney due to her workplace having Aspergillus and Penicillium. :(

I only felt better for a few hours that day. I have been having lots of really really bad days. Omg she lots an kidney, now im going to really freak out when i see mold lol.

Im glad u popped in. I seen u post in the weightloss group a couple of weeks ago.

paula

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.