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Wierd Stomic Noises And Feelings


Lister

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Lister Rising Star

I was just wondering what all feelings you get from celiac are. I get these really wierd noises it starts as a slight burn in my stomic then you here some wierd gurgle noises and the burn goes away, also like poping or dripping noises coming from my lower left side, doctor says its nothing but im still conserned about it also lately if i have gas it instead of passing stops right before leaving and makes a bowl noise inside instead of escaping out- are these things asoisated with celiac disease or should i be going to get checked out for something else i have already had some lab work done

Blood testing- for anemic, and like 3 other things everything was normal

Cat Scan- originaly to see if i had gadiverticulitis- nothing found

"poop testing" i forgot the real name sorry- they where testing for blood and for cancer nothing found

Upper GI- they fould folds in my small instines but nothing else

the doctor says my next steps if i want would be more blood work then if nothing from that a colonoscopy just wondering if these things sound like something from celiac or if i should continue my testing im only 20 years old so im really confused as to whats going on


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mommida Enthusiast

Sounds familar to me. Before I was diagnosed, if I drank liquid, I could here it pour through my stomach.

L.

mouse Enthusiast

It also sounds familiar to me before I got really bad. If you decide to have your doctor check for Celiac, please make sure that you continually eat gluten and that he performs the whole series of tests.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
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    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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