Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

*****sigh*****home From Hospital--temporarily

chrissy

Recommended Posts

chrissy Collaborator
chrissy
Posted

i've just gotten home tonight from 5 days in the hospital with tianna. kevin is staying with her right now, i will go back up on tuesday. i don't think she will be coming home for quite awhile. the doc said he is keeping her there until we have a "plan". her potassium was low, so she is on supplements and a heart monitor. her heart rate is pretty low because her body has gone into a conservation mode---it has been dropping even lower when she sleeps. the nurse came in and woke her up one night because of it being so low. she is pretty restricted. the bathroom door is locked, the water in the sink is turned off, and the garbage can has been removed from the room. she has to use a portable potty chair, and someone has to be in with her when she showers. she is not supposed to be walking around, so i have to take her in a wheelchair to get the outside sunshine that the doc wants her to get. she was originally being allowed to order her own meals, but she wasn't eating enough, so yesterday the doc had the dietician step in and now tianna's meals are just brought in to her. friday and sat she only ate 700 cals and 795 cals. the doc says he does not want to put a tube in her nose, but if she doesn't eat enough, he will. last night she ate a good dinner, pretended to have a stomach ache, and then threw up with me sitting right there-----even sitting with her i couldn't stop her. as soon as arrangements are made, she will be going to an eating disorder clinic. she just wants to die---i think she thought she could starve herself to death. the doc thinks that she has probably had the tendency for the eating disorder for awhile, but being diagnosed with celiac was just the last straw.

christine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tony'sMom Rookie
Tony'sMom
Posted

I'm so sorry. I hope your daughter gets the help she needs and that she recovers soon. I will keep your family in my thoughts.

Guest nini
Guest nini
Posted

my heart just breaks for you and your family. I do hope that they are able to keep her diet gluten-free at the hospital... even hospital staff make mistakes with this diet...

{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}

jaten Enthusiast
jaten
Posted

{{{{{{{{{{{{{{{HUG}}}}}}}}}}}}}}}}

jerseyangel Proficient
jerseyangel
Posted

Chrissy--I'm so sorry, I wish there was more I could say or do. Sending good thoughts, prayers and a hug your way.

wolfie Enthusiast
wolfie
Posted

I am so sorry. I will keep you and your family in my prayers.

I have suffered on & off with an eating disorder for years. It is a tough battle and will continue to be one for the rest of my life. I am glad that she is in a place where she can receive the help that she needs.

((((((HUGS))))))))))

wonkabar Contributor
wonkabar
Posted

I'm so sorry to hear this. You and your family are in my thoughts. I can't even imagine how difficult this must be for you. The greatest gift we can give our kids is love; your daughter is very lucky to have you.

--Kristy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Chrissy,

My heart goes out to you and I will keep you and your daughter in my thoughts and prayers. I can't imagine the feeling of helplessness watching your child go through this. At least she is exactly where she should be to get the best treatment. Are they giving her any kind of psyciatric treatment, specializing in eating disorders? I hope so......

{{{{{{{{{{{{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

Karen

mouse Enthusiast
mouse
Posted

I am so very sorry that your daughter has this eating disorder. Like Karen said she is in the best place she can be. My prayers are with you, your daughter and your family. HUGS to all of you.

Becky6 Enthusiast
Becky6
Posted

I am so sorry!! Hugs!!!!

penguin Community Regular
penguin
Posted

I'm sorry, eating disorders are so hard. It makes family and friends feel so helpless.

I hope she improves soon. :)

jenvan Collaborator
jenvan
Posted

Chrissy-

Oh wow... I am so sorry. I am sure your heart must be breaking right now. Eating disorders are such a hard, and usually, lifelong battle. I am going to pray for healing, for a recovery, that her desires to harm herself would disappear. I had an eating disorder many years ago...and by the grace of God just snapped of it, I lost the desire. Rare story...but true. I hope she lets her guard down, listens to her family and counselors and loses the fear she is tangled up in... Prayers for you too...

RoseNNJ Apprentice
RoseNNJ
Posted

Sending Hugs and Prayers.

carriecraig Enthusiast
carriecraig
Posted

Chrissy, I'm so sorry you and your family are going through such a tough time right now. You're in my thoughts...

{{{{{{HUGS}}}}}}

Guhlia Rising Star
Guhlia
Posted

I fought with my own anorexia for three years. God bless you for being so strong for her. She will need it. I'll be praying that she's able to make a complete recovery soon.

2Boys4Me Enthusiast
2Boys4Me
Posted

(((((((((((((((((((((((((HUG)))))))))))))))))))))))))))

JenAnderson Rookie
JenAnderson
Posted

My thoughts and prayers are with you.

((((hug)))))

schuyler Apprentice
schuyler
Posted

(((((((HUGS)))))))

I am so sorry about what you have been going through. I can't even imagine what it would be like to watch you're own child go through this. My thoughts and prayers are with you, Kevin, Tianna, Kassie, and the rest of your family.

evie Rookie
evie
Posted

Sending prayers for you and your family..you can not have too many @ such a time as now...We will all be thinking of you and yours. evie

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I'm so sorry--my thoughts and prayers are with you. I hope things improve.

prinsessa Contributor
prinsessa
Posted

((((((HUGS))))))) I'm sorry you daughter isn't doing well right now, but atleast she is getting the treatment she needs.

TCA Contributor
TCA
Posted

hugs and prayers from our family to each of you.

Tanya

JakeARoosMommy Newbie
JakeARoosMommy
Posted

Chrissy,

Lots of hugs to you! I am so sorry to hear about your daughter's condition. A church member of ours had a daughter that we helped to send off to a rehab center for eating disorders down in Arizona. It was costly, but it seems to be working. I pray that your daughter will recover soon.

ryebaby0 Enthusiast
ryebaby0
Posted

I am so sorry for your pain, and her's. We will keep you in our prayers. She has two things going for her: she's in a place where she is safe, and people will take care of her AND she has a fantastic mom who is on her side. Eating disorders and depression are so serious, and so long-term, but even the longest journey has to start somewhere, and sometime. Keep us up to date and let us know how she and you are doing. (You can create a website for her at caringbridge.com and save yourself the trauma of having to re-tell things over and over)

It's okay to worry. And it's okay to take a break and watch TV or sleep or read a book, too. Take care

Joanna

ravenwoodglass Mentor
ravenwoodglass
Posted

((((((((((Hugs))))))))))) and prayers. I hope things improve for you all soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748
    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.