Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Intolerance Test


katshow

Recommended Posts

katshow Rookie

So I'm convinced that I have some other food intolerances that are affecting how I feel. I am severely allergic to wheat though, and so the elimination diet is not recommended. I've heard about the Lame Advertisement and York tests and I know they are expensive, but if I can't do the elimination diet, would this be the best way to figure out what else is making me feel so bad? I would just love to get all of these food issues under better control!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eKatherine Apprentice
I am severely allergic to wheat though, and so the elimination diet is not recommended.

Who told you this? They're wrong, it's the best thing you can do. You just need to find somebody who can work with you on it.

VegasCeliacBuckeye Collaborator
So I'm convinced that I have some other food intolerances that are affecting how I feel. I am severely allergic to wheat though, and so the elimination diet is not recommended. I've heard about the Lame Advertisement and York tests and I know they are expensive, but if I can't do the elimination diet, would this be the best way to figure out what else is making me feel so bad? I would just love to get all of these food issues under better control!

Thanks!

Yeah, that diet is made for people with food allergies and intolerances.

You can also try the Specific Carbohydrate Diet also...

Rachel--24 Collaborator

I dont get why the doctor said you cant do it? :unsure:

Isnt that the purpose of the diet? If you already know you're allergic to wheat you wouldnt be eating it anyway....you would be eliminating other foods that could potentially be problematic for you.

Lister Rising Star

you could just go get a food allergy test done at your doctors office, i just had my doctor order for one since i dont want to try to eleminate foods and figure it out on my own, A. to lazy B.to hard and im really bad with keeping track of things

tarnalberry Community Regular

I too can't figure out why you couldn't do an elimination diet just because of a wheat allergy.

jerseyangel Proficient

A wheat allergy shouldn't have anything to do with an elimination diet. Find an allergist who will guide you through one. You may have to make many phone calls, but they are out there! My allergist has food intolerances himself. But in my search for him, I did come across allergists who did not deal in food issues at all--you need to ask. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

An elimination is one of the best tools at our fingertips! I advise you to keep a good food/symptom journal either way--it helps you link symptoms to specific foods.

katshow Rookie

I was told by my doctor that the elimination diet wouldn't be something that would work for me because I've had an anaphylactic reaction to wheat and that it would be too much of a risk to try this with other foods. That's all the information that I have and I took a regular allergy test, but all it showed was wheat.

I know that wheat and gluten are a problem for me and I've also cut out dairy. I still just don't feel the best and it seems to be directly related to foods. Has anyone taken an actual intolerance test? Or should I just try the elimination diet on my own.

I would love to have a DR to work through this stuff on, but everyone that I've spoken with A) Doesn't know much at all about Celiac and B) continually thinks that there must be something wrong with me mentally, because all of their tests show I'm fine. I know many people on this board have been through what I'm going through, so any imput is greatly apprciated!

kabowman Explorer

Well, my question would be, what are you eating now that is NOT causing AS and if you are eliminating foods - how would that increase your risk????

I agree with Patti - find an allergist who is willing to work with you more and understands food issues better.

katshow Rookie

I agree with all of you, I'd love to have a dr on my side that would work with me. However, I'm also tired of watching all the medical bills come in every month and having no progress made in my actually feeling better. I'm tired of going to dr's that just think I'm nuts and then paying hundreds for their quack opinion. I'm just looking for something I can do to be proactive in my own care since dr's in my area haven't helped.

AndreaB Contributor

You could try enterolab for a few tests. They run tests for soy, egg, yeast, milk and of course wheat/gluten and also do the gene test. It would only pinpoint whether your intestines are reacting to those foods. Check it out at www.enterolab.com if you are interested. :unsure::D

tarnalberry Community Regular

There is more than one way to do an elimination diet - removing items one at a time and seeing if you improve is on option that would not be adding a food to your diet that you are allergic too. I still don't entirely understand your doctor's concern over the anaphylactic allergy. Partially (in that you can become allergic to something you were not previously allergic to), but that can happen at any time, regardless of an elimination diet. Perhaps a food diary and rotation diet would help narrow down the source of the problem.

marciab Enthusiast

My daughter has anaphylactic responses to foods and was tested via skin prick and blood, but the allergy test results were inconclusive. She carries an epipen, inhalers, and benadryl in her purse just in case.

She's 18, so keeping a food list is out of the question for her. Since all this started a couple of years ago, she has started paying attention to foods that cause tingling in her mouth, hives, etc. She told me the other day that she has realized that a lot of the foods she has always said she didn't like were actually because she was allergic to them.

Starting the elimination diet isn't as hard as it is overwhelming. You just need to make a grocery list of allowable foods and pick up as many as possible while you are out. That way you have plenty of "safe" foods in your reach.

Marcia

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.