Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Intolerance Test

katshow

By katshow
in Related Issues & Disorders

Recommended Posts

katshow Rookie
katshow
Posted

So I'm convinced that I have some other food intolerances that are affecting how I feel. I am severely allergic to wheat though, and so the elimination diet is not recommended. I've heard about the Lame Advertisement and York tests and I know they are expensive, but if I can't do the elimination diet, would this be the best way to figure out what else is making me feel so bad? I would just love to get all of these food issues under better control!

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eKatherine Apprentice
eKatherine
Posted
I am severely allergic to wheat though, and so the elimination diet is not recommended.

Who told you this? They're wrong, it's the best thing you can do. You just need to find somebody who can work with you on it.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted
So I'm convinced that I have some other food intolerances that are affecting how I feel. I am severely allergic to wheat though, and so the elimination diet is not recommended. I've heard about the Lame Advertisement and York tests and I know they are expensive, but if I can't do the elimination diet, would this be the best way to figure out what else is making me feel so bad? I would just love to get all of these food issues under better control!

Thanks!

Yeah, that diet is made for people with food allergies and intolerances.

You can also try the Specific Carbohydrate Diet also...

Rachel--24 Collaborator
Rachel--24
Posted

I dont get why the doctor said you cant do it? :unsure:

Isnt that the purpose of the diet? If you already know you're allergic to wheat you wouldnt be eating it anyway....you would be eliminating other foods that could potentially be problematic for you.

Lister Rising Star
Lister
Posted

you could just go get a food allergy test done at your doctors office, i just had my doctor order for one since i dont want to try to eleminate foods and figure it out on my own, A. to lazy B.to hard and im really bad with keeping track of things

tarnalberry Community Regular
tarnalberry
Posted

I too can't figure out why you couldn't do an elimination diet just because of a wheat allergy.

jerseyangel Proficient
jerseyangel
Posted

A wheat allergy shouldn't have anything to do with an elimination diet. Find an allergist who will guide you through one. You may have to make many phone calls, but they are out there! My allergist has food intolerances himself. But in my search for him, I did come across allergists who did not deal in food issues at all--you need to ask. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

An elimination is one of the best tools at our fingertips! I advise you to keep a good food/symptom journal either way--it helps you link symptoms to specific foods.

katshow Rookie
katshow
Posted
  • Author

I was told by my doctor that the elimination diet wouldn't be something that would work for me because I've had an anaphylactic reaction to wheat and that it would be too much of a risk to try this with other foods. That's all the information that I have and I took a regular allergy test, but all it showed was wheat.

I know that wheat and gluten are a problem for me and I've also cut out dairy. I still just don't feel the best and it seems to be directly related to foods. Has anyone taken an actual intolerance test? Or should I just try the elimination diet on my own.

I would love to have a DR to work through this stuff on, but everyone that I've spoken with A) Doesn't know much at all about Celiac and B) continually thinks that there must be something wrong with me mentally, because all of their tests show I'm fine. I know many people on this board have been through what I'm going through, so any imput is greatly apprciated!

kabowman Explorer
kabowman
Posted

Well, my question would be, what are you eating now that is NOT causing AS and if you are eliminating foods - how would that increase your risk????

I agree with Patti - find an allergist who is willing to work with you more and understands food issues better.

katshow Rookie
katshow
Posted
  • Author

I agree with all of you, I'd love to have a dr on my side that would work with me. However, I'm also tired of watching all the medical bills come in every month and having no progress made in my actually feeling better. I'm tired of going to dr's that just think I'm nuts and then paying hundreds for their quack opinion. I'm just looking for something I can do to be proactive in my own care since dr's in my area haven't helped.

AndreaB Contributor
AndreaB
Posted

You could try enterolab for a few tests. They run tests for soy, egg, yeast, milk and of course wheat/gluten and also do the gene test. It would only pinpoint whether your intestines are reacting to those foods. Check it out at www.enterolab.com if you are interested. :unsure::D

tarnalberry Community Regular
tarnalberry
Posted

There is more than one way to do an elimination diet - removing items one at a time and seeing if you improve is on option that would not be adding a food to your diet that you are allergic too. I still don't entirely understand your doctor's concern over the anaphylactic allergy. Partially (in that you can become allergic to something you were not previously allergic to), but that can happen at any time, regardless of an elimination diet. Perhaps a food diary and rotation diet would help narrow down the source of the problem.

marciab Enthusiast
marciab
Posted

My daughter has anaphylactic responses to foods and was tested via skin prick and blood, but the allergy test results were inconclusive. She carries an epipen, inhalers, and benadryl in her purse just in case.

She's 18, so keeping a food list is out of the question for her. Since all this started a couple of years ago, she has started paying attention to foods that cause tingling in her mouth, hives, etc. She told me the other day that she has realized that a lot of the foods she has always said she didn't like were actually because she was allergic to them.

Starting the elimination diet isn't as hard as it is overwhelming. You just need to make a grocery list of allowable foods and pick up as many as possible while you are out. That way you have plenty of "safe" foods in your reach.

Marcia

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.