Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Update On My Dd


Mom2six

Recommended Posts

Mom2six Newbie

Hi everyone, I just wanted to update you all on dd (18 months). SHe had testing 3 weeks ago-- came back inconclusive for Celiac but she was Zinc deficient. After the blood test we went gluten-free and in 4 days her diaper rash was gone, her D was gone, and in 2 weeks she was walking. WooHOO! Anyway, we went back to the Dr. and in those three weeks she gained 1.25 lbs. IN THREE WEEKS!!!! Double WOO HOO! The GI was thrilled, told me to stick with what we were doing and we would worry about a Dx later. He said he didn't want to mess things up while she was in such a critical stage of development since she appeared to be thriving for the first time in a year and a half. I was pleased at his take on things. Just thought you might want to hear. Thanks for the support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

That is so GREAT. A doctor who cared enough for the well fare of a child, then an official diagnosis. Keep up the good work. I am so happy for all of you. :)

Guest nini

That's so great! If she's imprving then you KNOW the problem is gluten... if the Dr.s ever try to make you do a gluten challenge with her to get an official dx, I would seriously question it. But that's just me.

TCA Contributor

Happy Happy Joy Joy!!!! I know exactly how you feel. Isn't it great?

Smunkeemom Enthusiast
:D I am so glad she is feeling better.
taweavmo3 Enthusiast

That's excellent! And it sounds like you have a gem of a doctor to boot....how awesome. I hope she continues to thrive and gain, it is really a miracle to watch. I feel like we didn't even get to know our daughter until we put her on the diet, and her little personality is still blossoming. Keep up the good work!

nettiebeads Apprentice

I agree with nini. Couldn't the dr give a gluten intolerance dx or something based on diet results? I was dx'd via diet alone and that's been fine for all of my drs since. Anyhow, I'm so happy she's doing better.

Annette


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

That's fabulous, I am so happy for you! And I agree with Nini, too, don't EVER do a gluten challenge with her, which will set her back and make her ill again, and who needs it?

Guest nini

yeah, my daughter's chart says "gluten intolerance" I will never ever ever challenge her with gluten as even accidental ingestion makes her very ill. I have had no problems with school so far with the gluten intolerant dx...

wolfie Enthusiast

That is awesome that she is improving so quickly!! :)

I agree with the others....don't know that I would do the gluten challenge. I don't have an official DX either, but I don't care. I know that gluten makes me sick, that is enough for me. I tested the waters by eating 1 triscuit and was sick. My kids ped had wanted me to have an official dx before testing my kids. I told him my experience with the triscuit and has now at least tested my son. We haven't tested DD yet b/c she is 3 and doesn't show any symptoms. If DS comes back positive, she will be tested.

wonkabar Contributor

That's super!! How nice is it that you have the support of your ped gi??!! :) After being off gluten for just a few days, my 3 year old showed major signs of improvement, too. Isn't it the best when you finally figure out the answer!!??

--Kristy :)

Guest momx3

That is awesome! Isn't it amazing to see the difference? My 14 mo old has been gluten free for a few weeks now, no official diagnosis. He is suddenly a chubby, happy baby! His D & skin have cleared up, no more clinginess, you can tell he just feels better. The turn-around is instant, and nothing short of miraculous. Good luck, sounds like you have a great doc, too! :D

kenyonsmommy Rookie

Thats great news for you. An official diagnosis is not a great experience for a young child. My son went through a CAT scan, upper GI, x-rays, bloodwork then an edoscopy/biopsy before his diagnosis. It broke my heart each time we had to subject him to another test, but we were floundering. He is now @ 4 weeks gluten free and is doing amazing. Don't mess with success.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.