Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Is On Your Not-my-friend List?

penguin

Recommended Posts

penguin Community Regular
penguin
Posted

On the verge of going back to being gluten-free, I'm remembering all the companies that are on my "not-my-friend" list, in that they said their products were gluten-free and they weren't. Here's what I got:

Amy's

(everything but rice mac & cheese)

Bob's Red Mill

(all-purpose gluten-free flour mix)

Pamela's

(baking mix)

Kellogg's

(on principle)

Who's on your list? :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 51
  • Created
  • Last Reply
bklynceliac Apprentice
bklynceliac
Posted

Mi-del. I've had problems with their cookies several times.

jerseyangel Proficient
jerseyangel
Posted

Some Whole Foods 365 Brand products.

I've gotten reactions from their Almond Butter, Digestive Enzymes and a couple other things.

When this happened with the almond butter, I called and inquired (complained). They sent me packaging and postage and asked me to send it to a lab at the U of Nebraska. I heard back from them that there was no gluten detected in the product, but that they only check to 200 ppm. <_<

Nantzie Collaborator
Nantzie
Posted

Amy's - I'm hoping that they fix their problems, but I got SO sick. The worst glutening I've gotten so far. I don't know if I'd have the guts (HA!) try them again.

VydorScope Proficient
VydorScope
Posted

Danon, Qaucker, Purity.

CarlaB Enthusiast
CarlaB
Posted

Oral B and Ritter's Frozen Custard ... it irritates me when companies won't tell you what's in their product so that you can be the one to decide if you want to take the risk or not! There is a risk in almost everything we eat, and these two companies just say, "We can't help you." If everyone did that, we would starve and have dirty teeth!!

I won't eat Lay's Stax because I've heard the risk of cc for casein is high.

tarnalberry Community Regular
tarnalberry
Posted

Quaker, Blue Diamond (about the onlly thing that I've reacted to that most people haven't - usually, it's the other way 'round)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted

WE eat Pamela's pancakes everyday for 15 months now. At least 5 days a week. I have never had a problem with them having gluten. I haven't contacted them though. IS there some risk of gluten? Where are they processed?

Amy's, possibly.

Lay's regular chips, something with them doesn't agree with me. I can eat UTZ's though.

Monica

angel-jd1 Community Regular
angel-jd1
Posted

Quaker

Arby's

Steak N Shake (conflicting info on their website I've never actually eaten there)

-Jessica :rolleyes:

Kaycee Collaborator
Kaycee
Posted

I don't trust any company who will not reply to my emails.

Most companies are good and wonderful with their replies, even if they state their food has gluten in it, I appreciate them giving me the advice. But there have been a couple of companies who have not even replied. They are small companies, but that is no excuse. So I treat their products as having gluten in them, even if I do not get a response from them. They are not user friendly!

Cathy

DingoGirl Enthusiast
DingoGirl
Posted

Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

jesscarmel Enthusiast
jesscarmel
Posted
Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

I ate the cheese enchilladas a few weeks ago and was okay and the pizza and was fine so i geuss everyone is different or maybe some are contaminated and some are not.......

elonwy Enthusiast
elonwy
Posted

Amy's has been having issues. The pizza is made in a dedicated facility but the rest is not. I was fine, then this weekend was made really sick by the cheese enchiladas, now I'm going to wait til they work it out.

I love Blue Diamond nut thins, they've never given me a problem.

I don't trust Hersheys. The only thing that's never made me sick is the plain chocolate bar and the plain kisses. Everything else makes me sick.

Elonwy

jkmunchkin Rising Star
jkmunchkin
Posted

Believe it or not I once got really sick from the Gluten Free Pantry Truffle Brownie mix and although I haven't eaten it again I'm not afraid to try their other products. I'm not sure why or how I reacted to it, but I did. So I just stay away from that product.

I'll occassionally eat the rice cakes, but I'm leery of Quaker.

penguin Community Regular
penguin
Posted
  • Author

Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

taz sharratt Enthusiast
taz sharratt
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

is kettle chips ok or not :unsure: i have them a lot but am wondering if they may be causeing trouble :blink:

LKelly8 Rookie
LKelly8
Posted

(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

floridanative Community Regular
floridanative
Posted

Quaker because after eating their quick grits twice and getting bloated both times, I finally called them even though clearly their label indicated no possible gluten. This was before I knew about cc at factories. So their response was to almost yell at me saying if I have Celiac I can NOT eat any of their products. With that kind of attitude I said no problem and hung up. I now eat Arrowhead Mill grits but noticed that Jim Dandy grits started marking their labels - may contain wheat and milk. Thank you!

Katja Rookie
Katja
Posted
(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

I checked on Kettle's Website since I am huge fan of their new "bakes" chips and have been eating them quite a bit with (I think!?!) no problems.

Are your products gluten free?

Our products are processed on equipment shared with ingredients that contain very small amounts of wheat. We thoroughly clean our lines after each flavor run, but there is a slight potential of cross contamination. For your convenience we do list all ingredients on the packaging.

Open Original Shared Link

flagbabyds Collaborator
flagbabyds
Posted

halls! for sure made me soooooooooooosoooooooooooooooooooooo sick one time

PF changs, sent me into anaphalytic shock from the leftovers that they used the same spoons on everyone's ALWAYS make your own leftovers at YOUR table

amy's for sure

i can think of more later.

Katja Rookie
Katja
Posted
And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

uh oh!!! REALLY? I have been wrecking my brain as to why I am so tired and exhausted? Did you have the dark chocolate ones? (can't do dairy, so I stay away from any milk chocolate!)

lindalee Enthusiast
lindalee
Posted
Danon, Qaucker, Purity.

Tell me its not Danon yogurt please. I want to make my own but haven't figured it out with my maker yet.

lindalee Enthusiast
lindalee
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

Haven't done any of those since gluten-free except Outback at Nags Head - ordered off the gluten-free menu and the grilled lobster tail made me sick after one bite and the salad had croutons.

Sarah8793 Enthusiast
Sarah8793
Posted

Lara Bars,

Some Lay's potato chips

And, I too seem to react to many products that are labeled Gluten-Free. I am getting to the point where I am suspicious of any processed food. And I'm afraid to eat out anywhere.

elonwy Enthusiast
elonwy
Posted

The only Dannon that is ok is the plain one. From Dannon:

Gluten: This protein is found in wheat, oats, rye and barley. DANNON yogurt products are not formulated to contain gluten, but they can't be considered gluten free. The natural system for stabilizing flavor might contain ingredients derived from gluten sources. Since there is a current lack of consensus on individual sensitivity levels to gluten, and there are no accurate tests to detect the presence and amount of gluten, DANNON yogurt cannot be classified as "gluten free"

Yoplait is ok, just read the ingredients. The only ones that I've found with gluten are the ones with cookies and granola.

Elonwy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.