Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Is On Your Not-my-friend List?

penguin

Recommended Posts

penguin Community Regular
penguin
Posted

On the verge of going back to being gluten-free, I'm remembering all the companies that are on my "not-my-friend" list, in that they said their products were gluten-free and they weren't. Here's what I got:

Amy's

(everything but rice mac & cheese)

Bob's Red Mill

(all-purpose gluten-free flour mix)

Pamela's

(baking mix)

Kellogg's

(on principle)

Who's on your list? :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 51
  • Created
  • Last Reply
bklynceliac Apprentice
bklynceliac
Posted

Mi-del. I've had problems with their cookies several times.

jerseyangel Proficient
jerseyangel
Posted

Some Whole Foods 365 Brand products.

I've gotten reactions from their Almond Butter, Digestive Enzymes and a couple other things.

When this happened with the almond butter, I called and inquired (complained). They sent me packaging and postage and asked me to send it to a lab at the U of Nebraska. I heard back from them that there was no gluten detected in the product, but that they only check to 200 ppm. <_<

Nantzie Collaborator
Nantzie
Posted

Amy's - I'm hoping that they fix their problems, but I got SO sick. The worst glutening I've gotten so far. I don't know if I'd have the guts (HA!) try them again.

VydorScope Proficient
VydorScope
Posted

Danon, Qaucker, Purity.

CarlaB Enthusiast
CarlaB
Posted

Oral B and Ritter's Frozen Custard ... it irritates me when companies won't tell you what's in their product so that you can be the one to decide if you want to take the risk or not! There is a risk in almost everything we eat, and these two companies just say, "We can't help you." If everyone did that, we would starve and have dirty teeth!!

I won't eat Lay's Stax because I've heard the risk of cc for casein is high.

tarnalberry Community Regular
tarnalberry
Posted

Quaker, Blue Diamond (about the onlly thing that I've reacted to that most people haven't - usually, it's the other way 'round)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted

WE eat Pamela's pancakes everyday for 15 months now. At least 5 days a week. I have never had a problem with them having gluten. I haven't contacted them though. IS there some risk of gluten? Where are they processed?

Amy's, possibly.

Lay's regular chips, something with them doesn't agree with me. I can eat UTZ's though.

Monica

angel-jd1 Community Regular
angel-jd1
Posted

Quaker

Arby's

Steak N Shake (conflicting info on their website I've never actually eaten there)

-Jessica :rolleyes:

Kaycee Collaborator
Kaycee
Posted

I don't trust any company who will not reply to my emails.

Most companies are good and wonderful with their replies, even if they state their food has gluten in it, I appreciate them giving me the advice. But there have been a couple of companies who have not even replied. They are small companies, but that is no excuse. So I treat their products as having gluten in them, even if I do not get a response from them. They are not user friendly!

Cathy

DingoGirl Enthusiast
DingoGirl
Posted

Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

jesscarmel Enthusiast
jesscarmel
Posted
Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

I ate the cheese enchilladas a few weeks ago and was okay and the pizza and was fine so i geuss everyone is different or maybe some are contaminated and some are not.......

elonwy Enthusiast
elonwy
Posted

Amy's has been having issues. The pizza is made in a dedicated facility but the rest is not. I was fine, then this weekend was made really sick by the cheese enchiladas, now I'm going to wait til they work it out.

I love Blue Diamond nut thins, they've never given me a problem.

I don't trust Hersheys. The only thing that's never made me sick is the plain chocolate bar and the plain kisses. Everything else makes me sick.

Elonwy

jkmunchkin Rising Star
jkmunchkin
Posted

Believe it or not I once got really sick from the Gluten Free Pantry Truffle Brownie mix and although I haven't eaten it again I'm not afraid to try their other products. I'm not sure why or how I reacted to it, but I did. So I just stay away from that product.

I'll occassionally eat the rice cakes, but I'm leery of Quaker.

penguin Community Regular
penguin
Posted
  • Author

Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

taz sharratt Enthusiast
taz sharratt
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

is kettle chips ok or not :unsure: i have them a lot but am wondering if they may be causeing trouble :blink:

LKelly8 Rookie
LKelly8
Posted

(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

floridanative Community Regular
floridanative
Posted

Quaker because after eating their quick grits twice and getting bloated both times, I finally called them even though clearly their label indicated no possible gluten. This was before I knew about cc at factories. So their response was to almost yell at me saying if I have Celiac I can NOT eat any of their products. With that kind of attitude I said no problem and hung up. I now eat Arrowhead Mill grits but noticed that Jim Dandy grits started marking their labels - may contain wheat and milk. Thank you!

Katja Rookie
Katja
Posted
(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

I checked on Kettle's Website since I am huge fan of their new "bakes" chips and have been eating them quite a bit with (I think!?!) no problems.

Are your products gluten free?

Our products are processed on equipment shared with ingredients that contain very small amounts of wheat. We thoroughly clean our lines after each flavor run, but there is a slight potential of cross contamination. For your convenience we do list all ingredients on the packaging.

Open Original Shared Link

flagbabyds Collaborator
flagbabyds
Posted

halls! for sure made me soooooooooooosoooooooooooooooooooooo sick one time

PF changs, sent me into anaphalytic shock from the leftovers that they used the same spoons on everyone's ALWAYS make your own leftovers at YOUR table

amy's for sure

i can think of more later.

Katja Rookie
Katja
Posted
And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

uh oh!!! REALLY? I have been wrecking my brain as to why I am so tired and exhausted? Did you have the dark chocolate ones? (can't do dairy, so I stay away from any milk chocolate!)

lindalee Enthusiast
lindalee
Posted
Danon, Qaucker, Purity.

Tell me its not Danon yogurt please. I want to make my own but haven't figured it out with my maker yet.

lindalee Enthusiast
lindalee
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

Haven't done any of those since gluten-free except Outback at Nags Head - ordered off the gluten-free menu and the grilled lobster tail made me sick after one bite and the salad had croutons.

Sarah8793 Enthusiast
Sarah8793
Posted

Lara Bars,

Some Lay's potato chips

And, I too seem to react to many products that are labeled Gluten-Free. I am getting to the point where I am suspicious of any processed food. And I'm afraid to eat out anywhere.

elonwy Enthusiast
elonwy
Posted

The only Dannon that is ok is the plain one. From Dannon:

Gluten: This protein is found in wheat, oats, rye and barley. DANNON yogurt products are not formulated to contain gluten, but they can't be considered gluten free. The natural system for stabilizing flavor might contain ingredients derived from gluten sources. Since there is a current lack of consensus on individual sensitivity levels to gluten, and there are no accurate tests to detect the presence and amount of gluten, DANNON yogurt cannot be classified as "gluten free"

Yoplait is ok, just read the ingredients. The only ones that I've found with gluten are the ones with cookies and granola.

Elonwy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ? I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet. Rebound muscle pain so intense ...
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
    3. dixonpete
      0

      Inoculation and video development

    4. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    5. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748
    K M
    Newest Member
    K M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Oh my goodness medication causing pain !!!!

      By Colleen H · Posted

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.