Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Old? Celiac For How Long?


swittenauer

How old are you?  

63 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

swittenauer Enthusiast

I was just curious as to how old everyone is in here? I didn't really know if there was more of a certain age bracket that visited this site or not.

I am 34 but my husband is 40. He was diagnosed just over a year ago so we are still newbies at this whole Celiac thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Age 25 and tomorrow is my 2 year gluten free anniversary!

swittenauer Enthusiast
Age 25 and tomorrow is my 2 year gluten free anniversary!

Well, congratulations! I hope all has been going well with you being gluten free.

AndreaB Contributor

Susan,

I don't have an official diagnosis. Got tested by enterolab and got the results this past June....been totally gluten free since. Was gluten light for 2 months prior to that due to allergy test results.

Ursa Major Collaborator

I'm 53, and self-diagnosed myself ten months ago, still struggling but much better. But I've had celiac disease symptoms all my life, at least from the age of three. Too bad doctors are so clueless.

CarlaB Enthusiast

Symptoms my whole life.

First emergency room visit for it at 20, college roommate took me there because I only got out of bed for classes. Many throughout the past 23 years always relating to celiac symptoms, usually dehydration.

Diagnosed by Enterolab, doc accepts dietary response.

43 years old.

jerseyangel Proficient

I was diagnosed last year on June 2nd at the age of 49.

This was after over 20 years of illness and misdiagnoses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2Boys4Me Enthusiast

I voted for Ty. He's 6 (& 3/4). He was 5 3/4 at diagnosis. His gluten-free anniversary was Aug. 18th.

He was diagnosed because we were trying to find out why he was so tired all the time and was such a lightweight. I think he was about 25th percentile for height and below zero for weight if you agree that everyone should fit somewhere on a chart. He had crazy low iron levels. 3 when he should have been in a range of 10 - 110.

I put one to two years gluten-free, but really barely over a year. Ty's on the left in the photo.

morganb Newbie

I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Guest ~jules~

I'm 30, was diganosed last week :(

jkmunchkin Rising Star

I'm 28 and was diagnosed just over a year ago, but was sick for about 10 years.

swittenauer Enthusiast
I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

Oops! I meant to say 18 & under.

morganb Newbie
Oops! I meant to say 18 & under.

It's alright....I should have figured that....I'll take half the blame :) 18 & under is what would make sense.

Guest Viola

Age 60, gluten free 17 years

flagbabyds Collaborator

age 16

14 years gluten-free (15 in feb.)

mouse Enthusiast

Age 64. Gluten free since Feb. 3rd, 2004.

natalunia Rookie

Age 29, diagnosed 3 months ago, been gluten free for 4 months.

KaitiUSA Enthusiast

Age 19. Diagnosed in Jan of 2004

IrishKelly Contributor

Age 28, diagnosed 2 months ago, gluten free for almost the past 2 months.

Carriefaith Enthusiast

I am now 25 and I was diagnosed in March 2004 (2.5 years).

LKelly8 Rookie

I'm 37 and I was diagnosed June of '05 by biopsy after five years of mis(sed)diagnosis and negative celiac blood panels.

My mother's 69 and was diagnosed in 1938.

  • 4 months later...
swittenauer Enthusiast

Wow, 1938. Some doctor had his stuff together.

darlindeb25 Collaborator

I am 51 and am self diagnosed--gluten-free for over 5 yrs now. Have a sister diagnosed 4 months before me and our dad has been gluten-free for a little over 2 yrs now. We all had been sick for years and years!

Katie618 Apprentice

i'm 21 and was diagnosed in may 06, been gluten free for 6 months -- never really felt sick before that, was diagnosed becasue my iron levels were really low (they've been low since high school) but in retrospect, definately displayed symptoms

plantime Contributor

age 42, officially diagnosed Sept. 15, 2004, glutenfree since February 14, 2004.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,927
    • Most Online (within 30 mins)
      7,748

    drw80whz
    Newest Member
    drw80whz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.