Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Ask For A Prayer Too?

TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mouse Enthusiast
mouse
Posted

Of course I will put your son into my daily prayers. Good Luck with the doctor appt.

jenvan Collaborator
jenvan
Posted

Stephanie--

I will pray. That's a lot for a little guy to handle...

jerseyangel Proficient
jerseyangel
Posted

I'll say a prayer for your son--sending good thoughts and a hug your way :)

jennyj Collaborator
jennyj
Posted

Your son and family will be in my prayers. I believe in prayer.

TCA Contributor
TCA
Posted

You, him, and the rest of your family will be in my prayers. I really do understand. Feel free to PM me if I can help in ANY way. My daughter just had her 2nd open heart surgery, so I'm here if you have any questions or anything.

brizzo Contributor
brizzo
Posted

my prayers are with you and your family! May God's blessing be upon you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted

You got it Stephanie.

judy

BamBam Community Regular
BamBam
Posted
If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

I will put him on our church prayer network, there are dozens of people praying every evening for the intentions that come through. I will also includ him in my prayers also.

Bernadette

Green12 Enthusiast
Green12
Posted
If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

Stephanie, you and your son will definitely be in my thoughts :) I am hoping the appointment goes well tomorrow, please keep us posted.

lindalee Enthusiast
lindalee
Posted

Stephanie, I will keep you all in my prayers. LL

evie Rookie
evie
Posted

[stephanie; I am sorry you are all going tru such a rough time, include my prayers for you, son and the Dr. tomorrow. Hope all works out smoothly/ not too much more anxiety. I will pm/ you if you like. :) 'God is good' evie

Guest Robbin
Guest Robbin
Posted

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

Rachel--24 Collaborator
Rachel--24
Posted

Stephanie,

Of course....I'll be praying for that adorable little boy of yours.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Prayer said!

If it helps any, we were told this year that our son (who had open-heart surgery at 9 years ago) that he now has a dilated aorta and mitral valve prolapse. This was told to us by the doctor who replaced the cardiologist who had taken care of him since he was 7 weeks old.

We went back to the old cardiologist (who had moved 2 hours away), who disagreed with the new cardiologist. He said that since DS had had open-heart surgery through the aorta, it was expected that it appear slightly dilated, but that even so, he wouldn't call it a dilated aorta. He also went over measurements and definitions and explained in great detail why he didn't think DS had mitral valve prolapse, either.

Perhaps your cardiologist is being ultra-cautious? It might not hurt to get a second opinion. Our DS's cardiologist is in Danville,PA--pm me if you'd like his name--we've always thought he was wonderful. Good luck!

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

COuld you update me on evie? I'm a little out of the loop, I'm afraid...

tiredofdoctors Enthusiast
tiredofdoctors
Posted

The power of prayer is an amazing thing . . . consider me on the prayer list -- may your family be blessed with the healing of your son.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

You're doing pretty much the same things I did--go to the doctor, get nervous, fall apart when the baby cries, etc.

Did you ever find out why he cried?

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

No, he just got upset. He didnt like being held there I imagine. When he was just a baby, 3 months early, he was a lot more cooperative with all their procedures. Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!

Judyin Philly Enthusiast
Judyin Philly
Posted

Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!

HI Setef...smart kid i'd say. glad the apt is over and it went well esp with the Chillies.

judy

Lymetoo Contributor
Lymetoo
Posted

Will do!!

evie Rookie
evie
Posted
OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)

So glad your appt went as well as did. Colin just did not like the looks of that place, old enoigh now to notice

things like that. Did you know we have a way here of sending out prayers that really help?? :o Hope you are OK too!! evie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,019
    • Most Online (within 30 mins)
      7,748
    Sandra.M
    Newest Member
    Sandra.M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Dora77
      Possible cross-contamination – concerned about symptoms

      By Dora77 · Posted

      Hi everyone, I have celiac disease and I’m asymptomatic, which makes things more stressful because I don’t know when I’ve been glutened. That’s why I try to be really careful with cross-contamination. For almost a year, I’ve been having yellow/orange floating stools consistently. I’m not sure if it’s related to gluten exposure or something else going on. I’ve been trying to identify any possible mistakes in my routine. Today, I made myself some gluten-free bread with cheese. Normally, I’m very careful: I use one hand to handle the cheese packaging (which could be contaminated, since it’s from the supermarket and was probably sitting on a checkout belt that had flour residue), and the other hand to touch my gluten-free bread and plate. But today I accidentally touched the bread with the same hand I used to grab the cheese pack from the fridge. The fridge handle might also have traces of gluten since I live in a shared household where gluten is used. I’m worried this mistake could have contaminated my bread. There were no visible crumbs or flour, but I know even trace amounts can be a problem. Has anyone had similar experiences or symptoms from this level of contact? Could this kind of exposure be enough to trigger symptoms or cause intestinal damage? Thanks for reading.
    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill certified gluten-free. Good luck everybody this autoimmune disease is wicked wicked
    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
    • ShariW
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By ShariW · Posted

      These look great!  I follow several people who frequently post gluten-free recipes online (plus they sell their cookbooks). "Gluten Free on a Shoestring" and "Erin's Meaningful Eats>"
    • Scott Adams
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By Scott Adams · Posted

      Sounds great, we also have lots of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/
×
×
  • Create New...