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Cbs News Story

floridanative

By floridanative
in Publications & Publicity

Recommended Posts

beaglemania Rookie
beaglemania
Posted

I am sooo happy about that Celiac Disease news piece!! I sent an email to CBS thanking them for showing the piece and educating the public about celiac disease!!!

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  • Replies 97
  • Created
  • Last Reply
GFBetsy Rookie
GFBetsy
Posted
Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

There's a gluten free store in Taylorsville, UT. It's called Against the Grain, and they only carry gluten-free stuff. The owner's not making a ton of money for herself, but she is able to pay her rent and keeps up the store so that when others are diagnosed they've got a resource to help them out as they start the diet. It's great!

Turtle Enthusiast
Turtle
Posted

I sent CBS a thank you e-mail!!

AndreaB Contributor
AndreaB
Posted

Ok, stupid question.

Where on the cbs site do you click to send an email. I didn't see anything offhand.

beaglemania Rookie
beaglemania
Posted

IT at the bottom of the page on a blue toolbar. click contact us and a little window will pop up where u can write a comment.

Turtle Enthusiast
Turtle
Posted

I sent mine to evening@cbsnews.com

Hopefully this will get to the right person! I found it under the "contact us" section on their website!

Guest nini
Guest nini
Posted

is there anyone else running Firefox? I can't get RealPlayer10 to play the video, it doesn't recognize the format... aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaagggggggggggggggggggggghhhhhhhhhhhhhhhhhhh

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AndreaB Contributor
AndreaB
Posted

Nisla,

I couldn't get it to run from the links posted here. I went to www.cbsnews.com and scrolled down to find the Celiac video.

2Boys4Me Enthusiast
2Boys4Me
Posted

Okay, okay....I take back my comment about the gluten-free store being a set. I'll just say that I've never seen one in real life. B)

Matilda Enthusiast
Matilda
Posted

...

Guest nini
Guest nini
Posted
Nisla,

I couldn't get it to run from the links posted here. I went to www.cbsnews.com and scrolled down to find the Celiac video.

I tried that, I still couldn't get it to play. Couldn't get ANY of their videos to play. My OS plays videos from Google, YouTube and CNN with no problems...

happygirl Collaborator
happygirl
Posted

LindaLee-

2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com? That is a great place too---kind of a co-op for the area. Love it, too.

I love that Farm Fresh carries a bunch of stuff, too...the new one on Independence is wonderful, also.

I'll ask my mom where the gluten free place is in PA. They live outside of Harrisburg, in Mechanicsburg. I want to say the place is near Dillsburg, PA. There was an article in the Harrisburg newspaper about it, which is how she heard about it.

I'm actually in the process of moving, but I'll get the info and PM ya once I have settled....leaving Virginia Beach for Northern VA. Sad to leave the beach.......

Laura

beaglemania Rookie
beaglemania
Posted

Me and my dad just laughed when the little girl said yest, that a substitute could be found for everything she wanted in that store! I'm thinking, hmmm.... I could really go for a soft pretzel right now, wonder if they have some in there??

*yes* lol

LKelly8 Rookie
LKelly8
Posted
2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com?

Ok. I need glasses. :blink: I missed the "de" in "organicdepot.com". I reread that first paragraph 3 times before I caught it.

:lol::lol::lol:

jaten Enthusiast
jaten
Posted
is there anyone else running Firefox? I can't get RealPlayer10 to play the video, it doesn't recognize the format... aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaagggggggggggggggggggggghhhhhhhhhhhhhhhhhhh

Yes, I run Firefox as my primary browser, but often I run into a glitch with videos, espectially from the msn site. IF your computer has a Windows OS, though you should have Internet Explorer even if you're not using it. (Look around, I bet it's there.) There's even a Firefox plugin that you can download that will allow you to right-click and choose (Open this window in IE) It's not necessary though. Just open the IE browser if you're running a Windows OS. I do have that plugin for just such instances...it's convenient. In fact, when I got ready to view this video, I didn't even try from Firefox. Rt-click, poof, I'm in IE; watch the video; close IE; poof I'm back in Firefox.

You can flip back and forth between browsers painlessly. I hope this helps you! The video is GREAT!

Gamecreature Rookie
Gamecreature
Posted

There appears to be something wrong with the way the video is embedded in the page. I'm using Firefox and I can't view the video on the website.

HOWEVER

I used their link to send the video to me via email and the resulting link plays fine. Give this a try:

Open Original Shared Link

mommida Enthusiast
mommida
Posted

It was a great segment! I got teary eyed too. :blink:

We have two gluten free stores here in Mi., Celiac Specialties of Chesterfield and Bel Cibo, in Clawson. They also have eat in tables. Chef Andrew, Bel Cibo, will make you a hot fresh pizza and other entrees to go. :P:D

L.

Guest nini
Guest nini
Posted
Yes, I run Firefox as my primary browser, but often I run into a glitch with videos, espectially from the msn site. IF your computer has a Windows OS, though you should have Internet Explorer even if you're not using it. (Look around, I bet it's there.) There's even a Firefox plugin that you can download that will allow you to right-click and choose (Open this window in IE) It's not necessary though. Just open the IE browser if you're running a Windows OS. I do have that plugin for just such instances...it's convenient. In fact, when I got ready to view this video, I didn't even try from Firefox. Rt-click, poof, I'm in IE; watch the video; close IE; poof I'm back in Firefox.

You can flip back and forth between browsers painlessly. I hope this helps you! The video is GREAT!

I'm not using Windows, I'm using Linspire (Linux) OS...

There appears to be something wrong with the way the video is embedded in the page. I'm using Firefox and I can't view the video on the website.

HOWEVER

I used their link to send the video to me via email and the resulting link plays fine. Give this a try:

Open Original Shared Link

that didn't work either :(

lindalee Enthusiast
lindalee
Posted
LindaLee-

2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com? That is a great place too---kind of a co-op for the area. Love it, too.

I love that Farm Fresh carries a bunch of stuff, too...the new one on Independence is wonderful, also.

I'll ask my mom where the gluten free place is in PA. They live outside of Harrisburg, in Mechanicsburg. I want to say the place is near Dillsburg, PA. There was an article in the Harrisburg newspaper about it, which is how she heard about it.

I'm actually in the process of moving, but I'll get the info and PM ya once I have settled....leaving Virginia Beach for Northern VA. Sad to leave the beach.......

Laura

Thanks Laura, I'll check it out. Call me when you come back and we'll get together. Best Wishes on your move and new job.

mythreesuns Contributor
mythreesuns
Posted

I was very impressed with the coverage, the whole story. However, my only fear is that all these people will push to get tested and only get the standard blood test and be told they DON'T have it (like I was) and then go on eating gluten.

I was hoping for some mention of the unreliability of the "standard" tests for gluten intolerance.

floridanative Community Regular
floridanative
Posted
  • Author

I e-mailed CBS as well....we all need to do so if we want to see a more comprehensive story on Celiac in the future. A CBS producer today could be working for NBC or ABC tomorrow. Producers get credit if a story gets a lot of feedback, especially if it's good.

Since Dr. Green was in the segment I figured his staff would know how it came about. One of his assistants told me via e-mail, that Dr. LaPook (sp?) works at Columbia too so he apparently knows Dr. Green. So kudos to both Dr. Green and Dr. LaPook for making this happen. I also sent Dr. Green a thank you e-mail to his staff anyway, who promised to pass it on. I said what we need now is Dr. Green and Danna Korn on Oprah...the doc can talk about the medical side of Celiac and Danna can show how the gluten free lifestyle can be tasty and fun as well, besides being healthy. Now if that ever happened, I'd probably faint so I'd have to be taping it - lol!

happygirl Collaborator
happygirl
Posted

I just wrote them, thanking them for such a wonderful and accurate story.

jerseyangel Proficient
jerseyangel
Posted

I emailed them the same night it aired.

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