Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cbs News Story


floridanative

Recommended Posts

beaglemania Rookie

I am sooo happy about that Celiac Disease news piece!! I sent an email to CBS thanking them for showing the piece and educating the public about celiac disease!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 97
  • Created
  • Last Reply
GFBetsy Rookie
Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

There's a gluten free store in Taylorsville, UT. It's called Against the Grain, and they only carry gluten-free stuff. The owner's not making a ton of money for herself, but she is able to pay her rent and keeps up the store so that when others are diagnosed they've got a resource to help them out as they start the diet. It's great!

Turtle Enthusiast

I sent CBS a thank you e-mail!!

AndreaB Contributor

Ok, stupid question.

Where on the cbs site do you click to send an email. I didn't see anything offhand.

beaglemania Rookie

IT at the bottom of the page on a blue toolbar. click contact us and a little window will pop up where u can write a comment.

Turtle Enthusiast

I sent mine to evening@cbsnews.com

Hopefully this will get to the right person! I found it under the "contact us" section on their website!

Guest nini

is there anyone else running Firefox? I can't get RealPlayer10 to play the video, it doesn't recognize the format... aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaagggggggggggggggggggggghhhhhhhhhhhhhhhhhhh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Nisla,

I couldn't get it to run from the links posted here. I went to www.cbsnews.com and scrolled down to find the Celiac video.

2Boys4Me Enthusiast

Okay, okay....I take back my comment about the gluten-free store being a set. I'll just say that I've never seen one in real life. B)

Matilda Enthusiast

...

Guest nini
Nisla,

I couldn't get it to run from the links posted here. I went to www.cbsnews.com and scrolled down to find the Celiac video.

I tried that, I still couldn't get it to play. Couldn't get ANY of their videos to play. My OS plays videos from Google, YouTube and CNN with no problems...

happygirl Collaborator

LindaLee-

2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com? That is a great place too---kind of a co-op for the area. Love it, too.

I love that Farm Fresh carries a bunch of stuff, too...the new one on Independence is wonderful, also.

I'll ask my mom where the gluten free place is in PA. They live outside of Harrisburg, in Mechanicsburg. I want to say the place is near Dillsburg, PA. There was an article in the Harrisburg newspaper about it, which is how she heard about it.

I'm actually in the process of moving, but I'll get the info and PM ya once I have settled....leaving Virginia Beach for Northern VA. Sad to leave the beach.......

Laura

beaglemania Rookie

Me and my dad just laughed when the little girl said yest, that a substitute could be found for everything she wanted in that store! I'm thinking, hmmm.... I could really go for a soft pretzel right now, wonder if they have some in there??

*yes* lol

LKelly8 Rookie
2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com?

Ok. I need glasses. :blink: I missed the "de" in "organicdepot.com". I reread that first paragraph 3 times before I caught it.

:lol::lol::lol:

jaten Enthusiast
is there anyone else running Firefox? I can't get RealPlayer10 to play the video, it doesn't recognize the format... aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaagggggggggggggggggggggghhhhhhhhhhhhhhhhhhh

Yes, I run Firefox as my primary browser, but often I run into a glitch with videos, espectially from the msn site. IF your computer has a Windows OS, though you should have Internet Explorer even if you're not using it. (Look around, I bet it's there.) There's even a Firefox plugin that you can download that will allow you to right-click and choose (Open this window in IE) It's not necessary though. Just open the IE browser if you're running a Windows OS. I do have that plugin for just such instances...it's convenient. In fact, when I got ready to view this video, I didn't even try from Firefox. Rt-click, poof, I'm in IE; watch the video; close IE; poof I'm back in Firefox.

You can flip back and forth between browsers painlessly. I hope this helps you! The video is GREAT!

Gamecreature Rookie

There appears to be something wrong with the way the video is embedded in the page. I'm using Firefox and I can't view the video on the website.

HOWEVER

I used their link to send the video to me via email and the resulting link plays fine. Give this a try:

Open Original Shared Link

mommida Enthusiast

It was a great segment! I got teary eyed too. :blink:

We have two gluten free stores here in Mi., Celiac Specialties of Chesterfield and Bel Cibo, in Clawson. They also have eat in tables. Chef Andrew, Bel Cibo, will make you a hot fresh pizza and other entrees to go. :P:D

L.

Guest nini
Yes, I run Firefox as my primary browser, but often I run into a glitch with videos, espectially from the msn site. IF your computer has a Windows OS, though you should have Internet Explorer even if you're not using it. (Look around, I bet it's there.) There's even a Firefox plugin that you can download that will allow you to right-click and choose (Open this window in IE) It's not necessary though. Just open the IE browser if you're running a Windows OS. I do have that plugin for just such instances...it's convenient. In fact, when I got ready to view this video, I didn't even try from Firefox. Rt-click, poof, I'm in IE; watch the video; close IE; poof I'm back in Firefox.

You can flip back and forth between browsers painlessly. I hope this helps you! The video is GREAT!

I'm not using Windows, I'm using Linspire (Linux) OS...

There appears to be something wrong with the way the video is embedded in the page. I'm using Firefox and I can't view the video on the website.

HOWEVER

I used their link to send the video to me via email and the resulting link plays fine. Give this a try:

Open Original Shared Link

that didn't work either :(

lindalee Enthusiast
LindaLee-

2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com? That is a great place too---kind of a co-op for the area. Love it, too.

I love that Farm Fresh carries a bunch of stuff, too...the new one on Independence is wonderful, also.

I'll ask my mom where the gluten free place is in PA. They live outside of Harrisburg, in Mechanicsburg. I want to say the place is near Dillsburg, PA. There was an article in the Harrisburg newspaper about it, which is how she heard about it.

I'm actually in the process of moving, but I'll get the info and PM ya once I have settled....leaving Virginia Beach for Northern VA. Sad to leave the beach.......

Laura

Thanks Laura, I'll check it out. Call me when you come back and we'll get together. Best Wishes on your move and new job.

mythreesuns Contributor

I was very impressed with the coverage, the whole story. However, my only fear is that all these people will push to get tested and only get the standard blood test and be told they DON'T have it (like I was) and then go on eating gluten.

I was hoping for some mention of the unreliability of the "standard" tests for gluten intolerance.

floridanative Community Regular

I e-mailed CBS as well....we all need to do so if we want to see a more comprehensive story on Celiac in the future. A CBS producer today could be working for NBC or ABC tomorrow. Producers get credit if a story gets a lot of feedback, especially if it's good.

Since Dr. Green was in the segment I figured his staff would know how it came about. One of his assistants told me via e-mail, that Dr. LaPook (sp?) works at Columbia too so he apparently knows Dr. Green. So kudos to both Dr. Green and Dr. LaPook for making this happen. I also sent Dr. Green a thank you e-mail to his staff anyway, who promised to pass it on. I said what we need now is Dr. Green and Danna Korn on Oprah...the doc can talk about the medical side of Celiac and Danna can show how the gluten free lifestyle can be tasty and fun as well, besides being healthy. Now if that ever happened, I'd probably faint so I'd have to be taping it - lol!

happygirl Collaborator

I just wrote them, thanking them for such a wonderful and accurate story.

jerseyangel Proficient

I emailed them the same night it aired.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,365
    • Most Online (within 30 mins)
      7,748

    NAC
    Newest Member
    NAC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...