Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wonderful Story

happygirl

By happygirl
in Coping with Celiac Disease

Recommended Posts

happygirl Collaborator
happygirl
Posted

I was in my best friend's wedding this past weekend in PA. Something awesome happened and I had to share:

Many of you on the board know that I am having post-Celiac/non-Celiac related health problems as of recently (February), with my problems increasing in the past few months. I have lost a great deal of weight and my parents have moved in with me to help me out (just moved to take a new job and husband has not moved yet). I have given up much in my life but refused to give up this wedding. I've been friends with Meg since I moved to PA when I was 16 and she was the maid of honor in mine...and I was the matron in hers.

At the reception, after I gave the toast and dinner started (I brought my own food because of my multiple food reactions), I found out that Meghan and Brian had done something for me as a surprise. Instead of using money to buy favors for the wedding guests, they instead chose to make a donation to the Celiac Disease Foundation in my name. They said they wanted to do something for me, since they know what I have been going through, and thought it was the best way to honor me. They had a write up about it (didn't mention me by name because they didn't want to call attention to me) and placed it in a 5x7 frame that was on the main table for everyone to see when they came in (to get the name and table assignment).

They didn't tell me until after my toast because they didn't want to have me start crying...but my parents were there and had seen me, and finally told me....my mom cried, then I cried, then I found Meghan and Brian, and she cried, and etc etc etc. Apparently the whole wedding party knew but hadn't told me so I could get through my toast...and wanted it to be a surprise. Talk about the best surprise and the most thoughtful thing anyone has ever done for me...and in honor of Celiac and my health....makes it all the more special.

I just had to share, because the world in general, is not accepting or necessarily supportive of Celiac...but there are people out there who are wonderful and good-hearted! What a great weekend it was!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aerin328 Apprentice
Aerin328
Posted

That's an awesome story!

jmengert Enthusiast
jmengert
Posted

Just reading that brought tears to my eyes; what a wonderful best friend you have, and what a great story!

Guest nini
Guest nini
Posted

now that is heartwarming! thanks for sharing

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Wow.. that is such a great story. I too have tears in my eyes. They must be such special friends.. what a touching thing to do.. you are a very lucky woman to have such great people in your life. Sounds like they are truly blessings..

tarnalberry Community Regular
tarnalberry
Posted

That is really awesome of them! I'm glad you were able to make it to the wedding.

happygirl Collaborator
happygirl
Posted
  • Author

Honestly, I wish everyone could've been there to see it. It was so overwhelming and wonderful. They had done so many things to try to make the weekend easy for me and this was just the icing on the cake. I even took a picture with the frame (which they sent home with me). Her family and his family was so supportive of me. Apparently, Meg and Brian had told them all of what I have been going through recently, so I had people that I had never met (parts of his family) were coming up and telling me they were praying for me to find answers, and they hoped that I got better, etc. It was honestly just an amazing night....I am so lucky to have friends and family like that!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


i canary Rookie
i canary
Posted

Thanks for sharing your wonderful story. I've gotta go find a kleenex, my eyes are leaking....

Guhlia Rising Star
Guhlia
Posted

Yup, me too... A little misty over here. What an awesome story and an even MORE awesome friend.

Guest zoomom
Guest zoomom
Posted

You must have some wonderful friends!

Thanks for sharing,

Robin

SchnauzerMom Rookie
SchnauzerMom
Posted

What kind and thoughtful friends you have. Thanks for sharing with us.

Lisa Mentor
Lisa
Posted

Laura, keep those special people close. :)

Judyin Philly Enthusiast
Judyin Philly
Posted

Laura

you sure deserve all the kindness shown by your dear friends.

So happy you had such a great tribute and good time at the wedding.

thanks so sharing with us this wonderful story.

hugs

judy

Ursa Major Collaborator
Ursa Major
Posted

Wow, now you made me cry, too. :rolleyes: How wonderful.

jayhawkmom Enthusiast
jayhawkmom
Posted

Woops.... my eyes are leaking now too!!

What wonderful friends, you are certainly a lucky person to have such kind and caring friends.

I just loved reading this!!!

daffadilly Apprentice
daffadilly
Posted

Thank You for posting this, now that is what I call a real friend.

I read your allergy list, I used to have a list about like that, mine is almost all gone except for a few, so hang in there, I think it will get better for you.

Saz Explorer
Saz
Posted

That is so nice of them.

I've recently being trying to go gluten-free again after to long of been really bad. One of my friends has sent me recipies, info and websites, that she says she has been given or accidently come across. I'm not sure if she if this was the case or if she looked for them delibratly, but its nice that shes been so supportive.

mamaw Community Regular
mamaw
Posted

That is beyond friendship, that is thick as blood. What special people you all are...Hang on to that friendship , it is so awesome.

What part of Pa do you reside???

blessings

mamaw

2kids4me Contributor
2kids4me
Posted

What a wonderful gift to you! With friends like that, you will get through anything! :)

I had to wait til I stopped tearing up after reading your wedding story.

Thanks for the gift to us in sharing it...

Sandy

AndreaB Contributor
AndreaB
Posted

Such a beautiful thing to do for a wonderful person. You have wonderfuls friends and parents too. :)

Nantzie Collaborator
Nantzie
Posted

Another cryer here... Give them extra hugs and thanks from us for being such wonderful people.

Nancy

casnco Enthusiast
casnco
Posted

Now there is a real friend. Thanks for sharing a positive.

GFinVA Newbie
GFinVA
Posted

Laura - I'm glad to hear that you had such a great weekend! Looking forward to catching up soon :)

Alison

happygirl Collaborator
happygirl
Posted
  • Author

This is why I had to share---I knew YOU guys would appreciate it and know what it really meant. Its amazing when your friends become like family and support you through anything.

Luckily, I have great friends all around---just today I had 9 of my best girlfriends from Penn State send me roses (sick from undiagnosed but non-Celiac related issues....long story.)

Imagine if yall teared up over this---what I was like at the reception! And I'm a crier anyways! You should have seen my mom and I- it was pathetic, but in a good way. :)

mamaw-my dad is military and so we moved around a lot. I lived in philly for two years, then moved to mechanicsburg, outside of harrisburg. my parents have kept them home there, and my parents have split their time between PA and VA. After graduating from high school in Mech, I went to Penn State for four years, moved to Auburn for my graduate degree, moved to Virginia Beach for a year (first job) and just moved to Northern Virginia last month for my dream job. Sigh. That makes me tired just thinking about it. Wedding was in Camp Hill (town next door to M-burg) and reception was in hershey.

Alison-hey girl. I'll write you an email, hopefully tomorrow :)!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748
    Kundrey
    Newest Member
    Kundrey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.