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For The "real" Teens


Kassie

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Kassie Apprentice

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~


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  • Replies 126
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flagbabyds Collaborator

northern california, very west coast.

ErraticBinxie Explorer

Oregon. And I get the feeling that I am the only one.

Saz Explorer

I live in Australia

Kassie Apprentice

i know what u mean i get the feeling i am the only one around where i live

  • 3 weeks later...
Jacqui7170 Newbie
hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

I am from Idaho too. I am 17 and new to the site. I have had celiacs for over a year now. My eamil is Jacqui7170@verizon.net . Write me

Kassie Apprentice

jaqui- i sent you an e-mail i am so happy i found a teen on here from idaho!


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Kassie Apprentice

jaqui- ok i sent you an e-mail but it didn't go through. it said something that i didn't understand so e-mail me and i will reply thats what i have to do sometimes cause my computer is stupid like that. my e-mail is twin_kassie2@hotmail.com i would love to talk so plear write me. ttyl

Jacqui7170 Newbie

Hey Kassie

I will write you an Email as soon as I get home. I am at work and bored. There stupid computer wont let me on to my email but it will let me go everywhere else. So i wil write oyu soon.

beaglemania Rookie

I'm from Florida. really wish I vould find a Celiac my age around here. All I know are about 2 Celiacs, and there both old and one of them is my dad!! yikes!!

  • 3 weeks later...
Liam Newbie

Im from Newcastle in England i know of about 2 coeliacs in my area lol does anyone else on here live near???

liam

Anonymousgurl Contributor
northern california, very west coast.

Yay! Finally....some TEENS. I was feeling pretty lonely! LoL. Well, no joke...it does get kinda lonely sometimes. but ANYWAY...Im from California too :) How are you all doing?

jaspreet Newbie
Yay! Finally....some TEENS. I was feeling pretty lonely! LoL. Well, no joke...it does get kinda lonely sometimes. but ANYWAY...Im from California too :) How are you all doing?

Another Californian! I'm also from northern California.

Anonymousgurl Contributor
Another Californian! I'm also from northern California.

Yay that's awesome! I'm from the bay area :)

flagbabyds Collaborator

what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

Anonymousgurl Contributor
what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

I didn't know there was a bay area support group! I'd love to join! Do they have a website? Oh I'm from a little town about 15 minutes away from San Francisco :)

mkh Rookie

i'm from colorado and know of 2 other celiacs here, but no one around my age...

mia

x-tina Newbie

hey...i'm from Manitoba, Canada...and i know like NOBODY who has celiacs :P

...but i've had it all my life

egiap10 Newbie

australia... finally some other ppl this age who have it.. seems like everyones adults.......

  • 2 weeks later...
Teku Apprentice

hi :) ! I'm from central California near Fresno.

MGoers37 Rookie

Im from New York, Lake ontario(ish) area...

i thought i was the only 17 year old with dh.

also would that make me a celiac? or just a leper? haha

Liz92 Rookie

Is there anyone on this site from utah????? probably not... How old are you guys? I'm almost 15

~~~~Lizzie~~~~

oh ya, do any of you guys in Idaho live on a farm? I think that would be cool cuz u can drive when ur 14.

I'm going to BYU Idaho for EFY

By the way, my email is tizzy2dance@hotmail.com :P

:P

Kassie Apprentice

hey liz, i'm close idaho. what part of utah do you live? you got the 14 thing wrong. you can take drivers ed at 14 but cant get liscence till 15. your goin to EFY. are you LDS? feel free to e-mail me

twin_kassie2@hotmail.com

Liz92 Rookie

Ya I'm LDS. You???? I live near SLC. :P

*liz

Kassie Apprentice

yah i'm LDS too! um i live in burley idaho (southern part of idaho) i sent you an e-mail hope you got it :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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