Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Which Pain Medications Are gluten-free, Sf, Df, Cf, Ef ?


marciab

Recommended Posts

marciab Enthusiast

OK, Today I am watching to see if I am bleeding too heavy, because my instructions are to go to the ER if I do ... been there done that ... no fun ... this time, they may put an end to my suffering permanently (you know what I mean ;) ) since I now have a history of excessive bleeding.

What do you who are also intolerant to corn, soy, dairy, egg and probably a host of chemicals take for pain ? I had morphine when I had my gallbladder out, but that gave me that body mind disconnected feeling ... I poured ice cold water on myself while trying to take a drink because I could not find my mouth, could not find the floor when I tried to walk, etc.

I am finding my docs, pharmicists, etc are not up on gluten free meds, much less CF, DF, EF, and SF ... How important is this anyway ??

I may need a muscle relaxer too ....

Ideas anyone ... marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

Marcia,

I used to work as a Pharmacy intern. I'm used to reading labels and looking at ingredients, and unfortunately, I think you are going to have a very hard time finding a medication to suit your needs. Most medications are gluten-free, but instead of wheat starch, corn starch is usually used. I have read that the amount if lactose in medications cannot bother people with lactose intolerance. Also, there is no casein with the lactose, so you don't have to worry about that, unless it has casein as an ingredient. Hospitals use a lot of IV drugs, and I know nothing about the ingredients in them. SInce they don't have to be binded, I'm sure there is much less ingredients in them. The feeling that you had with the morphine is common for anyone, intolerances or not. If it didn't cause you a problem with your intolerances, it might not be a bad idea to have it again if you are in a lot of pain. I hope you figure something out.

-Brian

Judyin Philly Enthusiast

I'm interested in this thread too.

i use valium and just got a refill and they did dianzpan..hope they ck'd it for my intollerances that they sure kow about.

thought maybe i could ger some info here.

they told me the 'brand' valium is ok for glutten but not sure about the rest.

also Marcia..Dr. O answered you on the d/s thread in celiac

judy

marciab Enthusiast

Brian,

Thanks ... I really hated the morphine though and was hoping there was something else ... Sounds like I will be fine with an IV while I am there ... Just what to take afterwards will be a problem ..

Judy,

My clonazepan (sp) had dairy in it. I am going through a major learning curve here with meds.

Thankfully, my docs are helping me stay away from gluten. There is no way I want to risk having seizures or ataxia again.

Thanks for the heads up on the other thread .. I'll go check it out ...

so far so good today ... this afternoon was much better than this morning ... this is certainly more stress than I need ... marcia

GlutenWrangler Contributor

Marcia,

I forgot to say before, if you tell them that you can't tolerate morphine they will most likely give you Demerol. It should work for the pain just as much as morphine, and you may end up having fewer side effects. I was thinking that possibly the liquid forms of the various pain medications may not have as many inactive ingredients as pills do. Maybe that could be a possibility for afterwards. Good luck.

-Brian

tarnalberry Community Regular

You might be able to get something made up for you at a compounding pharmacy.

marciab Enthusiast

Brian,

Thanks again ... I wasn't sure so I checked and demerol comes in a liquid and can be swallowed or injected...

Tarnalberry,

Thanks for replying ... Can any pharmacy compound meds ? Can that be done at a hospital ? I don't want to chance taking a med that would make me feel worse.

Thanks for your replies ... I was wondering what would happen if I had to have meds ...

Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
Can any pharmacy compound meds ? Can that be done at a hospital ? I don't want to chance taking a med that would make me feel worse.

No, regular pharmacies cannot compound medications, and I don't know that hospitals can (probably varies by hospital. IV meds are likely to be safe, but liquids I would expect to contain corn syrup...

Compounded meds are more expensive and probably aren't covered as much by your insurance, but they can usually be made *exactly* to your specifications (including flavor! ;) )

Open Original Shared Link lookup sheet (you do have to do a free signup)

marciab Enthusiast

Thanks, I found one 27 miles from me ... I had no idea this could be so complicated ... marcia

happygirl Collaborator

Marcia:

At one point this fall, I was reacting to every and all foods, essentially, and was horribly sick. This was one of our concerns, as what would happen if I had to be admitted? Granted, I think very few IVs have gluten in them, but our main concern was corn. We spoke to a great doctor at Bethesda Navy Hosp who said that IVs (which almost all have corn in them---saline, etc) would go into our bloodstream and would not be absorbed in our small intestine, etc. So, for someone who was intolerant, versus allergic (or worse-anaphylactic allergic), it would be a different story. It was a huge relief to us. I did have procedures done at this time and was given IVs, and I did not react at all.

I hope you are doing better....

Hope this helps.

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,786
    • Most Online (within 30 mins)
      7,748

    Vloyola
    Newest Member
    Vloyola
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
    • Kwinkle
×
×
  • Create New...