Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Which Pain Medications Are gluten-free, Sf, Df, Cf, Ef ?


marciab

Recommended Posts

marciab Enthusiast

OK, Today I am watching to see if I am bleeding too heavy, because my instructions are to go to the ER if I do ... been there done that ... no fun ... this time, they may put an end to my suffering permanently (you know what I mean ;) ) since I now have a history of excessive bleeding.

What do you who are also intolerant to corn, soy, dairy, egg and probably a host of chemicals take for pain ? I had morphine when I had my gallbladder out, but that gave me that body mind disconnected feeling ... I poured ice cold water on myself while trying to take a drink because I could not find my mouth, could not find the floor when I tried to walk, etc.

I am finding my docs, pharmicists, etc are not up on gluten free meds, much less CF, DF, EF, and SF ... How important is this anyway ??

I may need a muscle relaxer too ....

Ideas anyone ... marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

Marcia,

I used to work as a Pharmacy intern. I'm used to reading labels and looking at ingredients, and unfortunately, I think you are going to have a very hard time finding a medication to suit your needs. Most medications are gluten-free, but instead of wheat starch, corn starch is usually used. I have read that the amount if lactose in medications cannot bother people with lactose intolerance. Also, there is no casein with the lactose, so you don't have to worry about that, unless it has casein as an ingredient. Hospitals use a lot of IV drugs, and I know nothing about the ingredients in them. SInce they don't have to be binded, I'm sure there is much less ingredients in them. The feeling that you had with the morphine is common for anyone, intolerances or not. If it didn't cause you a problem with your intolerances, it might not be a bad idea to have it again if you are in a lot of pain. I hope you figure something out.

-Brian

Judyin Philly Enthusiast

I'm interested in this thread too.

i use valium and just got a refill and they did dianzpan..hope they ck'd it for my intollerances that they sure kow about.

thought maybe i could ger some info here.

they told me the 'brand' valium is ok for glutten but not sure about the rest.

also Marcia..Dr. O answered you on the d/s thread in celiac

judy

marciab Enthusiast

Brian,

Thanks ... I really hated the morphine though and was hoping there was something else ... Sounds like I will be fine with an IV while I am there ... Just what to take afterwards will be a problem ..

Judy,

My clonazepan (sp) had dairy in it. I am going through a major learning curve here with meds.

Thankfully, my docs are helping me stay away from gluten. There is no way I want to risk having seizures or ataxia again.

Thanks for the heads up on the other thread .. I'll go check it out ...

so far so good today ... this afternoon was much better than this morning ... this is certainly more stress than I need ... marcia

GlutenWrangler Contributor

Marcia,

I forgot to say before, if you tell them that you can't tolerate morphine they will most likely give you Demerol. It should work for the pain just as much as morphine, and you may end up having fewer side effects. I was thinking that possibly the liquid forms of the various pain medications may not have as many inactive ingredients as pills do. Maybe that could be a possibility for afterwards. Good luck.

-Brian

tarnalberry Community Regular

You might be able to get something made up for you at a compounding pharmacy.

marciab Enthusiast

Brian,

Thanks again ... I wasn't sure so I checked and demerol comes in a liquid and can be swallowed or injected...

Tarnalberry,

Thanks for replying ... Can any pharmacy compound meds ? Can that be done at a hospital ? I don't want to chance taking a med that would make me feel worse.

Thanks for your replies ... I was wondering what would happen if I had to have meds ...

Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
Can any pharmacy compound meds ? Can that be done at a hospital ? I don't want to chance taking a med that would make me feel worse.

No, regular pharmacies cannot compound medications, and I don't know that hospitals can (probably varies by hospital. IV meds are likely to be safe, but liquids I would expect to contain corn syrup...

Compounded meds are more expensive and probably aren't covered as much by your insurance, but they can usually be made *exactly* to your specifications (including flavor! ;) )

Open Original Shared Link lookup sheet (you do have to do a free signup)

marciab Enthusiast

Thanks, I found one 27 miles from me ... I had no idea this could be so complicated ... marcia

happygirl Collaborator

Marcia:

At one point this fall, I was reacting to every and all foods, essentially, and was horribly sick. This was one of our concerns, as what would happen if I had to be admitted? Granted, I think very few IVs have gluten in them, but our main concern was corn. We spoke to a great doctor at Bethesda Navy Hosp who said that IVs (which almost all have corn in them---saline, etc) would go into our bloodstream and would not be absorbed in our small intestine, etc. So, for someone who was intolerant, versus allergic (or worse-anaphylactic allergic), it would be a different story. It was a huge relief to us. I did have procedures done at this time and was given IVs, and I did not react at all.

I hope you are doing better....

Hope this helps.

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.