Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Enterolab

LynneM

Recommended Posts

LynneM Apprentice
LynneM
Posted

Hi all, wondering about Enterolab. I've been gluten-free for about 4 months, and a recent blood test came back negative, but I still have strong suspicions about being celiac. I was looking at Enterolab's site, and it says that you don't have to be ingesting gluten for their tests to be accurate. Is that true, has anyone here gotten the test after being gluten-free for a time and still gotten a positive? It's very expensive, but it would be worth it if I can trust the results. Since gluten-free is a life-long commitment, it would be nice to know exactly what's going on. Any feedback would be appreciated, thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Corkdarrr Enthusiast
Corkdarrr
Posted

Hi Lynne -

I did the same thing you did. I went gluten-free and had a negative blood test but decided to stick with the diet. Several months later I decided that I did, after all, want some sort of proof. For myself. So I had the Enterolab test done. I did big test they offer - so I was also gene tested and casein tested.

It was worth it for me to have a definitive answer, and I'm glad I did it.

Courtney

Slackermommy Rookie
Slackermommy
Posted

I was gluten free for 5 months when I took the Enterolab tests. I had seen an improvement in my symptoms already, so I was feeling that this was the answer (finally)!! But I am a person who wanted to have "proof", and even my husband decided that this would be a good way to check.

I got the big deal one, and even after 5 months, I am still not absorbing fats properly (Imagine what they would have been if I got tested before gluten free), and everything was elevated. Plus, I do carry 2 gluten intolerant genes, now I know I need to test my children. And we plan to test through Enterolab.

I am so glad I tested through them, I have no doubts now, and now I feel confident that this was the answer I was seeking. And, it will help me commit to gluten free for life, and I do think it has helped people around me be supportive, and not just think I was turning into some 'special diet' weirdo for the fun (like any restrictive diet is) of it.

All in all, I highly recommend it.

celiacgirls Apprentice
celiacgirls
Posted

My daughter was mostly gluten-free for more than a few months before doing the Enterolab test. She was still positive.

jnclelland Contributor
jnclelland
Posted

Just to be different ;) - I tested with Enterolab after 8 months gluten-free, and it came back negative. A few of my numbers - particularly my malabsorption - were high enough to make me suspect that I would have been positive if I'd done it sooner. So even though they say you can be gluten-free up to a year, I'd suggest testing sooner rather than later.

Jeanne

Judyin Philly Enthusiast
Judyin Philly
Posted

I JUST SENT MY 'BIG PANEL' TEST OFF TODAY TO ENTEROLABS...

I HAVE BEEN gluten-free FOR 19 MONTHS.

I WANT TO SEE THE MALASORBITON ISSUE AND THE GENES TOO.

I'LL LET YOU ALL KNOW.

5 MONTHS ON gluten-free I WAS GREAT..THEN SOY...THEN DAIRY...SO WANT SOME ANSWERS.

JUDY

itsmaryj Newbie
itsmaryj
Posted
I was gluten free for 5 months when I took the Enterolab tests. I had seen an improvement in my symptoms already, so I was feeling that this was the answer (finally)!! But I am a person who wanted to have "proof", and even my husband decided that this would be a good way to check.

I got the big deal one, and even after 5 months, I am still not absorbing fats properly (Imagine what they would have been if I got tested before gluten free), and everything was elevated. Plus, I do carry 2 gluten intolerant genes, now I know I need to test my children. And we plan to test through Enterolab.

I am so glad I tested through them, I have no doubts now, and now I feel confident that this was the answer I was seeking. And, it will help me commit to gluten free for life, and I do think it has helped people around me be supportive, and not just think I was turning into some 'special diet' weirdo for the fun (like any restrictive diet is) of it.

All in all, I highly recommend it.

Does this mean that testing from Enterolab is out of pocket? I'm new here, so please excuse the lack of knowledge :)

Mary

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chocolatelover Contributor
chocolatelover
Posted

Sadly, yes. :(

e&j0304 Enthusiast
e&j0304
Posted

My son was on a gluten containing diet when we tested him through enterolab and ALL of his levels were withing normal ranges. He has obvious reactions to gluten, however, so who knows?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it. There are...
    2. lalan45
      - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    3. knitty kitty
      - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

      Thiamine deficiency has been found in the brains of people with amyloid-beta plaques. Benfotiamine, a form of Thiamine, has been shown to prevent the formation of and remove those amyloid-beta peptides and plaques! Benfotiamine improves cognitive impairment and reduces inflammation. Benfotiamine helps improve blood glucose utilization. Malabsorption...
    4. SamAlvi
      - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,839
    • Most Online (within 30 mins)
      7,748
    Pepper Loo
    Newest Member
    Pepper Loo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

      By lalan45 · Posted

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.