Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Enterolab


LynneM

Recommended Posts

LynneM Apprentice

Hi all, wondering about Enterolab. I've been gluten-free for about 4 months, and a recent blood test came back negative, but I still have strong suspicions about being celiac. I was looking at Enterolab's site, and it says that you don't have to be ingesting gluten for their tests to be accurate. Is that true, has anyone here gotten the test after being gluten-free for a time and still gotten a positive? It's very expensive, but it would be worth it if I can trust the results. Since gluten-free is a life-long commitment, it would be nice to know exactly what's going on. Any feedback would be appreciated, thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Corkdarrr Enthusiast

Hi Lynne -

I did the same thing you did. I went gluten-free and had a negative blood test but decided to stick with the diet. Several months later I decided that I did, after all, want some sort of proof. For myself. So I had the Enterolab test done. I did big test they offer - so I was also gene tested and casein tested.

It was worth it for me to have a definitive answer, and I'm glad I did it.

Courtney

Slackermommy Rookie

I was gluten free for 5 months when I took the Enterolab tests. I had seen an improvement in my symptoms already, so I was feeling that this was the answer (finally)!! But I am a person who wanted to have "proof", and even my husband decided that this would be a good way to check.

I got the big deal one, and even after 5 months, I am still not absorbing fats properly (Imagine what they would have been if I got tested before gluten free), and everything was elevated. Plus, I do carry 2 gluten intolerant genes, now I know I need to test my children. And we plan to test through Enterolab.

I am so glad I tested through them, I have no doubts now, and now I feel confident that this was the answer I was seeking. And, it will help me commit to gluten free for life, and I do think it has helped people around me be supportive, and not just think I was turning into some 'special diet' weirdo for the fun (like any restrictive diet is) of it.

All in all, I highly recommend it.

celiacgirls Apprentice

My daughter was mostly gluten-free for more than a few months before doing the Enterolab test. She was still positive.

jnclelland Contributor

Just to be different ;) - I tested with Enterolab after 8 months gluten-free, and it came back negative. A few of my numbers - particularly my malabsorption - were high enough to make me suspect that I would have been positive if I'd done it sooner. So even though they say you can be gluten-free up to a year, I'd suggest testing sooner rather than later.

Jeanne

Judyin Philly Enthusiast

I JUST SENT MY 'BIG PANEL' TEST OFF TODAY TO ENTEROLABS...

I HAVE BEEN gluten-free FOR 19 MONTHS.

I WANT TO SEE THE MALASORBITON ISSUE AND THE GENES TOO.

I'LL LET YOU ALL KNOW.

5 MONTHS ON gluten-free I WAS GREAT..THEN SOY...THEN DAIRY...SO WANT SOME ANSWERS.

JUDY

itsmaryj Newbie
I was gluten free for 5 months when I took the Enterolab tests. I had seen an improvement in my symptoms already, so I was feeling that this was the answer (finally)!! But I am a person who wanted to have "proof", and even my husband decided that this would be a good way to check.

I got the big deal one, and even after 5 months, I am still not absorbing fats properly (Imagine what they would have been if I got tested before gluten free), and everything was elevated. Plus, I do carry 2 gluten intolerant genes, now I know I need to test my children. And we plan to test through Enterolab.

I am so glad I tested through them, I have no doubts now, and now I feel confident that this was the answer I was seeking. And, it will help me commit to gluten free for life, and I do think it has helped people around me be supportive, and not just think I was turning into some 'special diet' weirdo for the fun (like any restrictive diet is) of it.

All in all, I highly recommend it.

Does this mean that testing from Enterolab is out of pocket? I'm new here, so please excuse the lack of knowledge :)

Mary


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chocolatelover Contributor

Sadly, yes. :(

e&j0304 Enthusiast

My son was on a gluten containing diet when we tested him through enterolab and ALL of his levels were withing normal ranges. He has obvious reactions to gluten, however, so who knows?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.