Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Poll: Were You Or Your Children Breast-fed?


Mtndog

Were you breast fed?  

84 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

Mtndog Collaborator

We've been talking in another thread about breast feeding and celiac and many of us were wondering how many people with celiac were breast-fed and for how long. Here's a link to that topic:Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

Thanks Bev!

I checked "no", but wasn't actually formula fed. My mom gave me boiled whole milk sweetened with Karo syrup because my grandmother convinced her that formula wasn't good. Before that, the doctor convinced my mom that breastfeeding wasn't healthy for babies and that she couldn't possibly produce enough milk to ade quately feed a baby. I'm the youngest of 5 and all of my siblings are moderately overweight and have health problems. I'm actually the healthiest, but I'm the only one who's taken charge of my health and changed my diet. I would guess that at least two, if not all, of my siblings are gluten intolerant, but none of them are interested in even looking into it. They're happy to take their medications, sigh...

CarlaB Enthusiast

My mom breastfed me for six weeks, then formula. I voted for "breastfed less than six months."

All my kids were breastfed. One who was breastfed for six months eats gluten-free. One who was breastfed for two years eats gluten-free. Neither one of them has as bad of a reaction as I do.

Ursa Major Collaborator

If I remember correctly, my mother said once that she breastfed me for three months.

jerseyangel Proficient

I voted "yes, but less than 6 months". My mom also believed in giving babies cereal--a little bit in a bottle of formula--early on to help make them sleep better.

Neither of my younger sisters were breast fed, and I'm the only one that we know to be Celiac.

2Boys4Me Enthusiast

I didn't vote - maybe I should put Ty (who has celiac) down for breastfed for less than six months (he was about 5 1/2 months when we switched).

I was formula fed and I don't have celiac.

Edited to add: We put Ty on rice cereal (Heinz...no idea if there's WROB/M in there) at about 4 months, then some fruit, then around 5 - 6 months old he had Heinz oatmeal and barley cereals. He never seemed to have a problem with food, we discovered his celiac at 5 years 9 months old because of really, really low iron.

FeedIndy Contributor

I voted no-I was formula-fed and also given cereal in a bottle from birth! :o My mom kept trying to convince me with all 3 kids that they would sleep better. I never fell for it, but did start them on cereal at aroun 3-4 months. That's just when the problems started with my youngest-the one who found the gluten intolerance for all of us.

However, all 3 of my own gluten intolerant children were breastfed exclusively for the first 6 weeks and primarily for 3, 6 and 9 months respectively plus supplemental nursing for 6, 9 and 13 months. I nursed longer the last time because she had so many problems related to food. She was at her best when we were both gluten free and nursing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I was formula-fed.

If you have medical issues, you might want to check with a lactation consultant--often doctors will tell you that you cannot breastfeed when you may be able to. I was told that I wouldn't be able to because for the first 5 days after my oldest was born,I had no milk. He wouldn't latch on (why would he, when there was no millk?). I pumped every 3 hours, and didn't get a SINGLE DROP, not even colostrum--until the end of the 5th day. At that point, he did latch on (because there was something in there!), and I threw the fomula in the garbage.

The lactation consultants also know muchmore about which medications are okay when you are breastfeedings, and will tell you about medication options if your current meds won't work for breastfeeding. I actually had a pediatrician tell me I couldn't breastfeed it I was taking Synthroid (which is not true)!

blueeyedmanda Community Regular

I was formula fed, and I remember my mom telling me she had to scrape change together sometimes, just to buy a can of it.

Juliet Newbie

I have no problems with gluten, and I was breastfed for 6 weeks. But my son who does have Celiac Disease was breastfed for 14 months. He did get breastmilk along with a little formula during the first 4 weeks (each feeding was a combination of breastmilk and soy-based formula), though, because I wasn't producing enough milk at first. But after that, he was exclusively breastfed.

Rachel--24 Collaborator

I wasnt breast-fed.

I only found this out a couple years ago when my mom accompanied me to a doctors appt. The Dr. asked her if she'd breast-fed me....and the answer was no.

The Doc said if shed have done this my immune system would be stronger. :(

dlp252 Apprentice

I haven't actually voted yet, lol. I need to check with my mom. I know I was fed formula, and it was some kind of soy formula, but I don't know when she started the formula.

bluejeangirl Contributor
I voted "yes, but less than 6 months". My mom also believed in giving babies cereal--a little bit in a bottle of formula--early on to help make them sleep better.

Neither of my younger sisters were breast fed, and I'm the only one that we know to be Celiac.

One of the regrets I have in life was following the advice of my mother in law who told me to mix up alittle of the baby cereals with milk before putting my babies to bed and they'll sleep through the night. I started this at only 3 mo. because I wanted to sleep. I don't remember if it was rice or wheat but I just cringe when I think about it. I breastfed my first until he was over a year and the second one for only 2 mo. He was a fussy baby and didn't like the taste of my milk and instead of changing my diet I went to formula. I know so much more now. But back in the early 80's they didn't have computers or even the information they do now.

Kibbie Contributor

My daughter was breastfed for over a year (I can remember how much over a year 14-16 months) And was diagnosed with Celiac at 18 months.

She received nothing but breast milk until 6 months of age.. .and after that nursed 3-4 times a day until she stopped (cold turkey)and was given milk not formula. We did fead her oatmeal at 7 months old but she had no other gluten containing products till 12 months old. I also made all of her baby food at home.

Michi8 Contributor

The poll question confused me...I didn't know whether I could answer for both myself and my kids (who were breastfed much longer than I was), so I only answered for myself.

I was breastfed for 4 months and fed solids early, starting with cereal. I have many, many allergies, eczema/psoriasis, asthma and GI issues.

My children were all breastfed an average of 2 years, with my middle son going the longest at 2.5 years. They all were exclusively breastfed until 6 months, at which point we introduced plain, organic, unfortified rice cereal. Eldest has GI issues, middle son is a fussy eater and thin as a rail, my youngest (daughter) has eczema, allergies and the beginnings of asthma.

Michelle

Guest AutumnE

I was formula fed and so was my sister, my mom was too. My dad was breastfed and all of his brothers and sisters (13 total) were breastfed. My dad, my mom, my sister and me all have celiac disease with the actual celiac genes, all of us had elevated antibodies also. My daughter has the gene and slightly elevated antibodies. My uncle (dad's brother) who was breastfed died at the age of two from celiac disease in 1930. My grandfather on my mother's side also we believe had celiac disease was breastfed.

It would be hard not to have this poll slightly inaccurate due to back in the 1940's all the way to when I was born in 1972 women were not encouraged to breastfed, strangely it was looked down on. When I did breastfeed my daughter, my mom had a hard time with it since in her day age it was looked down upon. It really helped open up things for her when I asked her to come to my breastfeeding classes at the hospital with la leche league.

I did breastfeed in the beginning with my daughter but I barely had any supply due to a breast reduction when I was 19. I wish I would have waited but my surgeon said I would have no trouble with breastfeeding :rolleyes:

Me and my sister also had cereal. Karo syrup is not an odd thing to be fed nowadays either. Only one formula that I know of doesnt contain it. Our food system is so tainted. Even breast milk can be tainted due to enviromental issues. There was an article a few years back about breastmilk containing rocket fuel :blink:

Adelle Enthusiast

I haven't voted yet cause I'm not sure if I was breastfed, and if so for how long. All I know is (when ryan and I have kids) come hell or high water I'm breastfeeding. My immune system is so screwed, I want to give them everything I can! Also, my husband was fed goats milk. He had horrible D and violent vomiting every time he had his mom's breast milk and formula (she told me that the doc said to do the goats milk, cause he was allergic to her breastmilk and formula). We're pretty sure it was just the gluten. Anyway, I'l have to ask my mom how long she breastfed my sis and I. Hmmmmmm

AndreaB Contributor

I voted for me. I was born 8 weeks early and was formula fed.

My two oldest were breasfed exclusively for the first six months when we started adding in baby cereal and food. Continued breastfeeding until they were 2 years 10 months.

The youngest I plan on breastfeeding as long although he's never fed as much as they did. He was started on rice cereal at 7 months. He's the one that alerted us something was wrong at 2 1/2 months. Haven't had him gene tested but the rest of us have been and we all have at least one celiac gene. Hubby has two so all the children will have one.

All of us except my hubby have an active sensitivity according to enterolab (again haven't had the youngest tested, he's dietary response). Hubby was formula fed as well.

My oldest has a lot of intolerances (she's 7), my oldest boy has hardly any (he's 4), my youngest seems to have a lot of intolerances as well. Haven't nailed those down with him but we are avoiding the top 8 allergens for the most part.

trustyourguts Rookie

I voted for myself. I was breastfed until 4 months. My two children were both breastfed to over age two. My son is 25 months and he is still going strong. I think it is the breastfeeding that has kept him out of the hospital. When he is gluten-free he bf so much less, only at night to go to sleep. When he is on gluten he nurses almost all day.

All of us have food sensitivities. My son is worse than all of us. He can't have soy, gluten, dairy, summer fruits and now eggs. The list keeps growing. :(:(:(:lol: .

GFBetsy Rookie

I breast-fed my fraternal twins for 11 months, and only one of them has celiac. So I would guess breast-feeding can contribute to a later onset, but isn't by any means the only factor.

Lisa Mentor

I did not post on the poll, which I find quite interesting. My mother died when I was two and no one left to ask.

But, I expect that I was not. (for a variety of reasons)

Lisa

Juliebove Rising Star

I tried to breast feed my daughter because I had food allergies as a baby and didn't want her to get them. But I wasn't producing enough milk so I was forced to give her formula as well. Alas she turned out to be allergic to both milk and soy so no matter what I gave her she was sick. At age 6 her allergies were finally diagnosed. Prior to that the Drs. kept telling me she had no food allergies. Bah! Turns out she is allergic to not only those but bananas, peanuts, eggs, wheat and gluten. I did breast feed for 10 months, but was producing so little milk the bulk of her diet was the formula and then solid foods.

Mtndog Collaborator
I did not post on the poll, which I find quite interesting. My mother died when I was two and no one left to ask.

But, I expect that I was not. (for a variety of reasons)

Lisa

lisa- I'm sorry. I didn't know that. :(

I'm sure the results are inaccurate, but I'm curious. I'm also sure breast-feeding isn't the only factor. There's genetics and environment and God only knows what else. I think it was Ffiddle-Faddle who said that the studies she had read all had varying rates but the % of celiacs who were NOT breast-fed was very high. But there could be a lot of factors in this. Still, it's interesting.

AndreaB Contributor

I want to add that my doctor told me that if I'm eating something I'm intolerant to it CAN cause a problem for the baby. That's why I'm pretty much off the top 8 allergens aside from being intolerant to about half of them.

For instance (and I'm not 100% sure about this). I'm just a tiny bit over the line into low intolerance for cauliflower, don't have any problems that I know of eating it. My youngest had some last night and had a very bad night. My guess would be that he is intolerant to it. He hasn't met a food he doesn't like but some he's met don't like him. :(:P

heathen Apprentice

i was breastfed for 8 months--and i was a fat baby. i'm convinced it shielded my celiac symptoms for years.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      12

      New Celiac Mama in My 30s

    2. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    3. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    4. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      12

      New Celiac Mama in My 30s

    5. - trents replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748

    volivier
    Newest Member
    volivier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
    • knitty kitty
      @tiffanygosci, Hello.  I apologize for your thread being hijacked.   I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain.  My cycle returned early after I had my son, and I became pregnant again with all my symptoms worsening.  Unfortunately, I lost that baby.  In hindsight, I recognized that I was suffering so much from Thiamine deficiency and other nutritional deficiencies that I was not able to carry it.   Celiac Disease affects the absorption of nutrients from our food.  There's eight B vitamins that must be replenished every day.  Thiamine Vitamin B1 becomes depleted first because it cannot be stored very long, less than two weeks.  Other B vitamins can be stored for two months or so.  But Thiamine can get low enough to produce symptoms in as little as three days.  As the thiamine level gets lower, symptoms worsen.  Early symptoms like fatigue and anxiety are often attributed to life situations, and so frequently go unrecognized by medical professionals who "have a pill for that".   I used to get severe migraines and vomiting after gluten consumption.  Thiamine and the other B vitamins are needed to turn carbohydrates, fats and proteins into fuel for our bodies.  With a large influx of carbohydrates from gluten containing foods, the demand for Thiamine increases greatly.  Available thiamine can be depleted quickly, resulting in suddenly worsening symptoms.  Emotional stress or trauma, physical activity (athletes and laborers) and physiological stresses like pregnancy or injury (even surgery or infection) increase the need for Thiamine and can precipitate a thiamine insufficiency. Pregnancy requires more thiamine, not just for the mother, but for the child as well.  The mother's Thiamine stores are often depleted trying to meet the higher demand of a growing fetus.  Thiamine insufficiency can affect babies in utero and after birth (autism, ADHD).  Having babies close together doesn't allow time for the mother to replenish thiamine stores sufficiently.   Thiamine insufficiency can cause migraines, pins and needles (paresthesia), and gastrointestinal Beriberi (gas, bloating, diarrhea or constipation, back pain).   Thiamine deficiency can cause blurry vision, difficulty focusing, and affect the eyes in other ways.  Thiamine deficiency can damage the optic nerves.  I have permanent vision problems.  High histamine levels can make your brain feel like it's on fire or swelling inside your cranium.  High histamine levels can affect behavior and mood.  Histamine is released by Mast Cells as part of the immune system response to gluten.  Mast Cells need Thiamine to regulate histamine release.  Mast Cells without sufficient thiamine release histamine at the slightest provocation.  This shows up as sensitivities to foods, smelly chemicals, plants, and dust mites.  Thiamine and the other B vitamins are needed to lower histamine levels.  Vitamin D is needed to calm the immune system and to regulate our hormones.  Menstrual irregularities can be caused by low Vitamin D.   Celiac Disease is a disease if Malabsorption of Nutrients.  We must take great care to eat a nutritionally dense diet.  Our bodies cannot make vitamins.  We must get them from what we eat.  Supplementation with essential vitamins and minerals is warranted while we are healing and to ensure we don't become deficient over time.  Our bodies will not function properly without essential vitamins and minerals.  Doctors have swept their importance under the rug in favor of a pill that covers the symptoms but doesn't resolve the underlying issue of malnutrition. Do talk to your doctor and dietician about checking for nutritional deficiencies.  Most blood tests for the eight B vitamins do not reflect how much is available or stored inside cells.  Blood tests reflect how much is circulating in the blood stream, the transportation system.  Blood levels can be "normal" while a deficiency exists inside cells where the vitamins are actually used.  The best way to see if you're low in B vitamins is to take a B Complex, and additional Thiamine and look for improvement.   Most vitamin supplements contain Thiamine Mononitrate, which is not easily absorbed nor utilized by the body.  Only thirty percent of thiamine mononitrate listed on the label is absorbed, less is actually utilized.  This is because thiamine mononitrate is shelf stable, it won't breakdown sitting on a shelf in the grocery store.  It's so hard to breakdown, our bodies don't absorb it and can't turn it into a form the body can use.  Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) which the body can utilize much better.  (Ask for an Erythrocyte Transketolace Activity test for Thiamine level.  Though not accurate, this test does better picking up on a thiamine deficiency than a blood test.) Are you keeping your babies on a gluten free diet?  This can prevent genetically susceptible children from developing Celiac Disease.   P. S. Interesting Reading  Thiamine deficiency in pregnancy and lactation: implications and present perspectives https://pmc.ncbi.nlm.nih.gov/articles/PMC10158844/ Descriptive spectrum of thiamine deficiency in pregnancy: A potentially preventable condition https://pubmed.ncbi.nlm.nih.gov/37458305/ B vitamins and their combination could reduce migraine headaches: A randomized double-blind controlled trial https://pmc.ncbi.nlm.nih.gov/articles/PMC9860208/
    • trents
      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.