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Urgent - Any Friends Pls Help

gfp

By gfp
in Coping with Celiac Disease

Recommended Posts

chocolatelover Contributor
chocolatelover
Posted

Hugs, Steve...we're all here for you and will do what we can to help you through this. Sorry none of us can be there physically with you, but know we are there in spirit. You've gotten some good advice from your friends here--keep us posted on what's happening--we're all thinking about you.

CL

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  • Replies 76
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Ursa Major Collaborator
Ursa Major
Posted

Steve, I haven't been on the computer today, just found this thread, and I am pretty upset about what's happening to you. I am afraid that your mother did do it on purpose, to prove to you that you're wrong about the 200 ppm not being safe for you. However, since you say it has bad effects on her as well, she may not be rational anyway, and as somebody said, acting like she is stupid. Being your mother, she can't be stupid for real. But the gluten is making her that way.

It is a shame that in the UK the coeliac society and doctors will declare that all celiacs are safe consuming the 200ppm stuff.

Please just rest, drink lots of water and don't make any plans right now to do anything (other than calling your aunt, so she can let your mother know you are safe).

Once you're rational again, it might be best if you write your mother a letter to explain what happened. Let your girlfriend read it before you send it, to make sure it doesn't sound angry and hostile. Tell her why you will never feel safe in her house again, because you can't be sure she won't knowingly feed you things that you told her will make you ill. Make sure you also tell her that you love her, and will see her when in England, but on your terms. And that you won't be able to stay with her again.

Don't bother talking to your brother, he apparently isn't even trying to understand how you feel. I know what you mean about the books not being in alphabetical order really bothering you. My autistic tendencies are much stronger when glutened, and that one could happen to me as well (except with me, the books would have to be arranged by size and subject :rolleyes: ).

I really hope you'll be okay. Please keep us updated.

{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}

Lisa Mentor
Lisa
Posted

Steve:

I have been thinking about you all day. I hope that you are feeling better.

jerseyangel Proficient
jerseyangel
Posted
Steve:

I have been thinking about you all day. I hope that you are feeling better.

Yea--me too.

I hope you got some rest and "alone" time. When you can, let us know how you are :)

chatycady Explorer
chatycady
Posted

:blink::unsure: Why does gluten cause such anger? I relate totally and find I need to "hide" until the rage and symptoms pass. Is there a mediacal reason for the anger?

So sorry for your troubles. I whispered a little prayer for you and all of us...

ravenwoodglass Mentor
ravenwoodglass
Posted
:blink::unsure: Why does gluten cause such anger? I relate totally and find I need to "hide" until the rage and symptoms pass. Is there a mediacal reason for the anger?

So sorry for your troubles. I whispered a little prayer for you and all of us...

Chatycady, for many of us gluten has a neurotoxic effect. The action of the body trying to protect itself from a toxin that is coursing through the bloodstream can create reactions in any system. In addition there are chemicals in the brain that can be thrown out of wack by gluten. I believe it has something to do with neuroreceptors and transmitters causing either a blocking action or the opposite excess electrical impulses. In some of us gluten can even cause seizue activity. I personally think gluten intolerance is behind a lot of the depressive disorders and it also has a strong link for many to autistic syndromes. If you do a search here on 'Neurological effects of gluten' you should be able to find some links to some medical journal articles.

ravenwoodglass Mentor
ravenwoodglass
Posted

Steve, I hope you are doing a bit better. As many others are I am concerned and hope you have been able to find a place for peace. Hope to hear from you soon.

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Judyin Philly Enthusiast
Judyin Philly
Posted

just came on to ck on you steve.

hope your doing better.

think i'ts the middle of the nite where you are.

let us know ok

judy

Nantzie Collaborator
Nantzie
Posted

Just wanted to check on you too. I hope you're able to get some sleep.

Nancy

Canadian Karen Community Regular
Canadian Karen
Posted

I know it's probably around 4 a.m. in the UK and hopefully you are having a wonderful deep sleep and tomorrow will be a brand new day for you.....

Please post when you get the chance to let us know how you are doing......

When I was thinking about you today, I thought that the "neurological" glutening of the brain would probably affect you 10 times more than it would affect me. If our brains were musical instruments, I would be a fiddle and you woulld be a finely tuned Stratovarius! LOL! :lol: A brilliant mind like yours would probably be much more susceptible to toxic gluten than mine would! Considering when I get glutened, I change instantaniously from my normal self into "The Incredible Hulk" with an explosive temper, I can't imagine what it must feel like for you......

Thinking of you and sending hugs.

Karen

mamabear Explorer
mamabear
Posted

Steve,

I don't know you,but I can tell from the enormous response from these wonderful, caring forum members that you are a special man. Once again, I am absolutely amazed by the level of compassionate concern here! I ,too, hope you are finding sleep at this moment. I find that sleep will be your best friend until this glutening is over. If you are not sleeping, would you seek a druggist over there and ask for recommendations? Maybe you can find someone who will understand you have zero tolerance for gluten. I am sending you positive vibes across the big pond!!!

Ann

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hope you are feeling better, Steve.

Update us if you have a moment, okay?

Queen Serenity Newbie
Queen Serenity
Posted

Steve,

Eventhough we have had our scraps, I am very upset that you are suffering so much. It's really not fair that you have had to go through a situation like this. Especially since you are the "careful one" when it comes to gluten. I think everyone has given you some of the best advice. Stay clam and wait for your girlfriend to come to your rescue. I hope that you are feeling much better today. Hopefully, this will be over soon. Take care off yourself.

Vicki :)

AndreaB Contributor
AndreaB
Posted

Steve,

I hope you are doing ok. Hope your girlfriend has gotten in to town.

Update us when you can.

mouse Enthusiast
mouse
Posted

Steve, I hope today is a better day for you and that your symptoms have decreased. Please let us know how you are doing. As you already know - we all care.

Judyin Philly Enthusiast
Judyin Philly
Posted

STEVE hasn't posted has he?.

hey, buddy where are you???

hope your girl friend is there with you now.

hugs

judy

DingoGirl Enthusiast
DingoGirl
Posted

nope, he hasn't posted.....wish he would let us know what's up....... :huh:

Canadian Karen Community Regular
Canadian Karen
Posted
nope, he hasn't posted.....wish he would let us know what's up....... :huh:

Hopefully, the day was taken up by making arrangements to pick up his girlfriend at the airport and her getting his stuff from his mom's, he just didn't have the time to get to the library to post anything.....

Hope we hear soon though......

Karen

Guest AutumnE
Guest AutumnE
Posted

Im so sorry your going through this, I hope you are recuperating now and feeling better. I feel so bad for you being away from home and having to be out when your dealing with it. I know no words to help as my mom did something like this to me on purpose, she thought I was being paranoid about cross contamination till I had a full blown seizure at her house from it. I have forgiven her but Im not sure I can forget it. I felt betrayed so badly.

Take Care

Autumn

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Steve, when you get a chance, PLEASE post and let us know you are all right, okay? Or else, let us know how we can help...

Nantzie Collaborator
Nantzie
Posted

Just checking to see if you posted. I'm sure you're in the middle of the chaos that always accompanies a family wedding. I hope you're feeling better.

:(

Nancy

eleep Enthusiast
eleep
Posted

Just a hug!

DeniseJarvis Newbie
DeniseJarvis
Posted

Hi Ravenwoodglass,

I have read most of your posts, and was so very interested in what you had to say about celiac disease! I started a gluten-free diet only a month ago, after reading Dr. Graham

dlp252 Apprentice
dlp252
Posted

Has anyone heard from Steve yet?

Nantzie Collaborator
Nantzie
Posted

I was coming on to check on him too. I hope he's okay. :(

Nancy

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