Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Strange My Life Has Become!

GeoffCJ

By GeoffCJ
in Coping with Celiac Disease

Recommended Posts

GeoffCJ Enthusiast
GeoffCJ
Posted

I'm 31.

I have a disease.

It requires me to be VERY careful about what I eat. I have a hard time with it.

When I do a good job, the clearest, most immediate symptom of my doing a good job over the week is in the restroom.

Thus, when I do a good job, and it "shows" I'm quite proud of myself.

Meaning I derive satisfaction from my BMs.

Such an odd part of my life.

Only you guys could understand.

:P

Geoff

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

:lol::lol::lol:

I totally relate.

:D

Nancy

ravenwoodglass Mentor
ravenwoodglass
Posted

Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)

confused Community Regular
confused
Posted
Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)

I can so relate to you, Yesterday my hubby came home and i was like honey i went to the bathroom by myself and it was great, he was like i am so proud of you. I had been taking an laxative for one day, but that was on monday lol

paula

blueeyedmanda Community Regular
blueeyedmanda
Posted

I understand completly. I feel that way too. You are right though, only we would be able to relate. All our nonceliac friends would look at us as if we were crazy.

johnsoniu Apprentice
johnsoniu
Posted

How refreshing to know that I'm not insane for gauging my life by the quality of my BM's. That's why I'm so happy to have found this forum, because you all ARE the only people who would understand.

Jo.R Contributor
Jo.R
Posted

LOL. After I had kid, I had said to a friend I never thought I would enter a life where BM's would be normal conversation topics with other mothers. Now I'm the one who is excites when I "make good poopy". :ph34r: And this has become normal conversation with my hubby and mom. Who knew.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

We're a bunch of freaks, aren't we? :lol::lol::lol:

L.A. Contributor
L.A.
Posted

Pooh freaks! All of us! :P

confused Community Regular
confused
Posted
Pooh freaks! All of us! :P

lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula

L.A. Contributor
L.A.
Posted
lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula

It gets even better when your hubby stops asking if the puppy went and instead asks if I did! :blink:

Jestgar Rising Star
Jestgar
Posted

I was once asked in a job interview what I was most proud of. Now I think I have a good answer.... :ph34r: , at least for the jobs I don't really want :lol:

plantime Contributor
plantime
Posted

Ah, yes! Pooh freaks! I thought I was the only person in the world that looked in the toilet after pooping to check the color, consistency, and amount. So glad to know that I am not alone!

johnsoniu Apprentice
johnsoniu
Posted

My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!

Nantzie Collaborator
Nantzie
Posted
My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!

LOL!!!

:lol:

Nancy

Canadian Karen Community Regular
Canadian Karen
Posted
We're a bunch of freaks, aren't we? :lol::lol::lol:

Naw, if we were freaks, we would have had a "Best Looking Poop Contest" where we submit digital photos to be voted on! No baby contests in the celiac world, we have poop contests instead!!!!! :lol:

Hugs.

Karen

angelbender Newbie
angelbender
Posted

Ooooh this is just too bad! I am at the library and trying not to laugh too loudly at "potty humour" and hope that no one looks over my shoulder to see what I'm giggling about. Funny, but neither of my gastro docs (or even my GP whom I saw first) even asked me any of the all important, uh, quality questions.....or even how often a day I was "going".....and I am now happy to report to everyone that I have logs these days! Applause please? I'm so excited and only you folks could understand. Plus I can actually eat before going anywhere in my car.....amazing! :P

jerseyangel Proficient
jerseyangel
Posted

What a classy condition this is :lol:

The first question out of my gastro's mouth is always "how are your bowels?" Every time...

:D Pooh freaks :D

Jo.R Contributor
Jo.R
Posted

Eating before a car ride, now that's big. I know rest stop or gas station between Seattle and Portland, and from Portland to Boise. Now I don't care.

Once we were stuck in the passes, that was ugly. Complete standstill and no toliet..

angelbender Newbie
angelbender
Posted

Ah, I still need to know where all of the restrooms are.....just in case....I can still have an, uh, sense of urgency that others don't have but even the timing of that has improved and I can wait longer than say 15 seconds. People used to think that I was nuts when I would rate where the best restrooms were.... they just didn't know why it was such a big deal.

I have even considered becoming an inventor and devising a unit that we Celiacs could just attach to our bum or something....you know, just in case.....not very practical but kind of funny to think about when things have gotten bad. I guess the market for this type of product would be rather limited tho. Ah, so much for my get rich scheme, lol :P

Debbie65 Apprentice
Debbie65
Posted

This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who

Canadian Karen Community Regular
Canadian Karen
Posted
This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who
Debbie65 Apprentice
Debbie65
Posted
Can I relate? LOL! You don't know the half of it!!!!!! <_<

Let's just say that certain positions are not an option for us, for fear of an accident! :o

How's that for TMI?????? LMAO!

If you know me, you know that this is mild compared to some stuff I put on here!

:lol::lol::lol:

Imagine having a husband who is here for a month and away for a month.

He has this romantic image of the one he left at home waiting.

I

Debbie65 Apprentice
Debbie65
Posted

I didn

PeggyV Apprentice
PeggyV
Posted

It is nice to know I am not the only one...I thought I was strange! Well I probubly am, but at least I am not the only one....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,647
    • Most Online (within 30 mins)
      7,748
    Julie 911
    Newest Member
    Julie 911
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Buckwheat

      By trents · Posted

      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Buckwheat

      By Inkie · Posted

      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Frequent nausea after gluten-free diet

      By Wheatwacked · Posted

      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.