Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Let's Talk To Oprah


wethree

Recommended Posts

wethree Newbie

On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jacqui Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

confused Community Regular
done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

jacqui Apprentice
I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

Ditto.

It is almost a year now and I am sooo tired of people including most of the doctors I or family have had to deal with. NO ONE takes Celiac serious, well at least the people(including family!!) I have been dealing with have been completely ignorant.

I can't go on it is late and I feel a rage of frustration coming on... :angry:

jacqui Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

I went, I signed up, But I couldn't find what you were talking about so I started to e-mail them and then got side tracked...

Where do I look?

My husband and I will do it this morning...

darlindeb25 Collaborator

Click on her site and scroll down to "email us". When that window opens, there are different guestions you can click on and one is, Do you have an idea for our show?

UNCHeel Rookie

I think you all read my mind. I will log in and make the suggestion as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

GREAT IDEA!!!!

I'm rushing out the door right now--can someone please post a link to tempt those who are either lazy, rushed, not good with Oprah's sites, etc? That way, we might get more of us getting the message across to Oprah!

jerseyangel Proficient

Here's the link--

Open Original Shared Link

confused Community Regular

Done, i so hope she listens to all of us that send in this idea. I really belive she will listen to us.

Has anyone ever tried to get Dr Phil to do an show on celiac?

paula

luvs2eat Collaborator

Don't like Oprah... won't watch Oprah... the only time I've written was the first and last time to tell her to please scrape her nose off the ceiling... cause I don't CARE what she thinks!!

(bah, humbug... I'm not usually so crabby...)

Fiddle-Faddle Community Regular

Thanks, Patti!

I sent my request in. This is the second time I've written (I tried last summer, too), but maybe it'll catch her attention if a whole bunch of us keep peppering her with emails!

finally diagnosed Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

all set. i sent an email with a suggestion. i hope it works. lorrie

UNCHeel Rookie

Mine is in too. We'll keep our fingers crossed.

  • 2 weeks later...
angelbender Newbie

Well, a bit later than these other postings but I just sent my request to Oprah's Show too. I also am not very fond of her anymore.....she pretty much does whatever she pleases/suits her. I had written a number of times years ago about covering Fibromyalgia and got a nasty reply. Perhaps this will turn out better.

I haven't checked all of the postings yet but did anybody see the article on Elizabeth Hasselback in the April 09 issue (it came out last Friday) of People Magazine where it mentions her Celiac Disease twice?

  • 2 weeks later...
brendygirl Community Regular

Today they show Oprah After the Show and it had Oprah's trainer, Bob Greene talking about his book The Best Life about diet and exercise. A woman in the audience asked how she could accommodate her diet since she is allergic to peanuts, dairy, and gluten.

Bob said there are gluten free recipes on his book's website and that when you register you can set parameters so you can only receive Gluten-free recipes.

I thought it was great to hear them speak about gluten free! It seemed he was quite familiar with it.

elye Community Regular

Unfortunately, he isn't as familiar with the disease as we all are, or he'd be ALL OVER Oprah to do a complete show on celiac and its myriad debilitating symptoms... :(

Canadian Karen Community Regular

Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

gfp Enthusiast
Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

LOL... no offense.... but Oprah will do what makes for viewing figures....fits neatly into a show.... etc. and has the right components to make her look good...

So the problem really is her Dr's probably have no idea about celiac disease.... (above and beyond what our MD's do)....

We can probably see 101 reasons it actually would make a good show.... and all the different avenues she could explore whereas her advisors and script writers just see a dull disease....

Basically and I know this sounds tough.... a few avenues she'd love to cover would be

"My husband had moods and beat up on me when he was glutened"

"I lost my job/baby/marriage due to celiac"

"My employer discriminated against me because of my disease"

Not poor (mainly) white (often) middle class Americans ... or perhaps I'm just cynical...

More chance of getting on Jerry Springer by saying you'll get glutened and start pulling the hair out of the MD they bring on to say brain fog is all in your head.... :ph34r:

However its definately worth a go.... I just think y'all have more chance if yoos rights yoos emails like this!

elye Community Regular

That is a great idea!

The producers of Oprah's show are simply rolling their eyes at stories of weekends spent in the bathroom with unrelenting D, of nagging migraines, of brain fog, of stomachs that look nine months pregnant...I can just see their eyes glazing over. They need to hear from those who have had countless miscarriages, a failed marriage, spectacular seizures and memory loss, the cancer diagnosis that could have been halted had celiac been diagnosed in time. Unfortunately, it is only the gut-wrenching stories that they will glance twice at--the stories that would make her audience stammer, "WHAT? Eating wheat can do THAT?!" If anyone is brave enough to write to Queen O with a personal account of the truly tragic and debilitating sides of this disease (and you must sound desparate and committed to getting the word out) I think then we have a chance of bending her ear. Gfp, you are onto something...

gfp Enthusiast
Gfp, you are onto something...

Sometimes I actually hate to be correct....!

Its just entertainment... people tune in for sensationalism.... I don't think Quenn O is bad... she's just dfoing her job which is entertainment.... and in some ways she does actually help.... but only when it fits the sensationalism and promotes her... but that is what entertainment is all about...

I always remember hearing a newspaper writeup for Jerry Springer doing a show at Cambridge univerity.... he started the show by asking what the heck intellengent people were doing watching his show.... then continued saying he doesn't care if it makes him money.. (at least its honest)...

The thing is there is some sensationalist thing in all of us to some extent.... its the slow down to see the traffic accident syndrome...

but it makes for good viewing figures and these people are just following their job....

I honestly think unless there is sensationalism its not going to be considered... and that means as you say someone willing to share (on national TV) some very personal stories....

Suzanne M. Rookie

I also have written to Oprah about doing a show. She reaches so many households. I run into people every week that seem to have symptoms of Celiac, but, have never heard of it, and they are not getting diagnosed correctly.

elye Community Regular

I'm afraid my personal account to Oprah was just too eye-rolling and boring...low iron and vague GI stuff. But I am serious when I put the call out to the countless people who have eye-opening, incredible stories about what gluten has done to them. Really, I'm certain that this is the magic bullet to get Oprah finally to look our way, after all the posts we have shared together over the last few years on this problem of getting her attention.

  • 2 weeks later...
brendygirl Community Regular

Oprah tends to do shows based on topics of interest to people she knows. For example, she just did a whole show on the topic of Russell Simmons' book, Do You. Oprah does not have celiac disease, and it is NOT her responsibility to do a show about it.

ELISABETH HASSELBECK DOES have celiac disease and SHE should be using HER celebrity status to push the issue and SHE should talk to Oprah about how she felt the best she ever had while on Survivor- eating only fish and rice! (the mini-segment The View did on celiac disease was downplaying and confusing- it seemed her mission was to show how NORMAL she is rather than to educate people about it)

eleep Enthusiast

Hey -- if she needs someone to talk about losing a relationship because of celiac, I'll dish about my breakup for celiac publicity!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.