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- captaincrab55 replied to Colleen H's topic in Coping with Celiac Disease1Heat intolerant... Yikes
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright... -
- trents commented on Scott Adams's article in Autumn 2025 Issue24Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
The title of this article is misleading. To me, triggering celiac disease refers to something that causes the onset of celiac disease whereas the text of the article explains that what is being meant by the title is actually the triggering of celiac-like reactions or symptoms.- additives
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- Colleen H replied to Colleen H's topic in Coping with Celiac Disease5Gluten related ??
Yes this is very frustrating for me ... not sure what to think. Feels like I'm having reactions to a lot of things Now applesauce?? I don't understand 😞 -
- Colleen H commented on Scott Adams's article in Autumn 2025 Issue24
Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
What about unsweetened applesauce?- additives
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@Jmartes71 It would probably be best to start a new topic in our forum under the "Coping" section, rather than to post this as an unrelated comment to this article.- autoimmune disorders
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By captaincrab55 · Posted
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away. Good Luck and hope this helps. -
Yes this is very frustrating for me ... not sure what to think. Feels like I'm having reactions to a lot of things Now applesauce?? I don't understand 😞
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I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle?? Thank you
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Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔 Winter is here. I had to lower my thermostat because I couldn't take that hot air feeling 😔 Hopefully it goes away soon
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I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease".
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I do not have personal experience but my mom was a vegie for a while. When she started eating meat again it did not always sit well with her. It took several months for this "feeling" to go away. Keep in mind she was not dx as celiac yet so that might have had something to do with it as well. Hope you find better health with or without it!
Hez
We were veg or vegan for 8 years.
We've added meat back in due to all our intolerances. Amazingly we didn't have any problems picking back up on meat products. We buy our beef and chicken from www.uswellnessmeats.com
Wonderful meat.....100% grass fed.
Start out slow just in case though.
BTW, we all feel much better eating meat than not eating it. I really think it depends on each person. Some do better with, some do better without.....you have to listen to your body.
thanks for everyone reponses. i'm also blood type O which is supposed to eat meat. i hate meat, it grosses me out but im gonna try and see- maybe i wnot feel exhausted all the time.
thanks
I feel for you. I haven't eaten meat ever in my life, but now that I can't eat SO many things and I am so sick of the stuff I do eat after two years, I have seriously considered it. I just wouldn't have a clue how to cook it. Plus, I am scared my body wouldn't know what to do with it. Beans don't seem to agree with me very well and that is what I have been eating alot of the past two years. Goodluck trying it and let us know how it goes.
Monica
What kinds of bean and/or bean products have you tried?
My middle daughter didn't eat meat for probably 10 years. She wasn't a strict vegetarian, but simply didn't eat meat. Not too long after she was diagnosed, she began to eat it again, fearing she couldn't get the protein she needed. It didn't take her long to begin saying, "Man... I missed this stuff!!"
I was a pretty lax vegetarian for a couple of years.... my girlfriend was so I only ate meat viviting parents etc.
I had a friend that was vegetarian strictly for 7....
I think if you think its disgusting its going to sit badly... regardless...
As an example I always haten fish, especially fishy-fish (if that makes any sense) but after diagnosis I ended up eating sushi...
First few times I really gagged... it was a struggle to just keep it down and after it felt like lead...
I'd say the main thing is quality meat/fish in small amounts... better a little organic beef than a burger or steak of supermarket meat?
Overall I'd say why not just gradually introduce it as a subsistute in your normal veggie diet...
A little in a stir-fry instead of a steak .... some chicken in a fajita with LOTS of vegetables. etc. ??
We require amazingly little meat to get our daily dose... of proteins... so I don't think either the standard meat 3 times a day or strict vegan is healthy .. rather sometihng inbetween in moderation...
Personally now I tend to eat meat once a day... sometimes a huge steak but sometimes just a bit of chicken in a risotto or something... So instead of making meat meals make meals with some meat???
For me, I buy organic free-range chicken and my conscious feels better about it. First, if you can afford it, organic tastes really great. Second, at least I know they had a quality life before they went to market. I only buy one or two chickens a month. This gives us three meals of chicken. Then I make stock/soup with the leftover carcasses. I also eat fish and shellfish.
I tried beef after not eating it for many years and I didn't like the taste anymore. Even though I like pork, I just can't bring myself to eat it anymore.
Start slowly! Your body needs to gear up to produce the proper enzymes to digest the meat. Might take a couple of weeks to adapt.
I was once vegetarian, had horrible problems with blood sugar. Would probably be diabetic by now if I'd kept it up. I'm finding the Paleo diet is doing me a lot of good.
I ate red meat when my boyfriend said, "Baby, there's nothing on this menu you can have!"I ate steak strips on a salad. (It was late at night and I hadn't eaten all day, so a salad wasn't going to cut it.)My stomach hurt.
And since then, I've eaten it once or twice a week with NO problems.
I only eat good quality steak and good quality ground beef, and pork ribs.
It was weird cooking it, to be honest.
btw-- b4 dx, when iron was too low to give blood- I was perplexed since I ate so many dark green veggies, and do you know what the blood bank people tell you to eat to raise iron? CREAM of WHEAT!! It has TONS more iron per gram than any meat or veggie!! I ate it, was so sick(didn't know about celiac yet), but my iron skyrocketed in just a few weeks!
so i had a few pieces of chicken last night- just two bites really was all i could handle mentally. i didnt get any weird stomach aches so thats good. i guess ill slowly just increase it to three bites and then four bites- it tastes so weird!!
Glad at least it didn't make you feel sick
I went about 10 years only eating chicken or turkey occasionally. No red meats at all--I was prettty strict with it. When I tried steak for the first time after that, it tasted odd--very strong and the texture took some getting used to again.
I'm glad I went back to eating meat because since I've been gluten-free, I can't tolerate plant proteins at all.
I think your plan is a good one--go slowly and carefully to see how different things sit.
I just started eating meat again after five years of being veggie. I find that meat sits well in my stomach. I never feel sick after eating it. Veggies and grains do not always sit well, I think because they're harder for the body to digest. It's frustrating because I want to not eat meat, but I know it won't make me sick and on days when my stomach is already upset, I don't want to eat a bunch of veggies and make it worse. I do buy free range/hormone free.
Oh, the one meat that doesn't sit well is beef. That always seems to upset the stomach so I don't eat it. Chicken, turkey, fish, etc seem to be ok.
Groan...I'm dealing with this right now. I've been a vegetarian for 30 years, but with my current problems, I am running out of foods to eat. Several of my friends have been suggesting that I should start eating meat again, but I just can't imagine it. I'm not a radical vegetarian by any stretch (one of my friends is a deer hunter), but when I visualize eating meat again, I just picture myself throwing up all over the place. My vegetarianism is real tied into my identity, plus I have a real aversion to meat. I am going to try eggs this weekend, though. Maybe that will be enough.
I credit eating meat again for helping me figure out my Celiac!
I had been vegan/vegetarian/pescatarian (in that order) for 12 years, and been having celiac symptoms for about as long. Last September, while in England, I fell off the wagon when a favorite aunt made a favorite child hood meat dish. Loved it.
Starting eating meat again, a few weeks or a month after returning, went on the South Beach diet to lose weight, something I'd never consider before because I thought it would be too hard as a vegetarian. Lot's of things started feeling better. One thing leads to another, and I figure out the Celiac and get diagnosed.
My wife likes to joke about the 3 weeks she's known me where I could order anything on the menu.
What's so funny is how I remember eating vegetarian things that were meant to taste like meat. You'd think it'd be just a quick hop back to real meat...