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Origin Of Celiacs?


C'smum

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Betty in Texas Newbie

I really don't know what all I have in me I know I am a American and a Texas I keep telling my Mom which is 93 that I am going to have do a DNA test to see if I am really her's. I have alway told her they must have given her the wrong baby at the hospital she they did'nt. I am the only one out of 7 kids to have all these problems and I am the only one to have RH Negative blood so what do you all thank I have 2 kids grown and they both had RH Negative blood have not been tested for celiac. My daughter has colitis and Haushmotos disease I really think she has celiac but she says no .


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Glutenfreefamily Enthusiast

I am Irish, German, French, Scottish, English, Native American-cherokee, and Dutch. Im sure there are others but these are the ones confirmed through tracing our family history. Im definitely a mix :) I also have rosacea which is suppose to come from Scottish or Irish descent.

brazlebridge Newbie

Mom-American (English/Irish/Native American)

Dad- Dutch American (First generation)

DingoGirl Enthusiast
Its funny for us Eurpeans to think that someone with blond hair and blue eyes from Lombardy is genetically closer to someone with very dark skin and afro hair from Sicily... not to mention Italy didn't exist as a country until Garibaldi in 1878... or that a Hindi family living in Rome (perhaps for over 2000 yrs) are somehow closer than an Austrian to some Italian genotype???

Always such good information from Steve! but somehow it made my brain hurt...... :blink::lol:

I am one-quarter Norwegian, and the rest English, Welsh, Irish, Scottish, and a tiny smattering of French (descendant of Huguenots).

Two summers ago I went to the Celiac conference at Stanford, and there were between 500 - 600 people in attendance. I had never, in all my life, seen such a HUGE group of "white" people - and I do mean WHITE (extremely fair-skinned group)! Here in Central California we have a huge population of southeast Asians and Mexicans - I am pretty sure whites are the minority now - so I was quite startled to see such gathering of what appeared to be nearly 100 percent caucasians.....

celiac-mommy Collaborator

As far as I can research back, I'm Irish nearly 100% (I guess I'm considered 'black Irish' or so I'm told...dad's side. Mom is a freckled redhead), DH is English and French. We haven't done the gene testing, so we don't know who donated to our DD.

pattij Newbie

My husband, the celiac member of our family, is mostly Irish.

Kaycee Collaborator

On my mothers side, Croatian, on my fathers side a mixture of Irish, English and maybe scottish

Cathy


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Yenni Enthusiast

I am born and raised in Sweden. I have done some family tree research and have found nothing but Swedish people so far.

dksart Apprentice

Maternal: 1/2 Italian, almost 1/2 German and a bit of Swedish.

Paternal: almost 1/2 German, 1/4 English, 1/4 French and a bit of American (Creek) Indian.

Fair skinned, green eyed, blond here. Red-headed, freckled Italian Mom and Dark Brown hair & eyed German Dad.

Jodi Mills Apprentice
I reside in Ontario but grew up with my family in England.My family believed themselves to be true English.Recently we found out that we are of Irish decent through my fathers side the same side that has passed on Celiacs to me.There is some belief that Celiacs originate from Ireland.Whats your background?

I am not of Irish decent, My grandparents, on my dad's side, immigrated from Slovania(I think that is how it is spelled, slavic?)...That is the side of the family that handed down the celiac. They also didnt pass on a full set of teeth...two of my adult teeth never formed as a child? I am not a gross person with no teeth, it is only genetics...lol

Jodi Mills Apprentice
On my mothers side, Croatian, on my fathers side a mixture of Irish, English and maybe scottish

Cathy

Just wanted to say Hi, My grandparents are Croation, and a few other things, on my dads side, and i have mutt from my moms side.

ElseB Contributor
I reside in Ontario but grew up with my family in England.My family believed themselves to be true English.Recently we found out that we are of Irish decent through my fathers side the same side that has passed on Celiacs to me.There is some belief that Celiacs originate from Ireland.Whats your background?

I'm Irish (from the North) on my mother's side, and South African (of British and Russion decent) on my father's side.

I've heard there's also a lot of celiacs in Finland. Something to do with pale skin? :D

DingoGirl Enthusiast
I've heard there's also a lot of celiacs in Finland. Something to do with pale skin? :D

Not only are there lots of Celiacs, there are GLUTEN-FREE BIG MACS!!!!!!!!!!!!!!! :P

ENF Enthusiast
I'm Irish (from the North) on my mother's side, and South African (of British and Russion decent) on my father's side.

I've heard there's also a lot of celiacs in Finland. Something to do with pale skin? :D

The reason that there are so many celiacs from Finland and Northern Ireland may be because these areas were not introduced to Roman grain until recent times.

lizard00 Enthusiast

I'm English/Irish (the Irish part,we think) on my Mom's side and French/Romanian on my dad's side.

babinsky Apprentice

Italian on my Mom's side....Irish on my Dad's. Nobody else in my family has Celiac except me....and probably my Dad's whole family...........but ALL of them passed away before they reached 50...my Dad passed at 42

1965kid Apprentice

I am Scotch/Irish

home-based-mom Contributor

My Mom used to say we were Heinz 57! :P But that meant essentially northern and western Europe, including Irish, but also English, German, and Swiss on her side, and Norwegian and Welsh in my Dad's side.

gfmolly Contributor

Norwegian and German from the side that I got Celiac and Greek on the other.

gfpaperdoll Rookie

Irish & English here... I think it is the Vikings that spread the genes around to the Northern Europeans. Also, all you Irish need to educate yourself about Hemochromatosis. Which is what they call the Celtic Curse. But I think the celtic curse also includes the celiac genes, I think you will agree when you read all the illnesses that go with the celtic curse.

I really do not think that the human body is made to eat grains, much less the gene altered wheat that we have today...

lm9 Newbie

I'm full Native America, Navajo to be exact. I have yet to meet another Navajo Celiac. ;)

Gluten free 11/07.

Larissa

dbmamaz Explorer

Another first for this list, I'm Jewish - which is kinda a 'breed' if not a nationality. I'm also blonde and very fair, which is unusual for jews. My mom's mom's family was from austria, my mom's dad and my dad's mom from russia, and my dad's dad from rumania. My father had the awful stomach symptoms i have, and died of cancer, and my mom's mom had tons of food allergies. OH, and both grandfathers were blonde lol!

  • 5 weeks later...
flourgirl Apprentice

Wheeee! This is fun! :lol: I see lots of the fair skinned types here. but not all of us are such. My Dad's family is Cherokee/Scottish. I resemble that side of the family (in looks, not their health!) Very dark hair, dark dark brown eyes, skin more olive colored (turn bronze in the sun).

My mom's side however is English/Irish. I'm convinced that she has Celiac, but won't get tested. (Sigh).

Thanks for the fun topic and for sharing.

ive Rookie

I guess I am another first for this list. I am Belarusian (Belarus is a small country bordering with Russia, Poland and Ukraine and was part of ex-USSR). My dad's family probably has some Polish roots, my mom is Belarusian. I suspect I get it from my mom's side. It is hard to say as in Belarus / Russia nobody knows about this disease. I immigrated to Canada almost 8 years ago, got diagnosed just last week. It would be very hard for celiac to live in Russia / Belarus, I am so glad I am here:-)

MaryJones2 Enthusiast

My father was Dutch and my mother is half German and half Seminole Indian.

Someone mentioned still having baby teeth. I'm 35 and still have 3 baby teeth because my real teeth never developed so there was nothing to push my baby teeth out. I just had the 4th replaced with an implant. I also am missing my wisdom teeth. It's really neat to see my baby teeth on x-rays because the roots are so tiny compared to my other teeth. My teeth are the same size as the regular teeth. It's a hereditary condition and usually referred to as having congenitally missing teeth and having fewer than 6 missing teeth is called Hypodontia. I get it from my mother who is also missing all of those teeth. As far as I know it is not related to celiac disease but I wouldn't be surprised to find out there was a connection somewhere.

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    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
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