Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Prayers

ptkds

By ptkds
in Introduce Yourself / Share Stuff

Recommended Posts

ptkds Community Regular
ptkds
Posted

Hey everyone,

My eyes started getting blurry this morning off to one side, so I called my dr's office since it wasn't the first time. They told me to get my eyes checked out first at the eye dr's. So I did. The eye dr dialated my eyes, and discoverd that the blood vessels in the back of my right eye are very tiny. My eyes were just dialated last year and they were fine. She said it is something systemic and I need to see my PCP. I have a call in to them and am waiting to see when I can go in. I have also been having lots of headaches. So, I am started to get really scared.

Please pray that they will quickly find out what is going on and that I will be fine. My kids need me, and I am scared.

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Oh sweety, I will say a prayer right now that you find out quickly what the problem is and that is easily treated. :)

Try not to panic, and let us know how you do.

cruelshoes Enthusiast
cruelshoes
Posted

You got it. I hope they find a quick and easy resolution. It is scary to think of something going wrong with ones eyes.

blueeyedmanda Community Regular
blueeyedmanda
Posted

You are in my thoughts. Keep us posted!

Joni63 Collaborator
Joni63
Posted

I will certainly say a prayer for you. Try not to worry and just take one day at a time.

Cheri A Contributor
Cheri A
Posted

((hugs)) and prayers of comfort, peace, and healing.

Guhlia Rising Star
Guhlia
Posted

You and your family will be in our nightly prayers. Please keep us up to date with what's going on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I hope they figure it out soon, you are in my prayers and please let us know how you are doing.

(((((((((((((HUGS))))))))))))

Krista

elye Community Regular
elye
Posted

....Been thinking about you all day.... :):)

Any news?

ptkds Community Regular
ptkds
Posted
  • Author

I am going in on Friday morning. They are completely booked until then. I will push him to do a CT scan or MRI to check everything out. I will update you all when I know something.

Thanks for all the support!

Green12 Enthusiast
Green12
Posted

I'll keep you in my thoughts, hope all goes well with your appt on Friday :)

ravenwoodglass Mentor
ravenwoodglass
Posted
I am going in on Friday morning. They are completely booked until then. I will push him to do a CT scan or MRI to check everything out. I will update you all when I know something.

Thanks for all the support!

Will be thinking of you, hope all goes well.

confused Community Regular
confused
Posted

Will keep you in my thoughts and prayers. Please update us tommorow.

paula

jerseyangel Proficient
jerseyangel
Posted

Good luck tomorrow--we're all behind you! :D

ptkds Community Regular
ptkds
Posted
  • Author

Thanks for all the support guys! That really helps me feel better.

I went to the dr yesterday. He wanted me to go to another eye dr that works at my insurance companies clinic and have them dialate my eyes and check them. I told him that I didnt want to and that I trust the dr I went to see. She did a very thorough exam, and I wanted an MRI or CT scan. He finally agreed to order an MRI. I will have it done next week sometime. He seemed convinced it was something wrong with my eye, when the eye dr said it wasn't my eye. I think he was just trying to do what the insurance company would want him to do. They don't like paying for MRI's without a really good reason :angry: . So I guess the possibility of an aneurysm or brain tumor isn't a good enough reason for them!

I hate HMO's.

I will update when I find out the results of the MRI.

Thanks!

mommida Enthusiast
mommida
Posted

My thoughts and prayers are with you.

(((HUGS)))

Lisa Mentor
Lisa
Posted

Thinking of you and many well wishes coming your way.

  • 2 weeks later...
ptkds Community Regular
ptkds
Posted
  • Author

I just wanted to update you guys.

The MRI came back negative. My dr suggested that maybe I was anemic and I needed to take a multi-vitamin.

Needless to say, I am switching dr.s I have an appointment with an Osteopath/Family Practictioner on the 18th. Hopefully, I will get some answers. I am going to write up a list of ALL my symptoms to take to him so I won't forget anything.

Thanks for all the support! You guys are great!

mommida Enthusiast
mommida
Posted

This may be off the wall, but have you been tested for pernicous anemia?

gfcookie Newbie
gfcookie
Posted
Hey everyone,

My eyes started getting blurry this morning off to one side, so I called my dr's office since it wasn't the first time. They told me to get my eyes checked out first at the eye dr's. So I did. The eye dr dialated my eyes, and discoverd that the blood vessels in the back of my right eye are very tiny. My eyes were just dialated last year and they were fine. She said it is something systemic and I need to see my PCP. I have a call in to them and am waiting to see when I can go in. I have also been having lots of headaches. So, I am started to get really scared.

Please pray that they will quickly find out what is going on and that I will be fine. My kids need me, and I am scared.

Thanks

do you take any daily meds like steroids? I'm on steroids, and since i've started them, my eyes went completely wacky and i need glasses. Good luck and try not to stress too much!

ptkds Community Regular
ptkds
Posted
  • Author

No, I haven't been tested for Pernicious Anemia. What kind of testing do they have to do for that?

mommida Enthusiast
mommida
Posted

The start of testing should be a Complete Blood Count.

Other blood tests would be done looking for...

intrinsic factor and parietal cell antibodies

bilirubin, potassium or cholesterol levels in the blood

serum iron and iron binding capacity.

There is a strong link to Celiac or any type of intestinal lack of absorbing B12.

If there were any test results that made this present doctor suggest you "maybe have anemia" may be used to order the need for further testing.

Laura

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.