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Second Day Going Gluten Free

mrs turbo

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mrs turbo Newbie
mrs turbo
Posted

Today is the second day of our household being gluten free. Our son whom we are doing this diet because of is in an extremely bad mood. Is this common , is it gluten withdraw?

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Mom23boys Contributor
Mom23boys
Posted
Today is the second day of our household being gluten free. Our son whom we are doing this diet because of is in an extremely bad mood. Is this common , is it gluten withdraw?

All 5 of us in this house had a nasty withdraw.

GlutenGalAZ Enthusiast
GlutenGalAZ
Posted

My husband eats gluten but he noticed a change in my attitude and mood the first couple of months that I started eating gluten free. I read a lot on here about anxiety, depression and moods (I read them to him as well).

I was really shocked how I was and did not know why, but it has gotten A LOT better for me. I would go through days where the smallest thing annoyed me and I was in a pissy mood to days where I was really quiet (I am normally a very talkative positive person). Over time things have gotten a lot better.

In the beginning you can get discouraged b/c you don't know why you are moody but it does get better. Same thing with the sick feeling....I felt really sick while my body was healing that also got better over the first couple of months as well (also feeling sluggish/tired).

GOOD LUCK :)

dbmamaz Explorer
dbmamaz
Posted

When I quit gluten and dairy, I felt dizzy for over a week. My boys tend to get really mean and grumpy when they are in pain or feeling sick (they dont seem to realize they are in pain, they just get mean), so theres a good chance this is a withdrawal. And yes, other folks on this site have said it made them cranky

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

This is great info! My hubby started gluten-free last Friday and he has been...well...not at his best. When our son went gluten-free his mood greatly improved. I guess I was expecting a repeat of that. I was thinking it was just anxiety and being overwhelmed, but maybe it is withdrawl. His first blood test came back neg. (we're waiting on second test), but his health looks like a textbook Celiac case (to this Celiac-newbie), so he's going to try gluten-free. He's working toward one month and then re-evaluate. I'm hopeful he'll see at least some improvement by then to keep him motivated. I'll share with him tonight about this thread.

Once again, I'm thankful for this site!!

crittermom Enthusiast
crittermom
Posted

I went on the Candida diet when I was first diagnosed with Fibromyalgia hoping it was actually a full body yeast infection. (It wasn't) On this diet you can't eat anything that feeds yeast. Basically I was eating meat and veggies, no fruits with some spices. I went through absolutely terrible withdrawals. I couldn't figure out how this was suppose to make me feel better. It was terrible but it went away in about a week. I have been thinking about going gluten-free with my kids as I did feel better and there have been studies about it helping FM patients, however I am a little hesitant just because of the whole withdrawal thing. Good luck and I hope he he feels better soon.

  • 4 weeks later...
Octoberme Apprentice
Octoberme
Posted

Hi there. I am a newbie to the gluten free diet, and unfortunatly self-diagnosed for now as I could just not live with the pain while waiting for the specialist.

Anyway, I was wondering if it is normal to have dizzy spells, sometimes feel naseated, and feel very lethargic and weak with no energy when first coming off gluten / wheat?

Thanks :-)

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ShayBraMom Apprentice
ShayBraMom
Posted

Is it any better now? this post is almost a month old! I remember my daughter back then beeing 12 month old getting very clingy for aobut a month or so! since I was still breastfeeeding her until she was 14 month old, I had to cut oput gluten too and let me tell you, you do go through some type of withdrawal and it does not feel good. You feel constantly like you are starving, your mood fluctuates and so on. I feel for anybody who goes through it and feels it so bad, it's tough! It wikllg et better thoguh!

Hi there. I am a newbie to the gluten free diet, and unfortunatly self-diagnosed for now as I could just not live with the pain while waiting for the specialist.

Anyway, I was wondering if it is normal to have dizzy spells, sometimes feel naseated, and feel very lethargic and weak with no energy when first coming off gluten / wheat?

Thanks :-)

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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