Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Woman Lives On Toilet - Ap News


Lisa

Recommended Posts

Lisa Mentor

Open Original Shared Link

Perhaps she has undiagnosed Celiac. This is just bizzare. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast
Open Original Shared Link

Perhaps she has undiagnosed Celiac. This is just bizzare. :blink:

That's nuts! Also, no personal hygene during that 2 years!

lizard00 Enthusiast

That has to be one of the strangest things I've ever read or heard of... WOW! :huh:

jerseyangel Proficient

I can understand the depression and the fear--what I can't understand is how the boyfriend let it go so long before he called for help.

blueeyedmanda Community Regular

we heard this on the radio on the way to work this morning and we were thinking the same thing....why wait 2 years to call anyone for help.

~alex~ Explorer

Wow, this is bizarre :o! Hard to even comprehend. I certainly hope she is able to get the mental help she requires and maybe a gluten-free diet as well. It's hard to understand why the boyfriend wouldn't have reached out for help earlier but I guess I don't know what his circumstances are either. Maybe he could benefit from contact with a mental health professional as well; sounds like he was somewhat out of touch with reality. Very sad story all around.

Mom23boys Contributor
I can understand the depression and the fear--what I can't understand is how the boyfriend let it go so long before he called for help.

Hubby and I were talking about this this morning. We were trying to figure out exactly HOW you would tell someone that your friend would not get off the toilet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmidge Rising Star

The only thing I can think of is that when he said to others "She's always in the bathroom." They felt he was just saying what every guy says and he was exaggerating.

ravenwoodglass Mentor

That story is so sad. I do hope they both get the help they need and that they don't do something cruel like charge him with something....well unless she was chained to the sink.

confused Community Regular

The paper here today said they were thinking about charging him, it is so sad. Im guessing they had two bathrooms and he used the other one since she was stuck on the toilet.

Hubby and I were talking about this today and he said he would of called for help after an week if i refused to leave the bathroom.

paula

imsohungry Collaborator

Huh...

I suppose it's really not that different than any other form of Agoraphobia other than her location.

She chose the bathroom, others choose the living room, bedroom, kitchen, or simply the entire house.

Think for example of the 5:00 news. We occasionally see stories of a person who lived for years never leaving his/her home. The home is often filled with feces, bags of trash, etc. and often, no one is aware of the problem until the person dies in the home. Sad, but true. These examples, of course, are extremes. The manifistations of this disorder exist on a continuum.

Hopefully she and her boyfriend will both get the help they need. -Julie

flourgirl Apprentice

It's my understanding that both of them struggled with mental health/capacity issues. What I find so very sad is that apparently there isn't anyone there for them to care, help or even notice what a bizarre situation they were living with! They can't charge the boyfriend with negligence if he has not the capacity to understand right from wrong, or strange from normal, at least I hope not. We are praying that they get the help they need from somewhere. I would imagine the she will be wheelchair bound; there can't be any muscle tone. I wonder, too about the nerve and circulation damage! Poor people!!

gfp Enthusiast
I can understand the depression and the fear--what I can't understand is how the boyfriend let it go so long before he called for help.

Well I guess when she say's 'maybe tomorrow' he's more worried about possibly traumatising her and forcing the issue.

I know its a long time but she was presumably pretty depressed and it can be very hard to choose the moment to 'betray' that person's trust.

Retrospectively with 20/20 hindsight he probably knows he should have done it earlier but when exactly is a difficult question ?

1 Week ? 1 month ?

Having lived with someone manically depressed I know its very hard to make that betrayal ... (as they see it) .. at some point you have to decide for them they are not fit to make the descision about calling in help but in the end it has two outcomes .. they may be committed for their own safety (and involuntary pscychiatric treatment is hardly the most effective and can push them over the edge) or they might come round.

I had to walk away from my ex ... I took the step of informing her parents (which she will never forgive me for) but as someone told me here (no names) she has to make that descision to get help by herself or die.

This guy will get a lot of flack for being put into an impossible situation ... which I'm sure he now realises he could have handled better but after 1 month he had no idea it would go on for 2 years...

imsohungry Collaborator

Very well stated flourgirl!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,668
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.