Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Be "intolerant" To Dairy Even If You Don't Have Any Gi Symptoms?

CuriousOne

Recommended Posts

CuriousOne Apprentice
CuriousOne
Posted

I'm not sure if I have issues with dairy. I think I may, but not sure. If you had issues with dairy would it be obvious??

I started eating ice cream about a month ago, and noticed I digested it fine. So I started eating it more and more. Recenlty it got to the point I had to have it everyday...and usually I would have 1 quart a day at a time. Sometimes 1.75 quarts...

But it was so good. And it was my only source of carbs (the rest of the day I would just eat good meat/veggies...some fruit)

But recently I was wondering if maybe I should really cut it out for 2 weeks to see if it makes a different in my general mood?

I don't feel depressed...but I think I struggle with anxiety...wonder if it could somehow mess with that. I seem to remember times in my life when I was against all dairy (for whatever reason) and I was doing better...

But is it so insidious that it affects you even without you knowing it? I seriously felt huge withdrawals today from ice cream....HUGE. I find that odd.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

Withdrawals would be a big clue... ;) Yeah if you have an idea that dairy affects your mood, and especially that you seem to be a bit addicted to it, I think it would be a good idea to cut it out at least for a trial period.

Is there a special reason why you're not eating any carbs? I'd think it would be more sensible to eat a small amount of carbs in the form of a gluten free grain or for example sweet potatoes or something, instead of loading up on ice cream full with sugar and other unnecessary stuff?

Pauliina

feelingbetter Rookie
feelingbetter
Posted

I have been gluten-free for 2 months and 1 month of dairy. I tested positive through enterolab for both. I went through the worst withdrawal from dairy. I think I am still going through it. I have had frequent migraines, headaches, crippling fatigue, irritability and some ear canal pain.

However when I gave up dairy I finally now have nice daily bowel movements. :)

Nancym Enthusiast
Nancym
Posted

Some people I've talked to have reported depression or psychological things as side-effects of dairy. For me it is sinus and muscle cramping mostly, secondarily constipation.

So yeah, give it up for a couple of weeks and see what happens. Hopefully the withdrawal symptoms won't be too awful.

I'm sure I don't have to tell you though... that much ice cream is *not* a good thing. Too much sugar for one and you're probably not getting enough other food with nutrients you need. Generally if I get compulsive about a food I have to eliminate it from my diet.

Joni63 Collaborator
Joni63
Posted

I'm glad you brought this up CuriousOne, I've been wondering about it myself.

It sounds like milk is bothering you. I think everyone's symptoms are different.

I get bloated, but no other symptoms and feel extremely fatigued. My upper eyelids also get puffy when I have these symptoms and I just plain feel bad.

I have narrowed it down to milk or chocolate, and possibly caffeine. I'm not sure how to narrow it down from here. I guess I have to test milk alone, then coffee, and if none of those cause my problems assume it's chocolate. You don't know how I hate the thought of that!!! It's what I crave so it is probably the problem. OUCH!

kbtoyssni Contributor
kbtoyssni
Posted

It might also be that it takes you some time to feel the affects. If I get a tiny amount of gluten, I often don't feel anything. But a while back I was accidentally eating a CCed product and after a few weeks started to feel really yucky. Also, if it's a lactose problem, you may be able to handle a small amount but can't digest the larger amounts.

MaryJones2 Enthusiast
MaryJones2
Posted

A small trace of dairy makes me extremely slow (mentally and physically) for a few days. I have quite a few issues with dairy but would not really say any of them are digestive. The lack of mental clarity thing, or lack thereof, drives me crazy and is one of my biggest complaints.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AliB Enthusiast
AliB
Posted

If you have become that addicted to the ice-cream then you definitely have a problem, and I would say that it may well be to do with Candida.

The sugar and carbohydrate feeds it and it actually makes you crave the foods it feeds on. Basically it is a parasite. The more you feed it the bigger it grows.

I find that with carbs. I was reading the other day that eating carbs makes us crave more. If you don't eat them, after a few days you don't want them.

If you are eating fruit and vegetables, you will get plenty of carbs from those - good carbs that will give your body nutrition. You may be able to cope with a little carb, but as soon as you get the craving that's an indicator that you have had too much already.

You know these really obese people that cannot stop eating? They have the same problem. Their craving never switches off. On top of that because they are constantly eating 'empty' calories, their bodies are also craving nutrients they aren't getting so that keeps the need for food constantly going.

If you are concerned about getting enough calcium - apparently there is more calcium in green veg like broccoli and kale than in milk, so make sure you get plenty of fresh green veg and you should be well supplied. In some areas, there is a good supply in the water too.

ShayFL Enthusiast
ShayFL
Posted

Could be plain ol sugar addiction too. Sugar is EXTREMELY addictive for me. I have cut it out off and on throughout my 39 years. The longest stretch was 5 years with no sugar of any kind except what is found in fruit. And then just a little bite of hot fudge sundae....and then a few more bites next time. Then my own sundae. Then I am buying ice cream and fudge sauce for home. Then cookies. Then cake. Then scones. Then...then...then...and I wake up feeling like total crap and I crave it and get all nervous/anxiety all day. Then I realize that I "fell off the wagon". So I cut them again and it is 4 days of withdrawal hell.

Yup....could be dairy....or the most destructive drug known to man.....sugar.

MELINE Enthusiast
MELINE
Posted
I'm not sure if I have issues with dairy. I think I may, but not sure. If you had issues with dairy would it be obvious??

I started eating ice cream about a month ago, and noticed I digested it fine. So I started eating it more and more. Recenlty it got to the point I had to have it everyday...and usually I would have 1 quart a day at a time. Sometimes 1.75 quarts...

But it was so good. And it was my only source of carbs (the rest of the day I would just eat good meat/veggies...some fruit)

But recently I was wondering if maybe I should really cut it out for 2 weeks to see if it makes a different in my general mood?

I don't feel depressed...but I think I struggle with anxiety...wonder if it could somehow mess with that. I seem to remember times in my life when I was against all dairy (for whatever reason) and I was doing better...

But is it so insidious that it affects you even without you knowing it? I seriously felt huge withdrawals today from ice cream....HUGE. I find that odd.

Hello!!

well you know that if you consume sugar your mood changes. For the first hour you feell really up and full of energy and then your sugar levels fall down extremely and then you start feeling depressed and loss of energy.

That is the whole thing about sugar and mood changes.....

If you had any dairy issues I guess you would feel severe abdominal pain right after consuming it, bloating and things like that. .....but of course I am not a doctor....just from my own lactose intolerance experience......

kisses

meline

CuriousOne Apprentice
CuriousOne
Posted
  • Author

Thx everyone :)

I've decided to cut it out. Today is my first day. I'll report back if I notice anything neat... i was craving it a bit today...but I KNOW tomorrow will bring the biggest cravings, and i'll probably be somewhere on the internet looking for logical rationalizations on why its okay. Right now I'm cutting it out mainly because of the estrogens and stuff. But I think I may have other issues with it. We'll see...

CuriousOne Apprentice
CuriousOne
Posted
  • Author

I think dairy makes me very zoned out from the world. I guess...like it makes me not care or be aware so much of other's feelings.

Maybe if I have a leaky gut I absorb way more of the opiate-type chemicals than most people? I don't know. I do know though, that when my sister takes Oxycotin (sp) (for pain) I notice she becomes less aware of other people's feelings...

And I wonder if that is how I get... hmmm

We shall see... I'm kinda hoping a fog will sorta lift.

Ursa Major Collaborator
Ursa Major
Posted

Dairy can cause all kinds of symptoms, just like gluten. My youngest daughter and two of my granddaughters get awful eczema from it. One of my husband's cousins gets extreme depression if she eats dairy! I get gastro symptoms, that is so much easier to figure out, as that is what most people expect, and it is fairly obvious.

CuriousOne Apprentice
CuriousOne
Posted
  • Author

Well strange... you know I never did have GI symptoms with gluten (or so I can remember)...

But it wasn't until I really tried cutting it out, that I started having GI symptoms..

Today is my first day pretty much away from dairy, and I have to say... it seems like everything seems more real to me. Like, I was watching a movie and it was so rich...the emotions/feelings... watching Across the Universe. I felt like I could relate to everything... fear, sadness, happiness, anticipation...

I also noticed more energy today...like physical.

So now I'm wondering if its just true that for some reason I have become addicted to the casomorphines or something...

I'll keep reporting more. In some ways, I feel like a fog is sorta clearing...but I'm not sure if thats the yerba mate or not...although I haven't had much of the yerba, and I had it before when eating dairy so... Anyways this new experience of life is interesting...

  • 6 months later...
mr. moore Explorer
mr. moore
Posted

i don't mean to bring up old topics, but couldn't the topic creator use lactaid tablets?

ShayFL Enthusiast
ShayFL
Posted

Mr. Moore Lactose is only one problem with dairy. People who are lactose intolerant lack an enzyme to break down the sugar lactose. And there WILL be GI issues with lactose intolerance. This poster did not have GI issues with dairy, so was more likely responding to Casein which is a milk protein that MANY people cannot tolerate. Much like gluten Casein is opiate-like and can fit into our opioid receptors in our brains (thus causing addiction), not to mention other damage in the body (autoimmunity). I go back and forth on this between finding it irritating or intriguing. If you are so inclined, do some research on Casein. The only cure is to avoid dairy.

ang1e0251 Contributor
ang1e0251
Posted

Just to explain, those who are lactose intolerant also respond differently to lactose. It is the same with those of us that can't tolerate gluten, each individual responds differently. My daughter can use Lactaid with small amounts of dairy. For me, it doesn't help. I still react. Of course, if you're reacting to casein, Shay is correct, only going dairy free for life will do it.

  • 5 months later...
vickysmores Newbie
vickysmores
Posted
I have been gluten-free for 2 months and 1 month of dairy. I tested positive through enterolab for both. I went through the worst withdrawal from dairy. I think I am still going through it. I have had frequent migraines, headaches, crippling fatigue, irritability and some ear canal pain.

However when I gave up dairy I finally now have nice daily bowel movements. :)

those symptoms you just described are what i feel when i DO eat dairy. i also get really bad sinus congestion. i have ZERO digestive problems with dairy, just this stuff, sinuses and itchy skin. dairy sucks and if you think about, it

nasalady Contributor
nasalady
Posted
tofutti ice cream btw it delicious and safe

Unfortunately not safe for those who have to avoid soy! :(

RebeccaMarie Newbie
RebeccaMarie
Posted

Hi, CuriousOne,

About your increased craving for ice cream, please first check to see if there is HIGH FRUCTOSE CORN SYRUP in it. I noticed that I was hungrier AFTER eatng MOTT'S brand applesauce than BEFORE I ate it. HIGH FRUCTOSE CORN SYRUP (HFCS) tricks the brain convincing you that you want more. I suspect that that is the reason soda-pop makers are now loaing their products with HFCS. Now I eat an all-natural, no-additive applesauce a I feel so much better! Good luck to you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748
    Majesticrb
    Newest Member
    Majesticrb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.