Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Make You Spacy?

munkee41182

Recommended Posts

munkee41182 Explorer
munkee41182
Posted

I've noticed that I've been spacey (very spacey) lately....almost where at times I feel like a real idiot. I know it's not nice to say things like that about yourself....but since I just started going back on the diet....I'm kind of thinking....was me being a "space cadet" linked to going off my diet???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Gluten can absolutely make someone who has celiac disease or intolerant spacey. We often call it brain fog. I was aware of it to some extent in myself but saw it even more clearly when I had started to get well and my head cleared up. I could see it in my sister when I was trying to encourage her to get tested. She was really incapable of making rational decisions sometimes. I rarely see her in person and could really tell the difference as she healed when I talked with her over the phone. I could tell that she was thinking more clearly. It is caused not only by the effects of gluten itself but also can stem from the nutritional deficiencies that come with a damaged intestinal tract.

elonwy Enthusiast
elonwy
Posted

I describe it as "gluten makes me dumb". I'm normally a sharp, smart person. On gluten, I've got the IQ and attention span of a puppy. One of the most frustrating parts of the disease for me, in all honesty.

munkee41182 Explorer
munkee41182
Posted
  • Author

Could explain why my fiance looks at me weird when i say something....probably because I said it about 5 times already. There's been times when I haven't had a drink of alcohol and he's though I was drunk as a skunk talking to him about something.

kbtoyssni Contributor
kbtoyssni
Posted

This is the worst part for me, too. I'm usually very sharp and on top of things, but when I get glutened, I sometimes forget names of people I've known for ages and can't follow a conversation. It's embarrassing.

jerseyangel Proficient
jerseyangel
Posted

I refer to it as "gluten stupid" :D

I get clumsy, foggy-headed and sometimes words don't come out of my mouth right...kinda like my tongue is too big. Definately embarassing.

munkee41182 Explorer
munkee41182
Posted
  • Author

Yes I definitly hear you on the embarrassing part....sometimes I got so frustrated that I would stomp my feet and make a loud noise and just walk away from the conversation I had with my fiance....then he'd think that he did something wrong. Poor guy. Not only does he think hormones are a crock....he's going to think that this new revelation is a crock too. lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

Jami, I just read your other thread, about denial.... doesn't it scare you at all that this kind of thing happens to your ability to think? :o You can add a third symptom to your list! :)

My main motivation in staying strictly gluten free is the number gluten does on my head. I could live with the digestive symptoms, but I hate the way I feel if I accidentally get gluten, spacy, unable to concentrate, forgetting words, depressed...

Send your fianc

munkee41182 Explorer
munkee41182
Posted
  • Author

He now thinks my new revelation (gluten stupid revelation) is legit. Depression....never though about that. We went out for breakfast two-three weeks ago, I had some bread and all I wanted to do when I got home was go to bed. 10pm last night he wanted me to call my primary to find a new GI doc. I moved 3 hours away from my old GI doc (love him to bits, but not so much where I'll drive 3 hours to see him). Hopefully I won't need a biopsy again....i can just send my old files up to the new doc, run some blood work and call it a day (oh if it was just that easy). He though celiac was just the stomach lining being "eaten away" he had no clue about nutrients. I'll definately send him this way...we can all be hormonal on him :D:blink:

Off to a bridal shower with my boxed lunch in hand :-)

Daxin Explorer
Daxin
Posted
I've noticed that I've been spacey (very spacey) lately....almost where at times I feel like a real idiot. I know it's not nice to say things like that about yourself....but since I just started going back on the diet....I'm kind of thinking....was me being a "space cadet" linked to going off my diet???

I have the same problem. As soon as I get some gluten in my system, we can tell right away. It's almost like most of my higher reasoning is switched off. Drives my wife crazy, but we get through.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      8

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      Thanks this is helpful!
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    3. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    4. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748
    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.