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Celiac Disease- Cheetos?

celiacsucks

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celiacsucks Rookie
celiacsucks
Posted

All of the ingredients are gluten free, but after eating them I still had problems... Any Help?

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HAK1031 Enthusiast
HAK1031
Posted

they can be cross-contaminated, and more sensitive celiacs may have trouble with them

DingoGirl Enthusiast
DingoGirl
Posted

There's just so much artificial crap in Cheetos, including MSG, as I recall...... they made me quite sick, also, I gave them up, and gave up pretty much all artificial and chemical stuff. :( But, one feels better not eating this stuff, really. :)

Darn210 Enthusiast
Darn210
Posted

In an effort to eliminate some of the questionable ingredients from my daughter's diet, we switched to Robert's American Gourmet (that's the company) Tings (that's the product). It has like four or five ingredients. They taste (and look like) cheetos minus the cheese coating. It started as an option for a snack in the car that wouldn't leave everyone's fingers orange, but it has replaced cheetos for us. We like them just as well as the cheetos. They come in a baked version but I've never seen that on the shelf.

This is them:

Open Original Shared Link

Our local Whole Foods carries them but I've seen them at grocery stores, too (but not all).

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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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