1 In 133

[miles2go]

Hi, I was just thinking in the shower this morning, if 1 in 133 people are celiac, wouldn't that translate to roughly 1 in 133 doctors that are celiac? And if that were the case, wouldn't a lot of doctors be knowledgeable about it? Or at least a lot more? Are there a lot of undiagnosed doctors out there?

I don't get it...

Margaret

[SalmonNationWoman]

They don't get it!

That ratio of 1:133 refers to the # potential number of Celiacs, not those actually diagnosed in the US. I'm a doc and I didn't connect the dots until 15 months ago.

My father, who's an ENT/allergist has never gotten despite his obvious Celiac symptoms or that he's had 5 brothers die of Celiac related GI cancers.

My mother, a nurse practitioner of 54 years with (+) ulcerative colitis, (+) gluten intolerance and (-) celiac tests doesn't get it despite being told by 2 doctors to go gluten free.

My primary care didn't get it until I reported to him about my mother's genetic testing, my sisters' and niece's results. Even after I eliminated and challenged did he get it. I had to point him and the NP to what I unearthed before they got it. By now, there's no point in paying thousands for testing that will more than likely render false results. The dr. decided it was best to tag my charts and listen to what I had to teach him.

Go figure...... I hope their patients in the future benefit from my hard work.

[samcarter]

Ever hear the old phrase, "Doctor, heal thyself"? Doctors are the worst patients. My BIL is a doctor and IMO, he's a bit of a moron. He's "diagnosed" another BIL with some weird stomach problem, and told him to sit in certain ways to "alleviate" the pain. No discussion of possible digestive issues, celiac (lots of Irish on that side, BTW). Even though Dr. BIL's own daughter and wife have a wheat allergy, he's never brought up the topic to the BIL with the lifelong stomach issues.

Oh, and this same "doctor" came home from working at a clinic with lots of sick people and proceeded to pick up his infant son WITHOUT EVEN WASHING HIS HANDS. Exactly one week later, my SIL called and told me that the baby had pertussis. And, oh, so did her husband. GO FIGURE. Wash your hands, doofus.

Sorry. I'm just a bit down on doctors lately.

[mushroom]

I hope their patients in the future benefit from my hard work.

That is the sincere hope of all we self-diagnosed celiacs; that we can educate at least our own doctors It is too much to hope [sigh] that they might in turn educate their colleagues, although my PCP did state that the subject is under much discussion in the medical community here.

[SalmonNationWoman]

TOTAL SYMPATHY HERE. I'm a doctor and I'm down on doctors myself!

I've been on a sabatical from practice since just before my self-diagnosis. I'm not sure I want to return considering all the costly changes I'll need to make and maintain the the clinic a gluten-free zone. I've already decided group practice won't work for me, so BF and I are looking to move to property where I can have my private clinic attached to our house.

[DakotaRN]

TOTAL SYMPATHY HERE. I'm a doctor and I'm down on doctors myself!

I've been on a sabatical from practice since just before my self-diagnosis. I'm not sure I want to return considering all the costly changes I'll need to make and maintain the the clinic a gluten-free zone. I've already decided group practice won't work for me, so BF and I are looking to move to property where I can have my private clinic attached to our house.

Good luck to you.

[SalmonNationWoman]

Good luck to you.

I've already been visualizing a reinvented style of practice that's more lifestyle counseling with treatments included. Practicing isn't going to be my primary revenue stream, more of an advocation. Honestly though, with so many doctors speacializing (70% v. 30% in PCP), we need more lifestyle and food therapy doctor-educators if we're really going to implement mass dietary changes as preventative medicine.

[sixtytwo]

When you do go into practice again, you need to let everyone on this blog know. I am sure they would flock to you for treatment if they were anywhere near enough to make it practical to get to you.

[rinne]

Hi, I was just thinking in the shower this morning, if 1 in 133 people are celiac, wouldn't that translate to roughly 1 in 133 doctors that are celiac? And if that were the case, wouldn't a lot of doctors be knowledgeable about it? Or at least a lot more? Are there a lot of undiagnosed doctors out there?

I don't get it...

Margaret

Good point although I think the stats would be somewhat different, that there are many undiagnosed doctors out there is, I am sure, true.

I've already been visualizing a reinvented style of practice that's more lifestyle counseling with treatments included. Practicing isn't going to be my primary revenue stream, more of an advocation. Honestly though, with so many doctors speacializing (70% v. 30% in PCP), we need more lifestyle and food therapy doctor-educators if we're really going to implement mass dietary changes as preventative medicine.

I know I would be interested in a thread talking about what kind of clinic I would like to be able to go to, just in case you are interested in starting one.

I read a study recently about medical students at Harvard giving it a D mark because of its' close connections to pharmaceutical companies. Students talked about having raised concerns regarding the side effects of certain drugs and a professor dismissing those concerns, it was later revealed that this professor received financial benefits from this company. I am encouraged that young doctors see how their profession has been tainted by this corruption and are working to change it.

[Ahorsesoul]

As soon as there is an expensive medication for Celiac Disease, then all the medical folks will be interested.

[SalmonNationWoman]

As soon as there is an expensive medication for Celiac Disease, then all the medical folks will be interested.

But would you want to take that expesnive medicine knowing what you know about Celiac and all the meds that were heavily protmoted in recent history that turn out to cause more damage than good?

I don't know when I'll open a clinic. I'm still actively healing. It's only been about 15 months for me. My symptoms include neurological, ligament and bone complications and while it's true that nerve tissue can regenerate in its own manner, it takes time and diligence.

There's also some big financial hurdles like getting the hardware and software for this stupid e-records system, being HIPPA compliant, new equipment to accomodate my physical needs, etc. We're talking $30K minimum in a solo practice just for the e-records. I don't know how anybody else is fairing in this economy but our business and personal lines of credit is non-existent at this point.

[Snubu]

[it seems to me that the medical community is stuck in a paradigm. It was my chiropractor/kinesiologist who finally got it after three years of dealing with all my issues. I had THREE saliva tests that were positive on gluten, but neither he nor me got it until three months ago when his WIFE tested positive. When I mentioned celiac to my brother-in-law who is a family doctor and asked him about whether he has treated any celiac patients, his response was: I had maybe a few, but I do not bother with diarrhea people and send them to the GI! Here we go, the medical community thinks it is all about diarrhea!!! I am so frustratedwith doctors that I try to stay away from them. My chiropractor/kinesiologist can read my body like a book and has helped me more than any doctor out there who is only pushing drugs.

[Amy Joe]

Wow are there some powerful statements on this post. I am new to having a GI. But I can really relate about Dr's and not believing what we have to say about our own bodies. Took me 35 months of declining neurological health before my surgery and even at that I had to do 90% of the dx myself. My last NL Dr read my MRI and argued with me over the phone that it was normal....well it wasn't. I had to push for a special Upright MRI. I was blocked @ C1 vertebra from lack of CSF from my Cerebellum herniating down my spinal cord.

A dozen + brain guys before I got taken seriously and helped!

Thankfully I found a wonderfully smart Endo....

It appears that no matter what the health issue, unless there is big pay day for New Drugs.....it plain old sucks. Every where you drive there is a new Walgreen, CVS or Rite Aide going up.... It amazes me.

[SalmonNationWoman]

This will sound like some wacko conspiracy theory but her it goes...

If a patient can't be pidgeon-holed, they're cullable

If a patient doesn't respond to a uselessly expensive and risky drug, they're cullable

If a patient doesn't need a joint replacement (or refuses it), they're cullable

If a patient can't work 60-70 hour weeks on end, they're cullable

The medical estblishment colludes with big corporations to cull people that can't perform like robots with no desire or ability to think independently (replacement parts and all)

Less than 20 years ago the average IQ of Americans was 105. It's now 98, a 7 point drop. This is the dumbing down of America.

And we're all led to believe slavery ended with the Emancipation Proclamation...

Wow are there some powerful statements on this post. I am new to having a GI. But I can really relate about Dr's and not believing what we have to say about our own bodies. Took me 35 months of declining neurological health before my surgery and even at that I had to do 90% of the dx myself. My last NL Dr read my MRI and argued with me over the phone that it was normal....well it wasn't. I had to push for a special Upright MRI. I was blocked @ C1 vertebra from lack of CSF from my Cerebellum herniating down my spinal cord.

A dozen + brain guys before I got taken seriously and helped!

Thankfully I found a wonderfully smart Endo....

It appears that no matter what the health issue, unless there is big pay day for New Drugs.....it plain old sucks. Every where you drive there is a new Walgreen, CVS or Rite Aide going up.... It amazes me.

[Jestgar]

This will sound like some wacko conspiracy theory but her it goes...

If a patient can't be pidgeon-holed, they're cullable

If a patient doesn't respond to a uselessly expensive and risky drug, they're cullable

If a patient doesn't need a joint replacement (or refuses it), they're cullable

If a patient can't work 60-70 hour weeks on end, they're cullable

The medical estblishment colludes with big corporations to cull people that can't perform like robots with no desire or ability to think independently (replacement parts and all)

Less than 20 years ago the average IQ of Americans was 105. It's now 98, a 7 point drop. This is the dumbing down of America.

And we're all led to believe slavery ended with the Emancipation Proclamation...

I'd have to say that that sounds like an incredibly random group of statements and doesn't fit in to anything I've experienced.

yeah, I'd go with wacko.

[SalmonNationWoman]

I have a different perspective and insider information. I can say these things from over 25 years in practice and as a patient that's suffered the foolishness of allopathic medicine. Perhaps I haven't mentioned my father was an ENT/allergist and my mother was a nurse practitioner....

[Tim-n-VA]

So if I understand this:

The medical community can't be trusted.

You are part of the medical community.

Therefore you can't be trusted.

Therefore the medical community can be trusted.

You are part of the medical community.

Therefore you can be trusted.

Therefore the medical community can't be trusted.

Where do I get off of the cycle?

[Jestgar]

So if I understand this:

The medical community can't be trusted.

You are part of the medical community.

Therefore you can't be trusted.

Therefore the medical community can be trusted.

You are part of the medical community.

Therefore you can be trusted.

Therefore the medical community can't be trusted.

Where do I get off of the cycle?

:lol:

Yes, it's unfortunate that none of the rest of us have any connection with the medical community...................

[SalmonNationWoman]

I said ALLOPATHIC MEDICINE, not the entire medical community. There is a difference.

Acupuncturists, Chirorpactors and Naturopaths, etc, AREN'T ALLOPATHS! I NEVER SAID I WAS AN ALLOPATHIC PRACTITIONER, so no I don't trust ALLOPATHS, like MD's and most DO's.

[Mtndog]

I said ALLOPATHIC MEDICINE, not the entire medical community. There is a difference.

Acupuncturists, Chirorpactors and Naturopaths, etc, AREN'T ALLOPATHS! I NEVER SAID I WAS AN ALLOPATHIC PRACTITIONER, so no I don't trust ALLOPATHS, like MD's and most DO's.

I'm curious as to why in many views, acupuncturists, naturopaths, DO's and other "non-traditional" doctors seem exempt from criticism. I have had bad MD experiences, but I've also had bad acupuncture and chiropractor experiences. I had an acupuncturist tell me I didn't have celiac and I could eat wheat as long as I saw him three times a week.

My 35 year old otherwise healthy husband had a stroke after a chiropractic neck adjustment. That may not have been the cause but it may have been. The chiropractor did no assessment, no Xrays just went right in and cracked.

There are good and bad doctors, Western and otherwise. I see a combination of both. It all depends on the practicioner. Would I see another acupuncturist? Absolutely. Chiropractor? Yep. MD? Yep.

[Amy Joe]

It's like any profession. There are good and bad. EXCEPT we hold Dr's of any field to a much higher level of expectation and Dr's are much more reserved because of lawsuit's.

Sad when you really think about it. I have noticed that a Dr in private practice is much more likely to want to try all kinds of NEW and IMPROVED drugs then those that are not of a private practice.

My family has much better care since we have changed to a non private Dr. You would think it the opposite. Our new Dr is at a teaching hospital, the entire staff of PCP's are only in clinic 50% of the time....the rest is in research. I have found that they tend to do more testing.

Amy Joe