Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Woodwind Players Out There?


heatherjane

Recommended Posts

heatherjane Contributor

I know this may sound a little random and weird to some, but is there any way cork grease could contain gluten? I've played clarinet for years, and realized the other day when I was putting my horn together how easy it is to get the grease on my hands, and sometimes on the mouthpiece. The ingredients aren't normally listed on the tube...the only thing I could think would be suspect is if it has vitamin E. I know the obvious step is just to call the manufacturer, but I thought I'd check and see if there was anyone who already knew.

I've been kind of a slow healer after 8 mos gluten free, so I'm just trying to eliminate gluten anywhere it may lurk. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The NIH has a product database. You may be able to do a search of it and see if the product is listed. If it is the database will tell you what is in it and what it is derived from. Not everything is in there and in the long run it may be easier to just call the company but figured I would suggest it.

heatherjane Contributor
The NIH has a product database. You may be able to do a search of it and see if the product is listed. If it is the database will tell you what is in it and what it is derived from. Not everything is in there and in the long run it may be easier to just call the company but figured I would suggest it.

Cool - thanks! What is NIH? I'm assuming it's online somewhere?

ravenwoodglass Mentor
Cool - thanks! What is NIH? I'm assuming it's online somewhere?

The NIH is the National Institute of Health. If you do a search putting in NIH and the product name it may come up in the results if they have a listing for the product.

dilettantesteph Collaborator

I play saxophone. One time I very absentmindedly put some cork grease on my lips thinking that it was lip balm. I was very worried that it might contain gluten. I rubbed it off right away. I am so sensitive to gluten that I have cut out almost all processed foods, yet the cork grease/lip balm did not make me sick, so I think that it is safe. The brand was the store brand for Music and Arts stores. It looks like normal cork grease.

  • 2 weeks later...
ilikepie Apprentice

I've played the clarinet for about ten years, I grease my corks every time I put my instrument together, and have never noticed a problem from cork grease. I am also very sensitive to even trace amounts of gluten. I don't have much brand loyalty when it comes to cork grease either. Vandoren, Woodwind Brasswind, or any generic store brand I buy has never caused a problem.

That being said, let us know if you find a brand you have a problem with!

  • 4 weeks later...
heatherjane Contributor

I emailed Yamaha, which is the brand I'm currently using, and a customer service rep emailed me two PDFs of the MSDS (material safety data sheets) for their cork greases.

The one I'm using is made up of Petrolatum, synthetic wax, and tallow blends (animal fats, i guess), and wintergreen scent. The sheet for the other one, labeled "organic", says Vaseline and hydrogenated palm oil. My hunch is that other brands would be similar... basically petroleum/oil based.

So, I think we're ok on all this, but I wouldn't want to put it on my lips. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LuvMoosic4life Collaborator

I've never had a problem and I play clarinet. Actually, I ran out of cork grees and used vaseline- works just as well :D

celiac-mommy Collaborator

Yeah, I just used to use my Carmex ;)

Swimmr Contributor

I play flute/piccolo.

However the last time I picked it up I had no idea I had a problem with gluten/wheat intolerance. I figured I'd pipe up since it's always nice knowing who played woodwinds.

Yay for woodwinds :lol:

heatherjane Contributor
I play flute/piccolo.

However the last time I picked it up I had no idea I had a problem with gluten/wheat intolerance. I figured I'd pipe up since it's always nice knowing who played woodwinds.

Yay for woodwinds :lol:

Woodwinds rule, Brass drool. :lol: Does that remind anyone of middle school band?

Shortly after getting diagnosed, I threw out my old reeds that I'm sure could have absorbed gluten if I hadn't had a chance to brush before playing. I disinfected my mouthpiece too. I love to play, and there's no way I'm getting glutened from it!

Imanistj Contributor

I haven't played for years but I still consider myself a bassoonist :)

  • 9 years later...
Dana1000 Newbie

Hi,

I'm a longtime saxophone player and was diagnosed 4 yrs ago. I have gotten a new mouthpiece and reeds but continue to play my horn that is from the 30's. It was cleaned by the repair sop but I am sensitive to trace amounts of gluten and I'm worried that gluten from the horn could get to me. Are there any sensitive woodwind players out there that play used instruments with no problems? I really want to keep playing this horn...

Thanks,

Dana

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.